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laur Senior Veteran ![]() ![]() ![]() ![]() ![]() Posts: 527 |
Well, its been a few days since I've posted here. I went to the derm on Tuesday. He said POSSIBLY this could be a lupus reaction in my body rather than regular acne. This all came on about 1 year before I got sick enough to be diagnosed with SLE Lupus. I have always thought in the back of my mind that it is all connected, but he did say that even a biopsy may not show it. Lupus is a tricky and sometimes well hidden disease with many "faces". Now I'm still not at all sure that this is the cause. My pimples are 9 out of 10 times only oil filled. They are not there one day and they do show up the next, already raised and full of oil. They can come 5 or 10 at a time in one small area or be spread out, but usually don't have the white junk in them. It's always seemed odd to me that they don't SEEM to be forming a few weeks ahead like a normal pimple, but rather just showing up. I have tried the following in the past 5 years: Minocyline 200mg daily for 3 months, erythromycin, avita, triaz, Klaron, tazorac, differin, spironolactone, yasmin, azelex/finacea gel, and accutane. (There was more than this but I honestly can't remember the names of everything). I gave everything I tried a GOOD chance to kick this, and most of it either made it worse or didn't touch it. I took a 40mg/daily 5 month course of Accutane and while it definitely helped at the time, I never completely cleared and broke out within 5 days of ending the course. it was as if I never even took it. Also, from the time I got this awful condition, it had SEEMED to me that something came in and literally "ate" some of the collegen in my skin. It was even in places that I hadn't had pimples and also before treating it with any harsh pills. Although my little oil filled pimples aren't very big, I do have pits and scars. Well, in a nutshell, lupus is a CONNECTIVE TISSUE disease. It literally attacks your own body creating problems where there weren't any to begin with. I was prescribed ELIDEL CREAM on Tuesday. Admittedly, I asked about it and he looked at me and said, "You know, maybe we're on to something here.".... I began using it ONLY as a spot treatment. It is an IMMUNOSUPPRESSANT cream (non steroid though). I didn't want to shock my own body and create even further problems with my lupus by using it all over right away. Plus, my trip is 2 weeks away and I wasn't sure how I would react. Well, to sum up......I used it as a spot treatment two or three times per day since Tuesday. I developed a few oil filled ones that I noticed one morning and I applied the Elidel directly to them. By the end of the day they are gone. It goes on creamy and smooth, and doesn't seem TOO drying other than I did put it on a "healing" one and it did dry it out further and make it a bit more red. But the oil filled ones from yesterday a.m....I put the Elidel on twice in the a.m. and once before bed (however, they were mostly gone by then).....today they are gone. I am still spot treating even the tiniest little thing to see what happens. They have never gone away like that.....and I DIDN'T pick them which was sssoooo tempting to rid the oil in them right away!!! Thanks always for the support and for listening again. IP: Logged |
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micheguns Senior Veteran ![]() ![]() ![]() ![]() ![]() Posts: 555 |
hi L, long time no see (or talk, rather)... I am glad to hear that your face is 70% better now. YIPPEE!!! Maybe this means the family reunion is going to be OK after all. It is just around the corner isn't it? I told you that elidale is good. Anyway, my birthday is in 5 days and my mom's friends (of all people) want to take me out drinking! i told them NO and they understand (because they know what i have been through) but they still insist. i just cried last night over this because i want to go out so bad, but when everyone looks at you and says "oohh, bad sunburn on top of acne, not good" i don't want to leave my house ever!! i look like i have rosacea but everyone tells me they don't think i have it. i mean, my whole face is bright red. Emma said that it is supposed to be red for a day or two, but this is day 3 and it is still red. any thoughts??? IP: Logged |
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laur Senior Veteran ![]() ![]() ![]() ![]() ![]() Posts: 527 |
Hi M I'm also trying to be optimistic, but its so hard to be let down again then. I think you have used so many products in the past few months that some of the redness could be caused by the irritation left over from the azelex and tazorac. Mine is still irritated and I haven't used tazorac in about a month and I haven't used azelex in two weeks. I still have that dry patch on my left cheek with a few bumps under the skin. I have these tiny ones emerging today. I am afraid that by using this cream, I will somehow be shutting down the part of my immune system that actually HELPS acne. Is that possible?? Like I'll end up with more or something?? Anyway, I hope your face tones down soon . I wil check back later. I'm glad you're on this new path and maybe, just maybe, you will be sooooo much better by the time you start school. I think you are doing the right thing. But your face probably needs to adjust to the microderm and probably the dryness of the other products. Are they going to keep you using all of them?? And are you moisturizing??? Maybe they will cut down a bit. When do you see the Estitician next?? L IP: Logged |
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nastenka Junior Member ![]() ![]() Posts: 7 |
have you ever thought that your lupus could have been brought on by mynocycline. I began having the syptoms of SLE last May. I got really sick and could barely get out of bed. After numerous test my primary care physician dianosed me with SLE. He sent me to a rheumatologist. She was great. After listening to my past history and the on and off use of minocycline and tetracycline for my skin, she stated that I had drug-induced lupus. I can never take tetracycline or any drugs in the family again due to the fact that lupus will come back. It took about 1 year for my lupus symptoms to go away but my blood work is still abnormal and it could take years to get back in the normal range. So to all of you taking tetracycline for acne, you should be very careful and realize the potential for such terrible reactions. IP: Logged |
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laur Senior Veteran ![]() ![]() ![]() ![]() ![]() Posts: 527 |
Thanks for your concern Actually, The drs are assuming that the lupus was brought out into a full flare by a hysterectomy I had, however, I did take the minocycline after that and it did make it worse.....I was really sick from it. I still have mixed reviews on how everything got started and tied together, but I'm not sure I will ever know for sure. L IP: Logged |
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