posted 08-18-2003 05:21 PM            

Heres what I'm using:

- CS-VPE
- Colloidal Silver (500PPM or above)
- Collostrom Plus

If you manage to get hold of these 3 items and use them together for 3 months I think you will all be pleased.

The CS-VPE is vital because its responsible for killing off the herpes virus inside the body. Using it twice daily for 1-2 hours is necessary to do this.

I've using these 3 items for about 3 weeks now and I already notice my PPP's reducing in size and soon I'm confident they will disappear for good. Don't waste your time with the laser treatment, try this method first.

posted 08-19-2003 05:06 AM            

Furthermore, all the methods mentioned with drying out work temporarily .. destroying the papules is only a limited-time solution and they "will" come back eventually if you stop destroying skin.

Masturbating the wrong way could be part of the cause .. if you masturbate, be sure to retract the skin all the way to the point that it stretches. It might hurt a little at first, but it serves a goal.
Lying under a tanning-machine or just the sun with your foreskin retracted is an idea too.

You basically want to strengthen, thicken and dry the skin. Make sure you dry it very good after showering, consider wrapping toilet-paper around it during sleep etc.

Again, most rubs are quite dangerous and wont work in the long-run.

3 "official" treatments have been mentioned:

-Circumsizing: Not something a lot of surgeons do at ages between 12 - 70 ( very rough indication ).
Refer to the " Im a woman Please Help Guys " -thread for the reasons why.

-using liquid oxygen, like with warts:
PPP are usually very small and numerous, and they're located on very sensetive area. Apart from the fact that it will hurt like hell, the chances of scars is quite large. Stipping these things with LO isnt somethign anyone can do .. you'll need a very experienced doctor to do it. If he goes just a little too deep, scars will develop. And with PPPs being quite small and very numerous, the chances of scars are very big.
Doctors dont recommend this treatment because the chance of actaully worsening it by replacing the PPPs with scars that are -larger- is quite big.

-CO2_laser:
A viable method, but keep in mind that they might come back -and- that the treated skin might not have the same colour anymore. Most doctors and professional sites will tell you that the skin will have a whitish colour afterwards ... dont think everything will be back to normal.
Personally I'm not sure you're helped with this treatment, as whitish skin is equally funny-looking I think.

It is not that doctors dont want to cooperate or dont care ... its just that even the most modern treatments such as lasers dont really help out in reality.
Just my opinion though, and yes I too have PPPs and have been looking for answers quite a long time.
Almost my entire family are doctors so when I finally told my parents I got to see every urologist and dermitologist they knew to be good.
I also told some of my closer friends and surprisingly quite a few had them too .. most of them either hadnt noticed untill I mentioned the phenomena or had always assumed it was natural and everybody had it.

The only advice I can give that is not dangerous and has no side-effects is :
-Dont wash the area with soap unless its PH-neutral !!, you dont want to kill off the body's natural way to keep the area clean, which you will do if you use "normal" soap. Just aim the showerhead at the area and clean it with water.

-Keep the area dry. Dry it after showering, if you want ..wrap toiletpaper around the shaft during sleep, go lie under a tanning-machine or the sun with the foreskin retracted.

-Masturbate the right way, pull your skin back all the way untill it stretches a little.

posted 08-19-2003 12:09 PM            

Just a comment on scarring and laser treatment. I am not sure what laser was used but there has been no scarring/blotches. The area affected has healed as though I hadn`t had anything done to it.

posted 08-24-2003 03:58 PM            

- Even the name of the surgeon who performed the operation can lead us to the institute?

- I understand you said about 500 dollars american.

I am guessing that with that price came to visits, where in turn you only underwent two treatments?

How long ago was this? Would anyone in your family (mother/father/girl friend) recall what laser treatment it was? Do you not have any reading material (ie: post-op recooperation information, pre-op suggestions, business cards, anything?)

Sorry, but your the only one who atleast says he underwent a treatment that I have researched to be the only known PERMANENT cure. So in saying so I ponder continuously over what treatment infact you underwent.

I have a meeting in 4 days with a top laser treatment surgeon, but having insight into a working treatment would better educate me and allow me to discuss this aswell with the surgeon. Mind you, I WILL more than likely be undergoing surgery, and have found at that each session is about 220 $ american. Where as up to 4-5 sessions may be needed. Also from what I have been TOLD the lesions hit with the laser will not return, however NEW lesions MAY. And I stress MAY, not for sure.

Anyhow, could you please try to find out a bit more information so we can all gain a better understanding.

Thanks.

I'll keep you all posted "folks"

posted 08-28-2003 08:59 AM            

(the posting of email addresses is against posting guidelines, all communication must remain on board, bfl}

posted 08-28-2003 10:02 AM            

Types of glands
Sebaceous

These glands produce sebum, an oily substance that also contains waxes and lipids. Sebaceous glands are embedded in the dermis over most of the body.
-------------------------------------------------------

posted 08-30-2003 01:26 PM            

- Yet another downfall.. I attended the meeting on Wednesday and was told the benefits of the laser surgery did not outweigh the possible side effects (scarring). In turn I was denied possible laser surgery correction. *sigh*, and the cycle continues.
Actually the doctor was not that bright, I had brought many scenarios (diff. types of laser treatments that have worked for hyperplasia sebaceous glands on the face, but my information and or input was not really requested in any form. God what a waste of 100.00$ on an appointment. I got to say maybe 3 words, was examined and given the boot. Never the less I believe the firm was not geared toward my related surgery and more cosmetic skin treatments. Rosacea, wrinkles, tattoos, birth marks, etc.
----------------- End of that Chapter ---------------

Second: If I see another remark about acne creams or drying agents I think I'm going to go bonkers. I do not want to say FOR SURE, but I am almost 99.9% sure that it is due to over drying that the so called "lipids" oil is created. In turn causing blockage/overly-active sebaceous glands. Therefor like mentioned a dozen times any harsh chemicals or drying agents will mask the appearance of bumps/papules/spots/etc. but they will return and more than likely stronger than before. About 5 years ago when I was first discovering my problem, I turned to Retin-A cream. As noted, appearance did fade so long as use of the cream was consistent, upon failing to apply they reappear.

------- Therefor: Drying agents will NOT do.
BTW: Anyone care to investigate wether or not I am correct in saying that it is due to dry areas that these form from. In turn once formed you are less likely to sweat in that area due to clogged/blocked glands.

---------------------------------------------------
Prediction:

I believe the asian community will if they don't already hold the key. It seems that the asian community is top of the list of 'affected' scale. For some reason the male/female asian population account for a lot of the reported cases of ppp/fordyce's condition. In turn I believe we need to start looking into asian-based firms narrowing in on the problem, and see if we can't sift through to find possible past-successes. But that is not to say we should depend solely on the asian community, as a matter of fact whoever posted that company name in regards to being head of investigation, about 9 posts back is on the right track. Any trails/leads are good.

-----------------------------------------------------

Home made remedies:
-> People, this is your 'lil guy', your 'twig & berries', your 'special someone' =]. I don't believe the answer lies in dumping various cleansing/drying/bleaching/corroding sollutions on it. And besides, do you want to be the guy posting 'Hey man, I tried that thing you said, and like my left testicle turned purple and all the bumps turned black and like skin is peeling all over, and this odour like a dead rotting carcas seems to have stained my bed sheets' =] unlikely but possible.
Don't be dumb!. We're trying to cure ourselves not plague ourselves with tails and or false hope.

This silver crap with the electric impulse machine...
- I researched in, question: Don't you think if this was such a good product why are there only a hand ful of small garage companies selling it? Sure, it SEEMS like they have 'proof' and logical reasoning. But are you really that dumb? Why wouldn't beds have built in negative-impulse massagers, geez. we'd all be cured!
- The word placebo (if spelled correctly) seems to echo throughout my head right about now.

dumb, di.. dumb dumb...

Inturn -----------------------------------------------
I believe laser treatments are the only way to go, until they design some sort of jelly that unclogs pores, restimulates balance amongst bodily oils.

Finding the right ones, at the right places, by the right people for the RIGHT problem is the only problems facing us.

Imanewbie: What the heck happened to you? disappear...
*odd*

Mattiscool: Keep it going brotha, seems like were a million miles away from a cure, but I think we just need someone with a really fast method of transportation. =]

COMMON PROBLEMS:

This more likely than not does not apply however I was reading over a survey and noticed that the african american community does not seem to be severely impacted by this. In turn I will note my body type for the record. Can similarities exist that have been overlooked? (unlikely... but I'll try every method for now).

I am very fair skinned.
I have very light eyes.
I am not a heavy sweater by any regards.
I suffer from migrane headaches (not as often as I did
as a child)
Women in my family have had/have rosacea.
I am very sensitive to the sun.

posted 08-30-2003 02:06 PM            

The drug clindamycin in an alcohol propylene glycol solution is another form of treatment.

Investigational Therapies
The antiandrogen (cyproterone acetate) in combination with or without estrogen therapy is being tested as a treatment for Fox-Fordyce Disease. More study is needed to determine the long term safety and effectiveness of this treatment.

References
TEXTBOOKS
Thoene JG., ed. Physicians’ Guide to Rare Diseases. Montvale, NJ: Dowden Publishing Company Inc; 1995:628-29.

Champion RH, et al., eds. Textbook of Dermatology. 5th ed. Cambridge, MA: Blackwell Scientific Publications; 1992:1671-72.

JOURNAL ARTICLES
Stashower LM, et al., Fox-Fordyce disease: Diagnosis with transverse histologic sections. J Am Acad Dermatol. 2000;42:89-91.

Ranalletta M, et al., Fox-Fordyce disease in two prepubertal girls: histopathologic demonstration of eccrine sweat gland involvement. Pediatr Dermatol. 1996;13:294-97.

Effendy I, et al., Fox-Fordyce disease in a male patient--response to oral retinoid treatment. Clin Exp Dermatol. 1994;19:67-69.

Monk BE., Fordyce spots responding to isotretinoin therapy. Br J Dermatol. 1993;129:355.

Feldmann R, et al., Fox-Fordyce disease: successful treatment with topical clindamycin in alcohol propylene glycol solution. Dermatology. 1992;184:310-13.

posted 08-30-2003 02:14 PM            

Pearly penile papules are asymptomatic dome-shaped papules on the coronal margin and sulcus. In one study they were present in 31% of asymptomatic men. They are more common among African American males and those who are uncircumcised.

Usually no treatment is required, but if cosmetic reasons are compelling, Laser surgery can be performed with good results and minimal side effects.

This information is provided for general medical information purposes only. Please consult your physician for diagnostic and treatment options pertaining to your specific medical condition.

The Henry Ford Hospital Department of Urology has experience in the evaluation and treatment of problems such as you describes. They would be most interested in helping you. You can reach them through our toll-free number (1-800-653-6568). We can also arrange local accommodations through this number if this is your need.
Sincerely,
HFHS M.D.-A.T.
*keyword: Penile lesions

posted 08-30-2003 02:44 PM            

'MALE ANATOMY'

posted 08-31-2003 12:59 PM            

I would suggest investigating the two majors:

1) Fordyce Condition/Granules/Spots/Disease
a.k.a: Apocrine Milaria
: Fox-Fordyce Disease

posted 09-01-2003 07:17 PM            

I have a temporary cure. Its called Oilatum. Used regularly it makes the spots disapear completely (but stop for a coule of days and they are back). This is over the counter stuff and the active ingredients are:

Soft Liquid parafin
White soft parafin.
PEG1000Monostearate, Cetosteraryl and Potassium Sorbate.

You get it in 2 flavours. I is for wet skin - you rub it in when you come out of your daily shower and wait for it to dry. Then theres a second cream for dry skin. It works for me but is temporary. Its an anti-eczema cream. I hope this information helps some of you.

posted 09-01-2003 08:26 PM            

lets keep up the good work. and i dont mean masturbation.

{reminder: all communication must remain on board, the sharing of email addys is a violation of posting guidelines....a suggestion to limit the number of future responses would be to create a new thread entitled ppp2 with a reference to this thread in the topic starter, bfl}