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NorieB
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From:Newcastle, NSW, Australia
Registered: Apr 2003

posted 05-01-2003 07:21 AM     Click Here to See the Profile for NorieB     Edit/Delete Message   Reply w/Quote
What are Q-tips? Are they what we in Oz call 'cotton buds'? (little stick with twirls of cotton on each end)
I can't beleive how many people have this problem. Here i was thinking it was all in my head - which is basically what an ENT specialist once told me.
This condition is not being taken seriously at all, and i can't help but wonder that now people are actually starting to talk about it that it might not be as uncommon as we all thought. Pretty disheartening though when you explain to a Doctor at length about horrible smelly things coming out of your mouth and they look at you like a freak. This condition has been really taxing on my life for a long time now and it's not getting any better. My voice is getting really hoarse lately and i beleive that it's from the constant swallowing of this mucousy stuff (infection) down the throat. As my hobby is to sing in a folk club and play guitar i'm getting quite scared that this is it for my voice and i'm convinced it's all to do with this condition.
The smelly balls are called 'tonsiloliths' and i too have been told that it is food, which we all know is not quite right.
Finding your stories has given me the much needed determination to go back to the Doctor and show him a printout of this messageboard and demand to have my tonsils removed. Anything would be better than living with this forever so the pain of a tonsillectamy isn't too offputting.
Thanks for your honesty.
Lenore

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Lindarella
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posted 05-01-2003 03:12 PM     Click Here to See the Profile for Lindarella     Edit/Delete Message   Reply w/Quote
Norie, most often they're caused by post-nasal drip that isn't controlled well. Bacteria builds up more often when you have this condition and produces stones in some people. It sounds very much like that could be your problem as you're saying you have excess mucous and a horse voice, both or which are signs of post-nasal drip. It may be wise to try a few different nasal sprays before getting your tonsils out.

Your tonsils are there because they fight off infection. Most often they're taken out due to numerous throat infections that can't be controlled with medications.

The stones are not caused by food. They're much like plaque on teeth actually. They can build up very fast, just like if you didn't brush your teeth for a few days.

Good luck

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kitty1975us
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From:Jacksonville, NC U.S.A.
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posted 05-30-2003 06:59 PM     Click Here to See the Profile for kitty1975us     Edit/Delete Message   Reply w/Quote
I am so glad to hear I am not the only one with this problem. I was told by many doctors that I was imagining the crap in my tonsils, that I was crazy, and even had doctors say that they had no idea what I was talking about and that noone had ever told them of this before. I am so glad I am not the only one who gets this yellowish crap that smells and tastes like rotten oysters/clams. I hate to hear other people have this problem...but glad to hear I am not in this alone. My tonsils are always hard, and I get crap out on a daily basis. It sucks. I am always afraid that I have bad breath and that I am offending others around me. I have worked in the health-care field for 10 years, and up until this year I had not heard of anyone else with this problem. One day I was telling my embarrassing story to a girl and work and to my great suprise she finished my sentence and told me she had the problem too. She was lucky enough to have a doctor who listenend her and took her tonsils out. She has felt better physically and emotionally since that date. Unfortunately no doc's will give me the option. I'd have them taken out in a heartbeat. I know the risks, and I would still do it. I'd give just about anything to get rid of these crappy tonsils. I have lupus...I don't see how these darn tonsils can be helping me any...seems like I'd be better off with them gone...the docs seem to not agree. Well, thanks for letting me vent!

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moocow35
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posted 06-01-2003 11:50 AM     Click Here to See the Profile for moocow35     Edit/Delete Message   Reply w/Quote
I have also had the same problem for years. My regular doctor was clueless, I insisted on a throat culture, and even the tech doing the culture was clueless. I then went to an ENT, who knew right away what the problem was. He gave me a prescription for antibiotics, and told me to keep the area clean. He out and out said that I should NOT have my tonsils removed because of my age. It would be an absolute last resort. I have now for years been using a water pik, and add either cepacol or some kind of antibacterial mouthwash to the water. I do this daily, and the only time those nasty smelly things show up are if I don't use the water pik for a couple of days. I always know when they are there, in addition to the bad breath, I feel generally sick, sore neck glands, ears, and throat. Traveling with the water pik is a pain, but it is the only thing that will stop all the symptoms.

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quincy
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Registered: Apr 2003

posted 06-01-2003 07:32 PM     Click Here to See the Profile for quincy     Edit/Delete Message   Reply w/Quote
Hi moocow35,

Could you explain "exactly" the process you use with the waterpic. Also, when your ENT said to keep them clean....what was his suggestion? I do the squeezing method which I've "perfected"...but I'm interested in your method.

Thanks muchly,
quincy

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nikki303
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posted 06-02-2003 03:31 PM     Click Here to See the Profile for nikki303     Edit/Delete Message   Reply w/Quote
I stumbled across this site about a month ago and couldn't believe my eyes. There were other people out there just like me. I immediately made an appointment with my primary care doctor. She then referred me to an ENT. I was very relieved that the ENT didn't think I was crazy, and he recommended that I have my tonsils removed. Well, I had the procedure this past Friday. I am a 28 year old healthy female and I don't know if it was all worth it or not yet. I still am in pain. The liquid med (pain killer) that the doc gave me made me vomit non-stop. I almost wound up back in the hospital due to dehydration. Fortunately, after stopping the medication,the vomiting also stopped. So, now I am only taking Extra Strength Tylenol. It helps alot, but I definately know when I am ready for my next dose. I'm sure I will live, and be very happy with my decision to have them removed when I am all healed and I don't have to deal with these "little nasties",(as a previous writer referred to them), anymore!

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Undecided_one
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posted 06-03-2003 06:00 PM     Click Here to See the Profile for Undecided_one     Edit/Delete Message   Reply w/Quote
I get those. my family call them tonsil pussies. kinda gross eh?

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greatgirl
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posted 06-03-2003 07:14 PM     Click Here to See the Profile for greatgirl     Edit/Delete Message   Reply w/Quote
Wow, so many who have this too!
You wouldn't believe what my "tonsil stones" cause(d), when they get a lot (with time moving on) my skin is getting bad, and especially on the right side (that tonsil always produces more than the other) of my neck and jaw I get huge bumps. First (before I knew all about that tonsil "left overs") I was so desperate, not knowing why my skin would turn so bad, but then now after I went to the doctor and she "squeezed" it out with professional tools, my skin cleared up within days! I was told by a doctor, that my nose is built too small from the inside and thats why I have a hard time breathing right, so I breathe through my mouth, and that is what causes the tonsils to be prone to bacterias and infections. Well, I don't know about that, I rather believe that my tonsils cause my nose to be all closed maybe, one circle you know?
Also at night, it is like I feel heavy on my chest and can't breathe, maybe the tonsils are the reason.
Some tell me to have them taken out, other docs tell me to do a nose surgery (laser the innerflesh of nose), and then i could breathe right and there would be no more tonsil stones, but hey, come on, I bet all you people who have the same problem, you do not really have probs breathing through your nose, or do you? Because whenever I had days with normal to good "nose breathing", it didn't matter, the tonsils still got sore and built up mucus and "stinky stones".
All I know is that I am tired of it and have to do something against it, and NO, people, antibiotics won't help, took them twice already, still there.
Self experimenting like pushing your tonsils with something hard is way not to recommend, you can make it all worse and damage your tonsils and area real bad (little damages under microscope that are prone to even more bacterias).

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greatgirl
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posted 06-03-2003 07:16 PM     Click Here to See the Profile for greatgirl     Edit/Delete Message   Reply w/Quote
OOps, double post,lol

[This message has been edited by greatgirl (edited 06-03-2003).]

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moocow35
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posted 06-03-2003 10:06 PM     Click Here to See the Profile for moocow35     Edit/Delete Message   Reply w/Quote
Hi Quincy,

I fill the reservior cup of the water pic with warmish water, and add about 1/4 of the cup with either cepacol or listerine. I have mastered getting the tip of the water pik, (without gagging) at the lowest setting, way back into the opening of my tonsils and irrigate the hole. I also pull the area open with the tip of the water pik to make sure all the area gets flushed. It takes practice, but believe me, it is worth it not to have the bad breath, and the ill feeling of swollen glands and ear pain. I have been doing this for a good 3 years now. It has become part of my morning routine, brush the teeth, and water pik the tonsils LOL. I think the ENT meant keep the area clean, just by what I am doing. He is the one that suggested this. Makes my Dentist happy also, cause I also do in between my teeth every morning. It works wonders for me, and being in my mid 40's, my ENT was really serious about having the tonsils out would have a very bad effect on me. He basically refused to do it. I used to use a Q tip, and that was painful and made my tonsils bleed. This actually feels good, maybe cause I know my breath doesn't have that awful stench. No more breath mints constantly.

Let me know if you have any other questions.

ºOº

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Angelus
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From:Hamilton, Ontario, Canada
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posted 06-08-2003 09:16 PM     Click Here to See the Profile for Angelus     Edit/Delete Message   Reply w/Quote
I have this same problem... I'm 16, I've had it for about 2 years or so now. I thought I was the only one who had it (as did many of you evidently) Well, any way, I want to do something about it, but I can't just go to the doctor. I'm a little embarrased to explain this to my mom (since it's not known widespread I would have to say something like "Oh by the way mom? I have this white crap that forms in my tonsils, they're called tonsil stones, I want to go to the doctor about it") So what should I do?

I can't just go to the doctor on my own. So how should I explain it to my mom? Your help is appreciated, thanks.

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Marie79
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posted 06-13-2003 03:24 AM     Click Here to See the Profile for Marie79     Edit/Delete Message   Reply w/Quote
I had my tonsils removed a year and a half ago. It was one of the best things I ever did for myself!

My tonsils were swollen up so huge that they were actually touching each other in the back of my throat. I had lost tons of weight due to the difficulty in just swallowing food. I Constantly had bad breath (horrible in the mornings!), and had difficulty breathing when laying down and trying to sleep at night.

I will not lie, the surgery was EXTREMELY painful. I couldn't talk above a whisper for a week, I couldn't eat or drink barely anything (lost even more weight). The pain meds made me throw up all night the first night, and when you get your tonsils out, the Last thing you want to be doing is throwing up! It was so painful that I went off the pain meds, and then the REAL pain from the surgery set in. Ouch!!

But I will tell you, it was all worth it! I no longer have huge touching tonsils, I can swallow my food, I can breathe better now (!), I no longer have the white dots that I could pick off with tweezers, and best of all, I never have bad breath anymore!!! It was so painful, but worth it.

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Marie79
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posted 06-13-2003 03:25 AM     Click Here to See the Profile for Marie79     Edit/Delete Message   Reply w/Quote
I had my tonsils removed a year and a half ago. It was one of the best things I ever did for myself!

My tonsils were swollen up so huge that they were actually touching each other in the back of my throat. I had lost tons of weight due to the difficulty in just swallowing food. I Constantly had bad breath (horrible in the mornings!), and had difficulty breathing when laying down and trying to sleep at night.

I will not lie, the surgery was EXTREMELY painful. I couldn't talk above a whisper for a week, I couldn't eat or drink barely anything (lost even more weight). The pain meds made me throw up all night the first night, and when you get your tonsils out, the Last thing you want to be doing is throwing up! It was so painful that I went off the pain meds, and then the REAL pain from the surgery set in. Ouch!!

But I will tell you, it was all worth it! I no longer have huge touching tonsils, I can swallow my food, I can breathe better now (!), I no longer have the white dots that I could pick off with tweezers, and best of all, I never have bad breath anymore!!! It was so painful, but worth it.

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JennieBlue
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From:CA, USA
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posted 06-14-2003 01:56 AM     Click Here to See the Profile for JennieBlue     Edit/Delete Message   Reply w/Quote
Hello.
I am sorry to hear that you do not feel comfortable telling your mother about your condition.

I suggest that you try some of the steps others have mentioned on this board and then discuss your problem with your mom.

Start off by telling her how long you've experienced the problems, how having this problem makes you feel, what you've done to fix the problem and how you've taken the time to research the problem.

Hopefully she understands your concern and gets you in to see an Ear, Nose and Throat specialist (ENT).
As for myself, I too have this problem. I went to see an ENT about two years ago and he numbed my nose and throat by placing an instrument in my nose that squirted out a highly pressurized local anesthetic (it didn't really hurt, but it felt very weird). Then he used a little scope/camera to see what he could find. The doctor said he couldn't find anything. I knew they were there. But, he basically told me I didn’t have a problem.

It took a lot of guts to go see that doctor and when I found out there was nothing he could do I was upset and frustrated because I was able to recognize that I had a problem.

Anyhow, I still have the problem. I do not want my tonsils removed...although that has been suggested; I haven't taken it into consideration. OUCH!
Like others, I am able to cough them up. One of my tricks is to use a little water tube that sprays water out at a direct/sharp angle (I got it when I had my wisdom teeth removed- ask your dentist for one). Sometimes it works, sometimes it doesn't.

I notice that I have more problems with the tonsiloliths when I eat certain foods, especially bread and ground pepper or other coarse spices. I notice that when I am able to remove a tonsilolith and I've recently eaten something with ground pepper, the middle of the tonsilolith will be solid and look like ground pepper (or whatever spice).

I agree with other people that this problem is probably related to post nasal drip. I have tried many products to rid myself of that problem. I haven't had any luck. Ever since I began to experience postnasal drip I've had tonsiloliths.

I hope that they go away.

I found a website that contains a product to help with tonsiloliths. Since I cannot post the product name or website, I suggest that you go to yahoo.com and look up information on it.

I haven't tried the products, but am thinking of trying the nasal drops (because they are supposed to target tonsiloliths).

Good luck. Please don't feel embarrassed to tell your mother about medical problems- compared to other problems you may come into contact with in the future-THIS is MINOR!

GOOD LUCK!


[This message has been edited by JennieBlue (edited 06-14-2003).]

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Marie79
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From:Northern CA
Registered: Sep 2002

posted 06-14-2003 02:34 AM     Click Here to See the Profile for Marie79     Edit/Delete Message   Reply w/Quote
JennieBlue,

I too saw two different doctors who told me I didn't have a problem with my tonsils (and they were so large they were touching each other in the back of my throat!).

I KNEW that I had a problem and tonsils that big couldn't be just nothing. I went and saw a third doctor who, when I opened my mouth, said "Holy S---!" She then immediately apologized for her comment, explaining that doctors are not supposed to have that type of reaction in front of patients! I told her I was glad to hear that somebody finally agreed that I had a problem!

That third doctor referred me to an ENT (a fourth doctor by that point) who was very nice and felt I had wasted enough time (6 mos by that point) and scheduled my tonsillectomy on the spot. Having the surgery was so worth it, I don't have any of these problems any more!

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JennieBlue
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posted 06-14-2003 12:56 PM     Click Here to See the Profile for JennieBlue     Edit/Delete Message   Reply w/Quote
Hey Marie,
I'm also from northern CA. Doctors have suggested that I have my tonsils removed, but I really don't want to.

At this point, I am still at a standstill. I am thinking of trying the threabreath products and see where it takes me.

I hate having this problem. I have had the same significant other for about 5 years now and about 1-2 years into our relationship I started to have this problem. It has been extremely embarassing and I feel awful. It's hard for me to even bring myself to kiss! *SIGH*. Threabreath here I come.

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Marie79
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posted 06-14-2003 09:32 PM     Click Here to See the Profile for Marie79     Edit/Delete Message   Reply w/Quote
Jennie,

Are your tonsils enlarged at all? Or do you only have problems with the tonsiloliths and bad breath?

The same thing happened to me with my ex-boyfriend. He was the one that told me I had bad breath and that was why he didn't want to kiss me anymore! I was so humiliated.

I know the fear of the pain is scaring you away from the tonsillectomy. But if you don't get it done, you will likely have this embarassing problem for the rest of your life. Do you always want to feel self-conscious? After 2 weeks, the pain was almost gone for me.

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A-Girl
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posted 06-27-2003 09:28 AM     Click Here to See the Profile for A-Girl     Edit/Delete Message   Reply w/Quote
First, if that Thera product works, please let all of us know. I am 26, and recently developed Tonsil Stones. I just got them in April. At first, I thought they were coughed up from my lungs, but later I discovered that I was wrong. I have no idea how I developed them. I went to see TWO ENT doctors. One doctor told me that I should just live with them because surgery is so painful. The other doctor told me, I will have to live with them, because insurance companies consider this a cosmetic surgery and would not pay for the tonsillectomy (I guess Health Companies may be the Doctor after all - since they decided my fate is to suffer with Tonsil Stones). Although the ENT agrees that they are a nuisance. If I experience infections then it would be grounds for removal of the tonsils, according to the ENT. I never get any throat infections, only sore throats. I want my tonsils removed. I use the Water Pik, Q-Tips, self-gagging method, coughing, etc, and NOTHING works. I can barely see mine and when I do, it is only because I am making a weird face and then they hide again. It is horrible. I cannot think of living out the rest of my life with this. At times, (to say the least)... Most of the time, I get a low-grade sore throat because they are so irritating. I even got a sinus cold and literally felt them in my throat, but could not get them out. I still feel them this very second and every time I swallow. I am envious of all of you that can "pop" them out. I would live with that, but I cannot live with Tonsil Stones, because mine do not pop out. When one finally does (after two weeks), I think there is a line of them waiting to come out, in addition. Again, I ocassionally get a glimpse of them on both tonsils. I have no idea why or how this happened. If anyone is successful by other means of surgery, I will definately pursue it. I am deathly afraid of a Tonsillectomy. The pain that people write about is horrific. I can deal with a bad sore throat and not eating, but I cannot imagine, razor-like feeling in the back of my throat. I have very small tonsils, but the ENT said, that does not matter. Plus I am allergic to Codeine. Does anyone else out there have any solid advice. I want to find out more about Laser Surgery and just scraping the surface of the tonsil so that there are no more pockets. I think Flonase caused this to me.

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Enfys
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From:Clarksville, TN USA
Registered: Jun 2003

posted 06-28-2003 10:46 PM     Click Here to See the Profile for Enfys     Edit/Delete Message   Reply w/Quote
Well... imagine my surprise at finding this message board while looking up "quincy" through Google. What I thought was an unusual condition and what my doctor told me (as some other's doctors have) must have been food impacted in my tonsil, turns out to be much more common than I would have ever thought. I had a "tonsil stone" or whatever you like to call it on my right tonsil this morning... I say "had" because just since I started reading these posts, I've apparently coughed it out... just took another look and it's gone now. It had been there for the last three days and I'd been keeping an eye on it to see just how big it would get. When my fiance caught me looking at my throat in the mirror and asked what I was doing, it was difficult to explain about these "things" I've been having come out of my tonsils for years now so I did a search to try to show him I'm not nuts.

My sister and I have had these nasty-smelling little buggers for years and years (I'm 46, she's 43) and when they first started we both thought, as some of you did, we were coughing them up from somewhere deeper inside... maybe from down in our throat. Neither one of us could imagine what they could be but since we both had them, we figured it couldn't be all that serious.

A few years ago, however, I had a VERY sore throat... it had been sore for about 2 days so I took a look to see what was going on and, as the one woman's doctor put it, "Holy S***!!!"... what was that THING sticking out of my left tonsil? It was my first glimpse at a tonsil stone/tonsolith/whatever. Over the course of the next two days it got bigger and bigger. I let my sis take a look at it and her response was to jump back (literally!) and ask "what the H*** is THAT?". LOL... my thought exactly. Being my usual optimistic self, I immediately made an appointment for the next day with my regular MD so he could tell me I had throat cancer. Wouldn't you know it... during the night part of it came out (I have NO idea what happened to it... swallowed, perhaps... ick!). No biggie, I thought... there's still enough left poking out of my tonsil to show my doctor I have cancer (yep, I'm an optomist, alright!). During the morning before my appointment, a coughing fit comes over me... wham, bam, what's left of the stone flies out of my tonsil and into my hand (can we say "ugh"?). I run to the bathroom and take a look... nothing left but a big GAPING hole in my tonsil. Ok, fine... still good evidence that I had a tumor in my tonsil, right? Wrong! By the time I got to the doctor's office later that day, the hole had nearly closed up. "It must have been impacted food", he says, after giving me that "she's clearly out of her mind" look. I just looked back at him and said nothing. Maybe it wasn't a tumor after all, but I KNOW it's not impacted food! Food? I still have my doubts on that theory but finally I'd discovered just exactly where those hard little thingies I'd been coughing "up" for years were coming from. I still have problems with them. I also have many of the problem lots of you folks have described... a hard time breathing through my nose (hence, I'm a mouth breather), chronic postnasal drip/drainage/whatever, throat sore more often than not, tonsils constantly swollen and inflamed.

I've gone on and on here, haven't I? LOL... sorry, just wanted to tell my story and say I've read every single post in here and as soon as I get married (at which time I'll have medical insurance), I plan to get myself to an ENT and have something done about this... I don't know what, but something WILL be done. I'm sick of the constant sore throat, drip, swollen tonsils, etc. In the meantime, I'm going to look into getting a Waterpic... it seems from some of the posts, that trying to keep my tonsils cleaned out will be a big help. Thanks to everyone for your input and good luck... maybe we can all get some help of some kind eventually.

[This message has been edited by Enfys (edited 06-28-2003).]

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Grrrrrrrr
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posted 07-04-2003 04:45 AM     Click Here to See the Profile for Grrrrrrrr     Edit/Delete Message   Reply w/Quote
Wow, I'm amazed at how popular this message board is.
I too have been fighting the endless battle with these nasty 'tonsil stones'. My removal method of choice has been sqeezing them out with my fingers and lots of gargling with listerine. (Luckily my hands are small enough to reach back there.) However, that Waterpic sounds like a really good idea. I think I'll go buy one this weekend and add it to my daily tonsil-picking ritual.

Anyhoo, my question for you all is this... Does anyone have any idea if other people can smell these rancid things on our breath?? If I knew somebody else could catch even the slightest whiff of these nasty things, I don't think I'd leave my house! My boyfriend told me that most of the time he can't smell them, but he could just be being polite. I'm curious if anyone else has gotten any confirmation from a trusted friend!

Thanx for the all the stories!

~Tara

[This message has been edited by Grrrrrrrr (edited 07-04-2003).]

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platinum3kt
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posted 07-09-2003 11:18 AM     Click Here to See the Profile for platinum3kt     Edit/Delete Message   Reply w/Quote
Just wanted to respond to the previous message, I'm sure if someone is close enough to you they would be able to smell your breathe. Which is why I always chew gum or keep some powereful meant in my purse. Lately, the tonsil stones have gotten worse. Just yesterday, they not only showed up in the pockets of my throat, but they were also behind the Uvula (you know the thing that dangles in the back of your mouth). This morning my throat is aching, I'm not sure if its becuz there are more or becuz I was picking at my tonsils. I definitely plan to use the waterpik. I also so advertising for some mouthwash and oxygen tablets that are supposed to decrease nasal drip and bacteria causing the tonsil stones. Its amazing that this topic has been going on for almost a year!!!

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mwilliamryan
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posted 07-09-2003 02:49 PM     Click Here to See the Profile for mwilliamryan     Edit/Delete Message   Reply w/Quote
Hi everyone, I've never been on this site before, but I was doing a search for "tonsil stones" on google and came across this board. So glad I did. Knowing other people are suffering through this same crap makes me feel better already. I had a huge tonsil stone when I was an adolescent and was able to show it to a doctor. The doc knocked it out and I can't remember what he said. I think I was just relieved it was gone. I didn't have them (or notice them) again until I was in my early 20s. Seems to have been right around the time I started having post-nasal drip. Since that time, I've had all sorts of sinus, ear and throat problems. I always thought the problem was somehow connected to my ears because of the itchiness that some other people have mentioned. I seem to get one really bad sinus infection per year, (I am recovering from this year's right now.) After all the reading I have been doing, I think the bacteria building up in my tonsils may be contributing to my susceptibility to the sinus infections. Anyway, I too have made a habit of trying to press these buggers out before they get too big or annoying. However, I'm never sure if I'm getting the whole thing or just runts from something more ominous. I do get some relief by doing this, but more are always on the way. I can always tell if I have one building up because of the low-grade sore throat that other people have mentioned. These stones combined with post nasal drip have made life somewhat miserable, as I'm sure you all know. I am now dedicated to finding a way to have better tonsil health. I have ordered some therabreath ClO2 nasal drops and tablets. Don't know if this will work or if it is false hope, but as you know the promise of getting rid of these things will make you do just about anything. I'm also going out today to buy a water pik and try cleansing my divots that way. As for having your tonsils removed, I have a question: Is the only reason that this procedure is not recommended for adults because of the ensuing pain? Or are there other risks or things that can go wrong? Just wondering because I haven't read any messages from people who had their tonsils removed that said they wished they hadn't.

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nikki303
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posted 07-09-2003 05:45 PM     Click Here to See the Profile for nikki303     Edit/Delete Message   Reply w/Quote
I wrote a little over a month ago on this message board about having my tonsils removed. I had a bit of a tough time at first, and about 8 days after my surgery my throat began to bleed. It bled on and off over days 8 and 9 post-op and by day 10 (The day I was supposed to return to work), the bleeding wouldn't stop. I was rushed to the ER and the doc used silver nitrate on my throat which is similar to cauterizing. The bleeding stopped and never returned. At my post-op dr. appt., he told me that the severe bleeding that I experienced only happens to 2 percent of the people. It has now been almost 6 weeks since my surgery and I feel great!
Before, I was constantly look in and digging at my throat. Now I hardly even look in there.
There was pain involved, especially being an adult, but I am so glad I had it done. It was well worth it!

[This message has been edited by nikki303 (edited 07-09-2003).]

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Mook
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posted 07-10-2003 07:40 AM     Click Here to See the Profile for Mook     Edit/Delete Message   Reply w/Quote
Heh, I found this forum by typing "hard yellow throat" into Google on a whim, lol. I't's quite surprising to find that this is such a common thing and so unrecognised in the medical profession.
Unlike most here I dont disslike my 'stinkballs' all that much. Sure they cause the occasional swelling and smell like pungent death but I think I'd miss those cute little nuggets of vile if they ever dissappeared perminantly. After all, what better way to liven up a dull party than to violently hock up a quivering, 3lb khaki specimen on the nearest coffee table.
Hmmm... perhaps not, but dont you think having your tonsils removed is going a bit far? Surely there must be some small surgical procedure to stop the post-nasal-thingy, thereby halting the production of tonsil stones.
Apart from the old finger squeezing method, I find that trying to suck the throat or tonsils into your mouth removes them relatively easily, I havent had any new ones for well over a year after using this method so maybe the method could help some others to clear them.
Somewhere on the net, I saw mentioned a tonsil stone "the size of a large grape". The doctor, in reply, consistently mentioned the chance of tonsil cancer in relation to the size of the stone. Anyone getting very large stones should perhaps take the mention of this into account.
Btw, I once kept a large stone aside for some reason. When I looked at it an hour later, it had turned into a small brown crystal!

------------------
Save the stinkball!!

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mwilliamryan
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posted 07-10-2003 07:35 PM     Click Here to See the Profile for mwilliamryan     Edit/Delete Message   Reply w/Quote
Well, I don't believe this! I went out and bought a WaterPik today. I got home ripped it out of the box, mixed some Listerine with warm water and gave it a whirl. First of all, this is way harder than I thought it would be. If you have any kind of gag reflex you're going to have problems. I had the thing on the lowest setting and its spraying out of my mouth and every which way, all over the mirror, my shirt, the floor. I couldn't really see where I was aiming so it's all kind of by feel and just when I get back to where I think my tonsil is, I gag. This is definitely going to take some practice, I'm thinking.

See, my problem has always been that my left tonsil is always a little hard and sore even if I don't have any stones and I've always figured that something has been blocked up in there. (It gets stones way more often than the right tonsil.) But I never wanted to press on the thing too hard for fear of injuring myself. But you know I'm kind of in this frenzy like I feel like I'm onto something. So I take out the tongue-cleaning tip for the WaterPik and try using that because it kind of deflects the spray a bit. Low and behold, I'm able to get that back on my tonsil opening for a bit, I have a few gags and then I have the MOTHER of all gags and the most putrid brownish-black slime comes pouring out of my mouth. No kidding. Sorry if I'm grossing you out, but I've never been so disgusted and so ecstatic at the very same time in my entire life. This crap has to be the remnants of some kind of infection that's been hanging on up there for sometime now. Unfortunately, the slime slides down the drain before I can really examine it. If I'd known that was going to happen, I would have had the drain shut so I could donate it to science. Oh well. I don't know if I got all that was up there, but it's definitely a start. For the first time that I can remember, I can swallow and not feel pressure or weirdness in my left ear. This has got to be one of the happiest days of my life. I think cleaning and disinfecting these areas just might be the ticket. I'm going to stick with it until it's second nature. Luck to all!

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moocow35
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posted 07-10-2003 08:59 PM     Click Here to See the Profile for moocow35     Edit/Delete Message   Reply w/Quote
I have been using the water pik daily for years. Yes, it does take practice, but after a while you can just stick the tip of the water pik into the opening, and stretch the opening so to get into all the little areas. Believe me, when I get lazy (usually on the weekends) and don't use the water pik, I start to get that same old "sick" feeling. Ear pain, throat pain, gland pain, and I always find a little stone in there. I'm glad you are happy with it. Stick with it, it really makes this situation completely manageable.

Good Luck!

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texann
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posted 07-11-2003 02:47 PM     Click Here to See the Profile for texann     Edit/Delete Message   Reply w/Quote
YAHOOOOO! I'm not alone! Today for the first time, I signed on to this site to research another topic. Quite to my surprise I found this message board, talking about something I thought I was the only person in the world who had.

I saw my first tonsilolith when I was a teenager and thought it was a piece of food. The next time I saw one was many years later. I was preparing to go to the doctor to have it checked out, but noticed after I ate lunch it was gone. I talked to the doctor about it with pretty much the same results as most of you have had. He didn’t really seem to know what it was. He said (as he put it) milking them out probably wouldn’t hurt anything. I have been doing that ever since. I find it embarrassing and I have never told anyone including my husband about it.

As a child I had chronic tonsil problems, but never had them removed. Most of my adult life I have suffered with sinus infections and post-nasal drip from allergies.

I feel totally liberated after reading all of your messages. I’m going to check out the water-pik method and the other products mentioned. Thank God for an answer!

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Airwave
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From:Bessemer, Alabama 35020
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posted 07-12-2003 02:07 AM     Click Here to See the Profile for Airwave     Edit/Delete Message   Reply w/Quote
Hi I am so glad I stumbled onto this board. I have suffered with a tonsil stone on my right tonsil not knowing what it was. When I open my mouth you cn se his white pulse ball that has been in my mouth for the last ten months. I keep reading that some of you have had yours to fall off I have not. I hve sharp pain in the back of my throat, popping n my ears, itching ears and ear pain. Sometimes I have difficulty in swallowing
and consant clearin of the throat. I wouldlike o ask has any one had long periods of laryngitis and weak vocal cords. Also a very hoarse voice. Because I have acid reflux my ENT thinks this is the cause of my voice being weak. Does anyone else find this to be happening because of the tonsil stones. However at age 39 I have decided tohave my tonsils taken out because of the constant throat infections and soreness.Will tell you about the outcome of the surgery soon.

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candycandy
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From:Honolulu
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posted 07-12-2003 12:14 PM     Click Here to See the Profile for candycandy     Edit/Delete Message   Reply w/Quote
I'm currently suffering from the worst sore throat of my life, and tonsils that are riddled with junk. As annoying as this is, I'm relieved that they neither smell nor make me itch. Well, they might smell, but I haven't noticed, and I've honestly never put one up to my nose.
After reading almost all these messages (man, there are a lot of us, aren't there?) I want to make an appointment NOW but it's 6am and I don't think Kaiser is open. What is an ENT anyway? I'll probably go to sleep and the answer will hit me, then I'll feel dumb. But just in case it doesn't, someone please tell me what it is! I wonder if Kaiser provides that sort of thing... I had a cyst on my wrist and a Kaiser representative told me that in the past, people would slam them with a book to burst them.
Anyway, getting back to the tonsil-junk...
When I was 8, I was hospitalized for a week because I couldn't swallow and had a hard time breathing. I couldn't eat, and had IVs stuck in me and moved around from hand to arm to other hand and so on because my veins got weak. When it was over, a doctor came in and asked me if I wanted my tonsils taken out. My parents weren't in the room to help me decide, so of course I said "no." I don't know, did he expect me to say "Ooh, yes! Please take a scalpel and cut the inside of my throat!"? I was only 8. I've regretted that ever since. Now I have recurring throat-balls.
I'm totally irked because I'm 30 and I've already had enough surgery (wisdom teeth, c-section, etc) and I want these stupid tonsils OUT!!!
Coughing and hacking doesn't seem to jog them loose. For me, it's sort of a gagging thing that actually makes me gag sometimes. I've never used a cotton swab, but I have used bamboo shish-kebab skewers and fingernails.
UGH I can feel them right now by rubbing my tongue up and down back there...

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candycandy
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posted 07-12-2003 12:20 PM     Click Here to See the Profile for candycandy     Edit/Delete Message   Reply w/Quote
HAH! Ear Nose and Throat... I knew it'd hit me!!! An ENT visited me in the hospital, but all he did was give me something that cleared my nose and when I drank milk, it trickled down onto my bed tray and I didn't know where it was coming from.

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candycandy
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posted 07-13-2003 05:01 AM     Click Here to See the Profile for candycandy     Edit/Delete Message   Reply w/Quote
I got one of these plastic syringe thingies from my oral surgeon when my wisdoms were pulled (Someone mentioned it earlier, I think it was JennieBlue). It's from a brand called Monoject (at least that's what it says on the thing), and it pretty much looks like something you'd get an injection with, but instead of a needle, there's a pointy plastic tip. Which is probably more of a hassle than a water pik.
But it was FREE.

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drknow
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From:Seymour,Ct. USA
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posted 07-13-2003 12:01 PM     Click Here to See the Profile for drknow     Edit/Delete Message   Reply w/Quote
Did ChristinaD ever get her tonsils out? This topic is like a novel!!! (p.s. had my tonsils out at 10 yrs. old and then it was painful but worth it!~.)

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mwilliamryan
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From:Denver, CO, USA
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posted 07-13-2003 12:42 PM     Click Here to See the Profile for mwilliamryan     Edit/Delete Message   Reply w/Quote
Question for moocow35:

What brand and model water pick do you have? I have the Waterpik brand Personal Oral Cleaning System. Even on the lowest setting, it seems too powerful. If it hits right on my tonsil, it can be painful. Do you know of a kinder, gentler pick? Or have any technique suggestions? I wonder if they make higher-flow tips for less jet velocity?

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moocow35
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posted 07-13-2003 02:30 PM     Click Here to See the Profile for moocow35     Edit/Delete Message   Reply w/Quote
I have the Conair Interplak waterpik. It only comes with one type of attachment, and on low it doesn't bother me. Maybe I am just used to it? My technique is put the curved end of the attachment way back into the opening of the tonsil. I pull the opening apart gently with the tip to try to get any small cracks where the stones could be hiding, or any trapped food.

Good Luck!

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julia_girl
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From:canada
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posted 07-13-2003 05:23 PM     Click Here to See the Profile for julia_girl     Edit/Delete Message   Reply w/Quote
Well I first read this topic about 2 months ago and was pretty shocked...I had never heard of such a thing and I am studying medicine! Then, lo and behold, about 3 weeks ago I had an awful taste in my mouth. I had had a sore throat for about a week or so and suddenly this bad taste that wouldn't go away. I don't know if it made my breath bad or not, but everytime I swallowed the taste was awful. Then I rememebered reading about this and so as soon as I got home I looked. At first I didn't see anything and then later I checked again and saw a tiny speck on one tonsil...I immediately set out to destroy it and out came a huge tonsil stone!!!! To this day I am so disgusted...well my sore throat was a bit better. I got all these mouth washes including a peroxyl one that was supposed to help and I was so afraid of having bad breath. Unfortunately, a few days later I found another small stone in the other tonsil. I also noticed that my throat was still sore everyday and that the coating on my tongue was thicker than is normal...went to the doctor for a swab...nothing showed up. By this time, I knew I had a form of thrush in my mouth that was causing the sore throat and the stones ( I study western medicine but have an interest in alternative). I went to the healthfood store and bought a bottle of grapefruit seed extract (GSE) that I normally use for washing fruit or for my pets but can also be taken internally or used as a mouthwash, dental rinse, etc. Basically it is a broad spectrum germacide that must be diluted as it is so strong. Well, by the end of the second day my sore throat was gone (after having it for about 2 weeks or so), the coating on my tongue was just light again and my tonsils continue to be fine (I take a look everyday). It even says on the bottle to add it to a waterpik dispenser. For me, the waterpik is so expensive but I will buy one if this doesn't continue to work. However, I have had so much success with the GSE that I wanted to recommend it to all of you. I think this is an infection that got out of hand for me and I won't be battling stones forever, as my tonsils look nice and healthy otherwise. GSE can be used for many things but it certainly has helped me greatly with this!

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mwilliamryan
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From:Denver, CO, USA
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posted 07-13-2003 09:32 PM     Click Here to See the Profile for mwilliamryan     Edit/Delete Message   Reply w/Quote
Julia:

Could you elaborate on how you are taking the GSE? Are you diluting and drinking? If so, in what proportions and how often? Are you also rinsing with it? Thanks.

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orion
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posted 07-14-2003 12:13 AM     Click Here to See the Profile for orion     Edit/Delete Message   Reply w/Quote

I've had those white spots on my right tonsil for over 10 years. They came and went. I have never noticed that they immediately respond to antibotics or antifungal medications. I have read that they are related to food getting caught in pockets in your tonsil. But I no longer believe that is true.

I have watch my spots develop very carefully and it is now clear that these spots begin under the skin of my tonsil and slowly work there way out like a blood blister does on your finger. I think these tonsil stones are actually dead cells that have calcified because your tonsil has been fighting an infection. When they break onto the surface some food particles stick to them, but I think that is just incidental. If you break them open they are soft and sometimes smelly just like the stuff you sometimes get out of a rather large zit that is healing over.

In both cases I think they are the debri of a fight your body had with an infection. I had a 10 year battle with tonsil infections that finally stopped when it was discovered I had low thyroid and my immune system was screwed up. Since that time, my tonsil has been slowly shrinking in size and as it does so I get many of these white spots coming out of the tonsil. When the spot drops off, it often leaves a hole that goes some considerable distance into my tonsil. That hole slowly closes and disappears.

So if you have those white spots I think it represents an infection that you had or currently have. If your tonsil is even the least bit swollen then you need to first have your thyroid checked to make sure you have a normal immune system and then to on some long term antibiotic like doxycyline for a month or more to kill and eliminate what ever infection is causes your problem.

In my case I had to take 3 different antibiotics (penicillin, zithromax and cephalexin) one after the other followed by 3 months of Sulfatrim and an antifungal to kill the yeast that started from all those antibiotics. But my infection is clearly gone now and as my tonsil steadily shrinks it is showing more and more of those white spots. Which I think is a good thing because it is the residue of past infections.

Hope it helps.

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candycandy
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From:Honolulu
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posted 07-14-2003 02:07 AM     Click Here to See the Profile for candycandy     Edit/Delete Message   Reply w/Quote
hmm... maybe i shouldn't rush into a tonsillectomy just yet. i know i don't want to be water-pikking for the rest of my life, but i wonder if the grapefruit seed extract or antibiotics will work. i think i'll give it a shot.

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julia_girl
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From:canada
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posted 07-14-2003 07:47 AM     Click Here to See the Profile for julia_girl     Edit/Delete Message   Reply w/Quote
I agree that these stones represent infection, the tonsils being lymphodal tissue. However, I do not believe that long-term antibiotics is the way to go, as it will only serve to weaken your immune system further. A natural product such as GSE is a powerful germacide and at the same time, an incredible immune booster. Everyone has crypts to some degree (the tonsil holes) but they are larger in some people and are also stretched by the stones. Also, a good indication of whether or not the environment in your mouth is suitable for stones is the coating on your tongue...if it is thick and whitish-yellow, you are more likely to have stones.

To answer the previous poster, I dilute about 6-8 drops of the GSE in 2 oz of water and swish and gargle 3 times a day, as well as dilute 6 drops in 3 oz and take internally 2-3 times a day. Then when the infection is gone you can lower it to 2 times a day if you want simply as a prevention and good health aid. It is a great breath freshner because it kills the bacteria rather than masking the odour.

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HSJay76
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From:Baker, LA, USA
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posted 07-15-2003 05:53 PM     Click Here to See the Profile for HSJay76     Edit/Delete Message   Reply w/Quote
"Hello. My name is Jason. I'm a tonsilolith sufferer."

Wow. I never imagined so many people had this! I've had tonsil stones since I was 13 or 14. I am now 27. I always thought it was something that I had to 'deal with' as my family doctor told me the same story that may of you got -- "It's just food..." I refused to beleive this, but decided to try and cope with it.

For over ten years I've been picking them out spitting them out and sometimes, in the absolute worst situations, having to SWALLOW them. (your cue to gag) I simply could not put up with it anymore, so I went to see an ENT about a year ago. He told me it was...you guessed it... f.o.o.d. and that my tonsils were healthy, that I shouldnt be concerned.

I found this site last week and immediately printed out the entire contents (for 'backup' or PROOF). I made another appointment with a different ENT; a somewhat younger and more hip doctor. She immediately recognized the fact that I had TONSILOLITHS (amen?) She diagnosed me with chronic tonsilitis and said that the tonsils need to be removed. I agreed. I get them removed in 3 weeks. I know that recovery will be more difficult because I am older, but it's either that or pick, gargle, swab, spit, pick, every day until death. I opted for removal thank you.

Oh, by the way. I gave my wife a flashlight and showed them to her. Her eyes got huge and she dropped the light. Now she gets freaked out when I kiss her. Perhaps I should have waited until a few days before surgery to show her. Oh well.

I hope the rest of you fair well your tonsil stones, aka tonsiloliths, aka vomit varmints, aka puke fluff, aka tonsil rocks, aka "WHATTHEHECKISTHAT!"

I'll post more during and after surgery recovery.

Later
JJ

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