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Re: cauda equina syndrome

Re: cauda equina syndrome

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Posted by James L on January 21, 2000 at 00:58:55:

In Reply to: Re: cauda equina syndrome posted by Vickie Wolfe on December 07, 1999 at 10:23:57:

I have also been coping with cauda equina syndrome, since April 1998. I also have bowel and
bladder control problems, and wear an "external catheter" (goes on like a condom, but with an
adhesive on the inside). I have been on a prescription for "Entex-LA" for a little over a year
now, and it has greatly reduced urine leak-through due to a weak muscle and loss of nerve
function. My urologist says one of the side effects of taking this medication is that it causes
the urethra to swell a little bit, which helps restrict the leak-through. You might check into this
with your urologist, as it has helped me reduce the leak-through. The end result is fewer trips
to the restroom, and a lower volume of urine in my leg bag.

: I have recently started a support group for anyone with Cauda Equina Syndrome. I would love to have you join our group. Please e-mail me at: vjwolfe@home.net and I will send any/all of you an invitation to join our group.

: In Loving Friendship,

: Vickie:
: : : Kathy-My wife has been diagnosed with this problem as a result of having a disc removed July 99 , bowl and bladder control are difficult , doctors say problem due to compressed nerves and it takes roughly 6-8 months for a nerve to recover ,we wait and pray !
: : : : I had surgery to remove and disc, put in screws and bolts. The clamp pressed on the nerve and bone causing paralasis from the waist down. Removed the screws and bolts two days later with no change in paralasis. The dr. says 6 to 12 months for the feeling to come back. With PT, I am walking well, but no feeling back. There is little bladder and bowl control and feels as though everything is droped down, which it is. I am very fortunate to have gotten back what I have, but would be interested in knowing if there are similar cases. Thanks

: : Gerry, Thanks for answering back. I'm sure sorry to hear about your wife. I will pray for her also. Is she walking? They told me the feeling and body functions should come back in 6-12 months. It has been 7 so far. Still numb from waist down. I hope she has a possitive attitude, because that helps a great deal. Does she use the computer. I would love to hear from her too. Sometimes it helps to talk to someone who has been there too!!!!! I'll be praying for your family.




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