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  Cant take ANTI-INFLAMATORIES due to ULCERATIVE COLITIS - IN PAIN ...HELP!!!!

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Author Topic:   Cant take ANTI-INFLAMATORIES due to ULCERATIVE COLITIS - IN PAIN ...HELP!!!! | Page views:
papillonbutterfly
Member
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Posts: 58
From:England
Registered: Aug 2002

posted 05-01-2003 06:57 PM     Click Here to See the Profile for papillonbutterfly     Edit/Delete Message   Reply w/Quote
HI out there........ not chatted to anyone for a while, been doing ok , but now in real trouble.

I have osteoarthritis (DDD) in spine. Aged 28 . Been coping fairly well last few months, started to do more and pushed things too far I guess. In major flare-up (26 days now). Pain killers having no effect, getting a little relief from heat and T.E.N.S but not nearly as much relief as previously - just cant understand it, nothing seems to be working this time.

Because I've just been diagnosed with Ulcerative Colitis i have been told I am NOT to take anti-inflamatories which I would normally take as I think i may have a load of imflammation and thats why its not getting any better. I just cant understand it - I've never had a flare-up last this long before without seeing some "light at the end of the tunnel".
I am REALLY fed up and DEPRESSED now - running out of patience and willpower.

CAN ANYONE HELP ME...........KNOW OF ANYTHING ELSE I CAN TAKE AS A SUBSTITUTE FOR ANTI-INFLAMMATORIES???????????????????????
ANY HELP APPRECIATED

Papillonbutterfly x

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26yr old with lumbar disc problems S4/5 & SI joints (DDD). Cant work. Frustrated at being 'written-off' so young. Needing understanding friends.
Love to chat! :)

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twisten
Senior Member
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Posts: 142
From:Saskatchewan Canada
Registered: Jan 2003

posted 05-01-2003 09:55 PM     Click Here to See the Profile for twisten     Edit/Delete Message   Reply w/Quote
Hi Papillonbutterfly, boy do I know where you're coming from! I have crohn's and also can't take nsaid's. My doc has me on oxycontin and elavil along with all my crohns meds. Unfortunately oxycontin is a narcotic, but for those of us who can't take anti-inflammatories we aren't left with too many choices. I've seen some people on here take neurontin and I'm going to ask my doc about that med. Is it your doctors who told you not to take nsaids? Mine told me that not all people with crohns or uc have problems with the nsaids so we tried celebrex, vioxx, mobicox and bextra but unfortunately I am one who can't take them. What type of pain meds have you tried? Maybe you need to take a stronger dosage? Wish I had more suggestions for you. Fortunately the oxycontin works pretty well for me but I'd still like to find something that isn't a narcotic.

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brad61tn
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Posts: 5
From:Greeneville TN
Registered: Apr 2003

posted 05-01-2003 10:53 PM     Click Here to See the Profile for brad61tn     Edit/Delete Message   Reply w/Quote
i think you guys should consider using a NSAID in a PLO gel. These non-steroidals can actually be put into a gel that you can rub on and they will be absorbed into your blood stream. They should not mess with you ulcerative colitis. They should not harm your stomach either. You will have to find a compounding pharmacist to make it for you.

[This message has been edited by moderator1 (edited 05-18-2003).]

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Cheryl Ann
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Posts: 46
From:
Registered: Mar 2003

posted 05-02-2003 02:17 PM     Click Here to See the Profile for Cheryl Ann     Edit/Delete Message   Reply w/Quote
Hi, I know the feeling of not being able to take nsaids. I have osteoarthritis and am allergic to nsaids. I take ultram(tramadol-generic) for the pain, and it is not a narcotic, but is for osteoarthritis pain. It doesn't do a lot, but it does help some. Maybe this medication will be good for you to try. Hope this helps.

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fluffylala
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Posts: 50
From:Las Vegas, NV
Registered: Apr 2003

posted 05-02-2003 05:19 PM     Click Here to See the Profile for fluffylala     Edit/Delete Message   Reply w/Quote
I was in a four wheeler accident while I lived in Alaska the four wheeler landed on my rear and I've suffered hip pain since. While in Alaska, I used to make willow bark tea, which has salicytic acid a natural and effective anti-inflammitory. It has none of the side effects like asprin does and it worked great for me. I would try looking for willow bark extract in a healthfood or pharmacutical store, or if you happen to know where a willow tree is just peel some bark off and boil it for about 5 minutes.

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twisten
Senior Member
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Posts: 142
From:Saskatchewan Canada
Registered: Jan 2003

posted 05-02-2003 11:28 PM     Click Here to See the Profile for twisten     Edit/Delete Message   Reply w/Quote
Some very good ideas to try. I'm in Canada though and I know ultram is not available up here (already talked with doc about it) and I'm wondering if the gel can be purchased here also as it has never been mentioned by any of my doctors. I'm going to check into it though. The willow bark is an interesting idea, I'll look into that also.

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lilah
Senior Member
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Posts: 129
From:S.E. Arizona
Registered: Apr 2003

posted 05-04-2003 09:43 AM     Click Here to See the Profile for lilah     Edit/Delete Message   Reply w/Quote
Glycosimine, which has been discussed at length in various places on this board has helped me enormously with inflamation. The liquid works far quicker than tablets due to better absorption from what I understand. The key to having it work was to take enough and to take it consistantly. Enough for me seems to be a bit more than 3 grams a day. The one I use also has condriotin and msn. The relief was about equal to or better than any of the nsaids I had ever tried.

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papillonbutterfly
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Posts: 58
From:England
Registered: Aug 2002

posted 05-09-2003 05:19 PM     Click Here to See the Profile for papillonbutterfly     Edit/Delete Message   Reply w/Quote
Thinking about giving this Glucosamine a try, as nothing else is working.
How long does it take to work, show any improvements, days, months - someone told me it would be about 3months before any difference would be noticed!
Anyone know if you can buy it in liquid form from the health food shops in England, seen it in tablets only.

Pain levels are still bad and I'm seeing a physio for some manipulation to loosen the joints as they are so seized up she said. Not moving properly. Grotty time - can't see an end yet and thats scary!

papillonbutterflyx

------------------
26yr old with lumbar disc problems S4/5 & SI joints (DDD). Cant work. Frustrated at being 'written-off' so young. Needing understanding friends.
Love to chat! :)

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twisten
Senior Member
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Posts: 142
From:Saskatchewan Canada
Registered: Jan 2003

posted 05-09-2003 08:50 PM     Click Here to See the Profile for twisten     Edit/Delete Message   Reply w/Quote
I've tried glucosamine in tablet form with no success. I haven't seen it here in Canada in liquid form but will check. The frustrating thing with me is that the docs have said if I'm having trouble with my sacrum because of crohns chances are no test will show it. Crohns or uc is bad enough then add arthritis and troubles are intensified big time. Will post back if I find glucosamine in liquid form here and good luck.

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mpierce509
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Posts: 3
From:Vancouver, WA USA
Registered: Apr 2003

posted 05-11-2003 01:37 PM     Click Here to See the Profile for mpierce509     Edit/Delete Message   Reply w/Quote
Hi there, I too have back problems and a knee issue to boot. I found some liquid glucosamine on the internet called SYN-FLEX. I ordered it on line and it was delivered to my door a few days later. It seems to work OK. I have also used pills, but like the liquid better. I have found that Glucosamine complex, along with MSM helps a little with the pain. Willow bark and meadowsweet both have salcin, but are better for the stomach. Problem with herbs is that it can take from a week to a couple of months to see results. Most people give up when they do not get instant relief. So if you try them be patient. Blupleurum, ginseng, bromelain, and licorice are used in China to reduce pain from inflammation. I have not tried these herbs, but am considering to try them.

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npandey1
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Posts: 1
From:
Registered: May 2003

posted 05-29-2003 11:29 AM     Click Here to See the Profile for npandey1     Edit/Delete Message   Reply w/Quote
Solution for you Pappilon

read this link...http://www.curezone.com/forums/m.asp?f=65&i=488

and then this one... http://www.wholefoodsmarket.com/healthinfo/wholehealth/boswellia.html

That takes care of your UC in about 3 months time...

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lilah
Senior Member
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Posts: 129
From:S.E. Arizona
Registered: Apr 2003

posted 06-01-2003 06:51 PM     Click Here to See the Profile for lilah     Edit/Delete Message   Reply w/Quote
Sorry it has taken me so long to get back on the how long for the glycosimine. They say 8 weeks but I found that when I was taking the liquid in a large enough quantity (3 grams a day) I felt its effect within 3-4 days. It did take longer to get the full effect. Good luck and again sorry for the delay.

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Ron
Senior Member
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Posts: 93
From:Toronto Ont Ca
Registered: May 2003

posted 06-02-2003 02:49 AM     Click Here to See the Profile for Ron     Edit/Delete Message   Reply w/Quote
Hi papillonbutterfly,

I am wondering if you may also have osteoporosis which
is causing a loss of support for your disk cartilage.

If you have been taking long term prednisone osteoporosis is quite likely. A Dexa bone scan will
show bone loss.
If the osteoarthritis is due to an injury, that too can cause osteoporosis and result in pain.

This can be greatly helped with the use of Bisphosphonates (bone strengthening meds) like Alendronate and Pamindronate which are intravenously
administered or oral and fosamax which takes much longer to work.

Here are some links to a doctor's site with reports complete with journal referrences. You may need to print them and take them to your doctor to plead your case. Underline in RED all that applies to your symptoms and your doc will pay attention.
http://www.drmirkin.com/joints/7923.htm http://www.drmirkin.com/archive/6351.html http://www.drmirkin.com/morehealth/g160.htm http://www.drmirkin.com/joints/8902.html

Good luck...
Ron

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