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Re: cauda equina syndrome

Re: cauda equina syndrome

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Posted by Vickie on December 02, 1999 at 11:18:15:

In Reply to: Re: cauda equina syndrome posted by Ronald H Hoffman on November 09, 1999 at 23:29:47:

: Hi: I was operatyed on July 16/99 with Severe Spinal Stenosis. Laminectomys were performed
: on L2,3,4,5, plus three vertebrae above. Disc decompression on all lumbar discs. I was unable
: to walk and was incontinent prior to surgery. Released from hosiptal 3 mos later. I ultilize a walk
: er and wheelchair to get around. Have managed to get some cocntrol of the bowel, however
: bladder management real problem. Everytime I standup I urinate. I no longer stand for NAtional
: Anthems! Initial experience with condom catheters a failure but will continue trying. Changes to
: lower limbs very subtle but improvements are noted: Fortunately I am a very patient person and
: realize this will take time and my recovery so far has been ahead of intial projections.

: : :Gerry and Kathy: I was diagnosed with cauda equina syndrome after surgery for L4/L5 and L5/S1 disc rupture in August of 1998. I have gradually regained alot of feeling and have much better control of bladder and bowel, however, it's a slow process. I walk therapeutically and try to manage stress as well as I can. I control bladder flow by making sure I go to the bathroom every two hours and drink alot of water every day. Bowel management programs that Doctors recommend for parapalegics or people with spina bifida have worked well for me. There seems to be a direct correlation between stress and flare-up of symptoms. I learned alot about the syndrome by interacting with people on the internet. For me, it seems that time has helped as much as anything else. Mostly it's just getting used to the lack of feeling, after awhile, it becomes almost normal. If I can be of any help to any of you, please feel free to write me at my email address. There are some experimental programs for nerve regeneration that seem to be progressing, so there may be hope in the future for us all.
: : : : Kathy-My wife has been diagnosed with this problem as a result of having a disc removed July 99 , bowl and bladder control are difficult , doctors say problem due to compressed nerves and it takes roughly 6-8 months for a nerve to recover ,we wait and pray !
: : : : : I had surgery to remove and disc, put in screws and bolts. The clamp pressed on the nerve and bone causing paralasis from the waist down. Removed the screws and bolts two days later with no change in paralasis. The dr. says 6 to 12 months for the feeling to come back. With PT, I am walking well, but no feeling back. There is little bladder and bowl control and feels as though everything is droped down, which it is. I am very fortunate to have gotten back what I have, but would be interested in knowing if there are similar cases. Thanks

: : : Gerry, Thanks for answering back. I'm sure sorry to hear about your wife. I will pray for her also. Is she walking? They told me the feeling and body functions should come back in 6-12 months. It has been 7 so far. Still numb from waist down. I hope she has a possitive attitude, because that helps a great deal. Does she use the computer. I would love to hear from her too. Sometimes it helps to talk to someone who has been there too!!!!! I'll be praying for your family.

I would be very interested in discussing this with you. I have had this condition for a year. Please e-mail me at or

I have been in touch with many other people that suffer from CES and found that hearing all their stories really helps.

Hoping to hear from any of you.


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