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pgdubbin
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From:Roxbury
Registered: Oct 2003

posted 10-17-2003 10:40 AM     Click Here to See the Profile for pgdubbin     Edit/Delete Message   Reply w/Quote
Thank GOD I found this thread! I've had no clue what these things are. I recently started college about 45 minutes from my home-town and they're gotten much larger and worse.

I do find I am eating more bread. I'd like to check with my doctor and see what he says.

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billy boyz
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From:cambs
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posted 10-17-2003 05:13 PM     Click Here to See the Profile for billy boyz     Edit/Delete Message   Reply w/Quote
Food stuck in tonsils is in my view complete rubbish
I get these things they started about 2 years ago for no reason one day they were there, the doctor I saw said .food stuck in tonsils. I think I upset him buy saying I didn`t believe him how do you suddenly start to get food stuck. I`m seeing a ENT specialist on the 5th of Nov for the second time I have to say the thought of having my tonsils out scares the s*** out of me but its something I will have to consider I also get PND which I think is a major point in tonsil stones I also seem to only get them a night which I dont understand, to the extent that I have nothing at say 1200 am but by about 3.00 somthing can often be there strange any suggestions unfortunately I`m in the UK and I dont think our health service is as modern as in the States I`m more cocerned about being knocked out more than the pain afterwards just dont like the thought of it as I`ve never had an op before I`ve also read something about lasers which I would`nt mind trying

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caesar
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posted 10-17-2003 05:41 PM     Click Here to See the Profile for caesar     Edit/Delete Message   Reply w/Quote
I could not find "tonsil stones" in Websters Unabridged Dictionary nor in Taber's Medical Dictionary. This topic has had an incredible number of replies.

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MrsLee
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From:NE USA
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posted 10-19-2003 11:16 AM     Click Here to See the Profile for MrsLee     Edit/Delete Message   Reply w/Quote
I think "tonsil stones" is kind of a nickname. I think the medical term is "tonsiloliths" or something. But I doubt that's even in the dictionary.

I had a nightmare the other day about tonsil stones. I looked in the mirror and saw hundreds of them coming out my tonsils....I kept spitting them out and more kept growing. It was so disgusting. I woke up sweating, heart racing, it was pretty scary....

anyways, just thought I'd share my disturbing story!

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acb
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From:Dallas, GA, USA
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posted 10-19-2003 04:31 PM     Click Here to See the Profile for acb     Edit/Delete Message   Reply w/Quote
I recently had an appt. with an ent for sinus trouble. I have had these smelly stones for about 20 years. I asked the ent about them and he said they are harmless as long as your tonsils don't get infected from them. I flush my tonsils with salt water and a syringe about 3 times a week. Mouth wash can make them worse because of the sugar content. Salt water works great. The ent did tell me I could have my tonsils removed to get rid of them, but he didn't recommend it unless they were infected. He said that removing tonsils in an adult is very painful with a longer recovery.

They are ucky though!

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acb
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From:Dallas, GA, USA
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posted 10-19-2003 04:37 PM     Click Here to See the Profile for acb     Edit/Delete Message   Reply w/Quote
Hey,

My ent said they are harmless as long as the crypts in your tonsils don't get infected. He recommended flushing tonsils with salt water and a syringe 3 times a week. It helps a lot. Don't use mouth wash for them, because the sugar can make them worse. He told me that he has had patients that had their tonsils removed because of them, but the surgery is painful for adults. I guess I'll just live with them like i have for the past 20 years.

They are so ucky!

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nam0428
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posted 10-20-2003 03:23 PM     Click Here to See the Profile for nam0428     Edit/Delete Message   Reply w/Quote
I have recently found this site and I am very glad I have. I have had throat and ear infections since I was a baby. The doctors never wanted to take my tonsils out. About two years ago at the age of 24 I was having a lot of sinus headaches, ear aches, and swallon tonsils. I had also had strep 4 times in three months. A doctor sent me to a specialists saying that my tonsils were enlarged and he felt that they needed to come out. The ent told me that it was sinutitus, gave me a nasal spray and told me I would need to learn to live with it. For the past year my tonsils have been enlarged more than usual. I noticed white stuff if the pits on by tonsils, not just on top of my tonsils like it normally was. I would have extremely painful sore throats. After a while I started cleaning these pits out trying to figure out if it was throat infections or what. The white spots were hard and painful. I just assumed that it was my sinuses draining into my throat and I would have to deal with it. I had gotten to be so painful in the last few months that I thought I would go to the the ent again. Whether or not he thought I was nuts again - it didn't matter I needed to know if something could be done. The ent I went to the first time did not accept my insurance so I made an appt with another ent. I told him my problems and my history. After examining me he said I had chronic tonsillitis and the cryptic tonsillitis. I said that the only thing that could be done was to remove my tonsils and I should seriously consider it. The ent also told me that having my tonsils removed will help with my sinus problems, fluid in my ears (ear pain and itching), bad breath, and overall health. I went home and did research on the internet and the research I did backed up what he had told me and what should have happened a long time ago with my symptons. I am scheduled to have a tonsillectomy on Nov 6 and I am 27 years old. I read the comments of people who chose to go ahead and have the procedure and I am much more confident that this is the right thing for me. I look forward to posting how I get through the procedure and seeing what has happened with others.

Sorry it is so long just giving you a summary. My best advice is to get more than one opinion. Talk to people who have been through this - they usually can tell you things better than the doctors who have never been through the stuff; and follow your gut instinct on what is right for you.

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Pinkb_m
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posted 10-21-2003 08:06 PM     Click Here to See the Profile for Pinkb_m     Edit/Delete Message   Reply w/Quote
hey all
i'd just like to say that like many of you i thought i was the only one with this problem, so thanks to the brave person who started this post.
i remember coughing up the stones when i was younger, but since i got my wisdom teeth out in dec (10 months ago) i think its gotten worse though i'v only really noticed the stones in say the last few months.
i'v got an idea thet maybe its stress related, as everyother problem i'v got that is continual is.

anyway i went to my dr yesterday and she poked at the spot and got some stuf out of it and she asked me if i wanted her to send it away for analysis and i said yeah sure. so i'm going back in about 2 weeks, the results should be in b4 that though, and i'll let u know what they are.
i didnt find this site till lastnight, acuually my bf didi'm glad he did.
i havnt read all the posts yet, so i hope everyone is doing well.

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amandabrow
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posted 10-21-2003 11:31 PM     Click Here to See the Profile for amandabrow     Edit/Delete Message   Reply w/Quote
Ok. Here's my story. I am 19 years old. I have always been very healthy. Never had allergies. Never had sinus problems. Never had problems with my tonsils. Never had bad breath (as far as I know). I hardly even get a cold. I haven't been to the doctor since I was 13.
About 6 months ago I got the nasty taste in my throat. That first time it went away on it's own and I didn't think about it agian until I got it agian about a month later. That time I coughed up what I now know is a tonsil stone. It freaked me out, but the bad taste was gone and that was all I cared about. Next time I tasted it I just gagged myself until it came up, and it came up pretty easy. It's been pretty much the same thing about once a month since then. But this time I have been tasting it for about a week and I can't get it out. It bothered me so much that I stayed up until 6am on a school night doing research online trying to figure out what it was and I found this site.
I don't understand how you people say you pick them out. I can't even find my tonsils. Can someone help me please? I want it out! I have been searching so hard I made myself throw up.
When I didn't know what these were I was really worried and I was going to go to the doctor, do you think I still should? I do feel like I have more mucus than I ever have had before, maybe I have developed some allergy or sinus problem. If these are caused by post nasal drip, will sinus medication help?
-Amanda

[This message has been edited by amandabrow (edited 10-21-2003).]

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MrsLee
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posted 10-22-2003 11:19 AM     Click Here to See the Profile for MrsLee     Edit/Delete Message   Reply w/Quote
Hello fellow tonsil stone sufferers--I have some good news I'd like to share with you all. I just bought some liquid grapefruit seed extract (GSE) and I think it is helping my tonsil stones!

I have been dying to make this post since the first day I tried it, but I do not want to give anyone a false sense of hope. I have only been using it for three days, but I feel it's working.

Four days ago, I hacked up 4 stones and had that awful taste in my mouth. I got my GSE in the mail and first tried it 3 days ago. I put 10 drops in a glass of iced tea and drank it, then put 3 drops into some water and gargled and swished it around in my mouth. It tastes terrible, very bitter, and it was hard to keep myself from gagging. But I have not felt or seen any tonsil stones since the very first day I used it, and I have not had that awful taste in my mouth.

I am truly amazed that this stuff is working. I was considering getting my tonsils removed and was trying this as a last resort. I truly hope this continues to work. Like I said, I do not want to give you false hope, but I could not wait any longer to post this message. Please order yourself some grapefruit seed extract and try this! You can do a search and find the company that sells it. It was almost $30, but I am finding it's well worth the cost. I know this sounds like an advertisement, but I am seriously so excited about this stuff! I'm sure you all know how annoying these stones can be, which is why I am SO excited.

Well I just wanted to share this with all of you, I'll keep you updated on whether or not it continues to work.

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nam0428
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posted 10-22-2003 11:26 AM     Click Here to See the Profile for nam0428     Edit/Delete Message   Reply w/Quote
Amandabr****would suggest you at least go to the doctor and have them looked at to make sure there are no other problems going on. I have been having tonsilitus and didn't even know it. I was convinced it was my sinuses; but its not. But if your sinuses are draining sinus medicine will help but want get rid of it.

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freestylechula19
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posted 10-23-2003 04:44 PM     Click Here to See the Profile for freestylechula19     Edit/Delete Message   Reply w/Quote
omg i had this problem for 6 months and omg is it the woprst ever...It feels liek im choking lol...i get the flash light out too..lol..but i am not letting it get to me ..I dont want it to consume my life ..I am so glad to know i aint the only one.....I had one today and i spent like 30 mins getting it out and it feels like its still there

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MrsLee
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posted 10-24-2003 10:30 AM     Click Here to See the Profile for MrsLee     Edit/Delete Message   Reply w/Quote
OK so I have been using the liquid GSE for 5 days now and I still have not hacked up or felt a tonsil stone. I cannot believe this stuff actually works, I am so excited.

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mom2jason
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posted 10-24-2003 08:46 PM     Click Here to See the Profile for mom2jason     Edit/Delete Message   Reply w/Quote
I have been suffering with these awful tonsil stones for a few years now. Every time I go to the Dr. they think I am crazy. I am a gagger and they are not able to do a culture when I go in. I have tried gaggling with peroxide and water, salt and water and it makes me nuts. I alsways feel like there is something stuck in my throat and can see them. I was desperate and bought some products from Therabreath on line and have been using it for about 1 week now and I really think it is starting to help. My tonsils are "cleaning" themselves out so to speak. almost always the stones are in my left tonsil only and smell awful...yuck big time. The left side of my neck is still sore but not as much ...the smell is going away too...try it...

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halitophobe
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posted 10-25-2003 06:50 AM     Click Here to See the Profile for halitophobe     Edit/Delete Message   Reply w/Quote
Well done MrsLee. The GSE seems to be working for me too (only 2 days in though). I'll report progress too.

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Pinkb_m
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posted 10-28-2003 06:01 AM     Click Here to See the Profile for Pinkb_m     Edit/Delete Message   Reply w/Quote
i tryed to make this post earlier but couldnt for some reasion.

anyway i wanted to say that unlike a lot of u it seems, i'm not especially prone to getting sore throats and colds a lot. i dont know if that is suposed to make a difference, and i'm not sure if i have post nasal drip which a lot of u seem to keep bringing up, what is it???

i to am gona try the GSE it sounds hopefull i ordered it in to my local health food store.

over the last few days i'v been picking at the stones and squeezing them out and now i'v got a pretty sore throat, iv started trying to use the seringe i got when i got my wisdom teeth out but i keep gaging, if theres a particular technique could u plese let me know

thanks ppl, this posting really has helped

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LoriGymnast
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posted 10-28-2003 11:23 AM     Click Here to See the Profile for LoriGymnast     Edit/Delete Message   Reply w/Quote
I don't get sore throats, only occasionally when I'm having a bad cold. My tonsils don't get infected. But I do have the post nasil drip. The way you can know if you have post nasal drip, is if you are clearing your throat quite often. Also, I can see the clear mucous sometimes, but not all the time. For the most part I live on Claritin 10mg. it helps some with the post nasil drip. I am of the belief that the post nasil drip has a lot to do with the problem of the tonsil stones and the fact that my tonsils are cryptic. By that I mean the tonsils have those holes in them. My left tonsil has a deep hole almost like a cavity in it. I have a feeling the right tonsil will eventually do the same thing. There is never any infection, pain or any other problems, just these yucky stones that can drive a person crazy. I try not to let it get to me, and my family says that my breath smells fine. I'd love to know how many of us tonsil stone sufferers have the post nasil drip, I'll bet the majority do. Whoever reads this and if you have tonsil stones, post or reply and let us know if you have post nasil drip too. Thanks

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midlifewife
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posted 10-28-2003 05:03 PM     Click Here to See the Profile for midlifewife     Edit/Delete Message   Reply w/Quote
Okay, fellow tonsil stone sufferers, I’m finally ready to share my tonsilith and tonsillectomy story! I’m a 41 year old female who has suffered from stones for about 20 years. At first, they were very infrequent, but in recent years it seems I could always feel them, even if I couldn’t actually see them. Hucking them up unexpectedly was becoming a little too frequent, and I always felt just a little bit sick, with swollen glands, throat pain, and etc., as many on this board have noted. My most recent bout with strep throat this summer cost me about $500 with three doctor visits, three throat cultures, and four rounds of antibiotics. I visited an ENT, and even took in a digital photo on disk of the mystery white speck on my tonsil. I had to point the camera into my mouth and aim by watching the reflection of the LCD in the mirror, all while making the weird gagging face we all have to make to see them. Even before seeing my prized photo, he knew what it was and introduced me to the term tonsilith, which is what allowed Google to lead me to this board.

I was never much of a tonsil picker, because it seemed that picking always irritated the tonsil, or the picking itself gave me an infection, not to mention the fact that I couldn’t overcome the gag reflex. After finding this board (thank you, dear posters, for sharing your very personal stories), I tried the Water Pik, but couldn’t dislodge a single stone that way. From the posts, I concluded that the only long-term solution for me was a tonsillectomy. Another ENT visit and based on my strep history, I was approved for a tonsillectomy. My tonsils came out on 10/24. Many of you have asked for narratives of the procedure and post-op, so here goes:

My procedure was performed at an “ambulatory surgery center”, where you walk in and (sort of) walk out. The actual tonsillectomy itself is just minutes, but you are generally in the operating room ˝ hour to an hour. I was in the recovery room about an hour to hour and a half. It is performed under general anesthesia. In the past, I have had trouble with nausea coming out of general anesthesia, so I made a big deal about that to the anesthesiologist and ENT just prior to surgery, and they gave me drugs to mitigate that. The last thing I want is to be throwing up while they’re working on my tonsils! They don’t want that either, so if you’re prone to nausea, tell them!

After removing my tonsils, the doctor said that they looked terrible - he said there were hundreds of tonsiliths, and that when he would press on the tonsil, all this cheesy stuff would ooze out. (All together now….”Ewwwwwwww!”). He said they absolutely needed to come out. The interesting thing is that my tonsils didn’t actually LOOK that bad to the naked eye just prior to surgery. They had visible crypts on them, but no visible tonsiliths at that moment. I could feel a lot of crap in my tonsils and knew a new stone would emerge eventually, but I had no idea just how chock full of “tonsil poop” mine were. So, folks, trust your instincts. If you FEEL junk in there, even if you can’t see it, you are most likely NOT imagining it!

I am on Day 6 of my recovery (counting the surgery day as Day 1). Pain has been bad, but tolerable, and only when I swallow. I am prescribed liquid Tylenol with Codeine for pain, liquid Augmentin for antibiotic, and Nexium for acid reflux. I have found my nausea is less if I stay to the low end of the pain med dose (i.e., 3 tsp of the 3-6 tsp dose range), but keep up the frequency to the frequent end (i.e., 4 hours of the “every 4-6 hours” range). As has been explained to me, the danger with the surgery, aside from the usual dangers of any surgery, is the possibility of excessive bleeding anywhere from 5-10 days post-op, when the scabs come off, and I haven’t passed that threshold yet, although the scabs are starting to disappear.

As far as post-operative instructions:
I have been told by the doc to “drink a lot and pee a lot”, and was told to drink Gatorade diluted 50% with water. Drinking is REALLY important to stay hydrated, more important than eating!

The foods I have found that helped are:
Jello, popsicles, ice cream, and applesauce (of course)
Meal shakes - I prefer the Atkins brand shakes (available at Wal-Mart) over Slim-fast and Carnation brands because they have more protein and less carbs/sugar, and as a hypoglycemic I need to reduce the amount of sugar I eat or I get headaches. The Chocolate Delight is delicious! The shakes are also good because they’re fortified with vitamins & minerals, and you probably aren’t able to swallow a vitamin pill at this time. In case you can’t tell, I really look forward to my shakes.
Soup (Lipton noodle soup is good – just let it cool down to lukewarm temp before eating)
Mac and cheese (cooled off and chewed well)
I tried baby oatmeal and baby food, but I found baby food generally nauseating

After two days I could eat a fried egg, cooked slowly so there’s no crispy stuff (scrambled eggs still had too much texture for my throat), and I also added pureed cooked vegetables and pureed cooked chicken to my noodle soup for more nutrition.

Finally, I slept as much as I could stand it. The first few days I was really tired anyway, perhaps more so due to the drugs, but I really felt that sleep did me the most good – plus then I slept through more of the pain and nausea. When you’re sleeping, there’s little for your body to do but heal.

The bottom line – it wasn’t that bad. I’ve had more pain during dental surgery. This pain lasts longer, and you do need to be very careful with your throat until the scabs come off, but really, folks, as a 41-year old, I can say that it wasn’t that bad. The knowledge that I won’t be suffering from that swollen gland pain and hucking up those little nasties at inopportune moments was worth it! Thanks to all for sharing and caring, and thanks especially to DaveWrite who basically shamed me into gathering the courage to do it (“…if a 60 year old can do it, you youngsters can….”). Take care, and good luck!

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ssunshine
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posted 10-29-2003 11:01 AM     Click Here to See the Profile for ssunshine     Edit/Delete Message   Reply w/Quote
I rarely post on message boards but I've got to post now. I apologize in advance for the length.

Like everyone else I feel like I've hit the lottery on this subject, and along with relief, I'm mad.

Around 25, I had sinus surgery to clear out a passage so I could breathe. Surgery was no fun, but I was willing to do it to breathe like a normal person.

Fast forward ten years...I still can't breathe well, but I am so accustomed to sinus infections, I don't even realize I have them until the doctor looks in there for a routine check-up and says, "hey, you're swollen and inflamed--looks like an infection in there."

Anyway, in addition to my sinus infections, my throat is always sore and inflamed as well. Usually my doctor will give me an antihistamine to dry me up and an antibiotic to clear the sinus/throat infection. But the infections ALWAYS come back.

I've had tonsil stones for several years but only recently saw the correlation between my sinus problems and the stones. I have excessive post-nasal drip. I have a constant sore throat (usually with no fever). I constantly have fluid in my ears. When I cry, my ears and my nose swell completely shut and if I'm blubbering too, I'm lucky I don't pass out from lack of oxygen or explode like that little grape girl from Willie Wonka.

I've been complaining to doctors for years. I went to my dentist, my primary care physician, and recently I went to another ENT. He's the first one who even knew what I was talking about as far as the stones.

I told him that if I have to live my life with sinus problems I'll do it since I've tried everything I can think of there, but I do not want to spend my life picking stones out of my tonils, too. I can only reach the ones that are ready to be plucked, but I feel like a squirrel walking around with a year's supply of nuts (or stones) in my mouth. I'm super-paranoid about my breath. The ENT told me the stones are not uncommon and he would not give me a tonsillectomy because he did not think my case was bad enough and because of my age. And because he does not think there is medical justification my insurance won't cover it. He didn't even KNOW about the laser procedure to smooth the craters away, so needless to say, he couldn't help me there.

I'm pretty upset at them all. I am convinced that these infections have led to subsequent health problems, like fatique, headaches...you name it. Because I have arthritis (don't get me started...) I've been told to sleep on my back but sometimes when I do that I almost choke on all the fluid in my throat and nasal area. Sometimes I wake up coughing up phlegm (sorry for the graphic detail) even when I don't have a cold. I had asthma as a child but that's supposed to be gone now...so the fluid is coming from up top. My hearing has been affected by the multiple infections from childhood. But they won't listen to me.

It can't be healthy to have a piece of flesh hanging around full of the infection it is trying to rid the area of. That stuff is supposed to leave the body, not merely grab the bacteria and keep it indefinitely. I think I probably do have post-surgery scar tissue in my sinus cavity, but more than that, I think the scar tissue developed because of the continuing infections in my throat and the bacteria in my tonsils.

This post sounds very angry and cranky, which I really am not normally. But I'm frustrated that a doctor who doesn't have to walk around with the discomfort I feel could tell me that I can't have this surgery. If I have to live with small air passages, so be it, but I have been talking to someone and in the middle of a sentence to have one of these things shoot like a projectile out of my mouth and into her face. I apologized and she thought it was food, but I was mortified. No one should have to live like that.

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perfix
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posted 10-29-2003 02:28 PM     Click Here to See the Profile for perfix     Edit/Delete Message   Reply w/Quote
I hope someone can clear some things up here for me.
Does having these stones means that you have tonsilitis and so that you need to take out your tonsils.
I have a lot of these stones, before I red this site I didn't know you could squeeze them out. I couldn't believe it. Then I took a flashlight and couldn't believe what I saw. My tonsils are full of holes which have these white stones. Daily I can take out about 10 of these stones. Sometimes more, sometimes less. Sometimes I also feel that it's time to squeeze them out. Do you think they need to get out? My tonsils do not seem to be very large but they do are full of holes.
thx

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Able Lena
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posted 10-29-2003 04:36 PM     Click Here to See the Profile for Able Lena     Edit/Delete Message   Reply w/Quote
My God! I've been watching this thread grow in length since I first found it two months ago. This has got to be one of the all time most popular threads in healthboards history!

Just goes to show how important quality of life issues are. Tonsilloliths aren't exactly life-threatening - but they certainly do impact quality of life, so it's pretty important to treat them seriously, eh?

Perfix - tonsillolith is the technical name for tonsil stones.

So, it sounds like using any sort of mouthwash with antiseptic properties and no sugar helps to get rid of the nasties. I also try to avoid alchohol-based washes, because they're too harsh.

I use a mixture of Tom's of Maine "Natural Alchohol-Free Mouthwash" and BreathRx "Anti-Bacterial Mouth Rinse with ZYTEX." I started garling with that mixture every day two months ago (after finding this thread, and reading it with dread and fascination). I stopped getting stones after about one week, and I haven't gotten them since. I think you just have to figure out what works for you - and then stick to the routine religiously. And maybe mouthwashes only work for people whose crypts are shallow enough that the mouthwash can get in there and clean everythng out.

By the way, my ENT told me that the bacteria actinomycosis israelis is what forms the tonsilloliths. Now you know what to blame! Damn the actinomycosa! All humans have that bacteria in their mouth; it's normal to have it. What's not normal is when you have cryptic tonsils or post-nasal drip that irritates the tonsils and allows the bacteria to accumulate.

Anyway, salt-water, mouthwashes, antiseptics (such as GSE or tea tree oil), waterpiks, other instuments of torture, etc, will all help to flush the bacteria out. Speaking of GSE, the herb thyme is also very antiseptic, and it might be a little more pleasant to take than the bitter GSE. You could make a strong brew by steeping thyme leaves in hot water (or in mint tea, for flavor), and gargle that. You can also put GSE, tea tree oil, or thyme tea into your water pik or syringe, if you need to rinse out really deap crypts.

Picking at them doesn't seem like such a good idea - makes the tonsils irritated, then they just develop more crypts and produce more stones. Soothe your poor tonsils.

Lena

Cast ye not the first stone - unless it's a tonsil stone! Cast them buggers as fast as you can!

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perfix
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posted 10-29-2003 04:52 PM     Click Here to See the Profile for perfix     Edit/Delete Message   Reply w/Quote
Hi Lena,
One final question. Would it be possible that these stones cause a sore throat?
thx

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Able Lena
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From:Oregon
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posted 10-29-2003 06:17 PM     Click Here to See the Profile for Able Lena     Edit/Delete Message   Reply w/Quote
Perfix,

Looks like the general concensus is that the stones do cause all sorts of irritation. If you read over the previous 7 pages (!!!) of posts, it seems like many people have sore throats, TMJ symptoms, earaches, armpit rashes, swollen lymph nodes, etc associated with the stones. I'm guessing that people with completely healthy tonsils don't tend to have stones, or that once you have stones, your tonsils become unhealthy. It makes sense that your throat would feel bad, too.

The first time I read this thread, I happened to be eating a slice of cheese. All these posts kept describing the stones as "cheesey" - DO NOT EAT CHEESE WHILE READING THIS THREAD! (Just wanted to put out that Public Service Anouncement. )

The last time the person, ChristinaD, who started this thread posted was back in April. I wonder if she has any idea what sort of fascination her post has generated. She deserves some sort of Healthboards Record of Morbid Fascination Certificate for her role in this circus.

Lena

EAT YOUR CHEESE SOME OTHER TIME!

[This message has been edited by Able Lena (edited 10-29-2003).]

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canegroover
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posted 10-29-2003 09:46 PM     Click Here to See the Profile for canegroover     Edit/Delete Message   Reply w/Quote
quote:
Originally posted by perfix:
Hi Lena,
One final question. Would it be possible that these stones cause a sore throat?
thx


Unfortunately for all of us “victims” our situations will vary but because the unnatural presence of a foreign object in your tonsils is enough to trigger an attack of white blood cells ( this a constituent of the stone) than I would say that it qualifies as a sore throat for you.

For me the E.N.T... said the pockets in my tonsils were very deep and that is the reason that none of the sprays or drops have worked for me. I think that Dr Katz’s products would work if you had shallow tonsils but Unfortunately for me they only caused sneeze attacks and an allergic reaction and trust me I tried every variation. Sometimes I have been able to expel the nasty things by constricting the muscles around the tonsils as I slowly bend my neck around. but this is bad because the muscles cramp and you actually cause a soar throat. Again my pockets are very deep so I almost always have a sensation of a foreign object in my throat. I am going to check out the GSE . But this is the last step before a tonsillectomy. The annoyance factor is getting worse and to the point of effecting my productivity as a person.

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canegroover
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posted 10-29-2003 10:03 PM     Click Here to See the Profile for canegroover     Edit/Delete Message   Reply w/Quote
quote:
Originally posted by ssunshine:
I rarely post on message boards but I've got to post now. I apologize in advance for the length.

Like everyone else I feel like I've hit the lottery on this subject, and along with relief, I'm mad.

Around 25, I had sinus surgery to clear out a passage so I could breathe. Surgery was no fun, but I was willing to do it to breathe like a normal person.

Fast forward ten years...I still can't breathe well, but I am so accustomed to sinus infections, I don't even realize I have them until the doctor looks in there for a routine check-up and says, "hey, you're swollen and inflamed--looks like an infection in there."

Anyway, in addition to my sinus infections, my throat is always sore and inflamed as well. Usually my doctor will give me an antihistamine to dry me up and an antibiotic to clear the sinus/throat infection. But the infections ALWAYS come back.

I've had tonsil stones for several years but only recently saw the correlation between my sinus problems and the stones. I have excessive post-nasal drip. I have a constant sore throat (usually with no fever). I constantly have fluid in my ears. When I cry, my ears and my nose swell completely shut and if I'm blubbering too, I'm lucky I don't pass out from lack of oxygen or explode like that little grape girl from Willie Wonka.

I've been complaining to doctors for years. I went to my dentist, my primary care physician, and recently I went to another ENT. He's the first one who even knew what I was talking about as far as the stones.

I told him that if I have to live my life with sinus problems I'll do it since I've tried everything I can think of there, but I do not want to spend my life picking stones out of my tonils, too. I can only reach the ones that are ready to be plucked, but I feel like a squirrel walking around with a year's supply of nuts (or stones) in my mouth. I'm super-paranoid about my breath. The ENT told me the stones are not uncommon and he would not give me a tonsillectomy because he did not think my case was bad enough and because of my age. And because he does not think there is medical justification my insurance won't cover it. He didn't even KNOW about the laser procedure to smooth the craters away, so needless to say, he couldn't help me there.

I'm pretty upset at them all. I am convinced that these infections have led to subsequent health problems, like fatique, headaches...you name it. Because I have arthritis (don't get me started...) I've been told to sleep on my back but sometimes when I do that I almost choke on all the fluid in my throat and nasal area. Sometimes I wake up coughing up phlegm (sorry for the graphic detail) even when I don't have a cold. I had asthma as a child but that's supposed to be gone now...so the fluid is coming from up top. My hearing has been affected by the multiple infections from childhood. But they won't listen to me.

It can't be healthy to have a piece of flesh hanging around full of the infection it is trying to rid the area of. That stuff is supposed to leave the body, not merely grab the bacteria and keep it indefinitely. I think I probably do have post-surgery scar tissue in my sinus cavity, but more than that, I think the scar tissue developed because of the continuing infections in my throat and the bacteria in my tonsils.

This post sounds very angry and cranky, which I really am not normally. But I'm frustrated that a doctor who doesn't have to walk around with the discomfort I feel could tell me that I can't have this surgery. If I have to live with small air passages, so be it, but I have been talking to someone and in the middle of a sentence to have one of these things shoot like a projectile out of my mouth and into her face. I apologized and she thought it was food, but I was mortified. No one should have to live like that.


Sorry to hear that Newbs!
My E.N.T. flat out told me that the #1 reason he does tonsillectomies in adults is because of tonsiloliths and also he concurs that it is case to case situation and quality of life issue. If for some reason you wanted to travel here to Orlando for the surgery I can correspond and I will hook you up with him.

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Pinkb_m
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posted 10-30-2003 06:44 AM     Click Here to See the Profile for Pinkb_m     Edit/Delete Message   Reply w/Quote
hey pplz

i still havnt read all the posts but each time i come on i do read the latest stuff first. one thing about the bad breath, its possible we dont all get it, but i know i do, well my bf knows i do so therefore i know as well, and i'm glad he told me, and that hes so tolerant of it for the time being (hopefully the GSE will help with this problem, i'm going to pick it up tomoz)

i also have a little boy and as i'v been so consumed with everything about tonsils i was looking at his throat last night and i noticed his were looking big, so i'v decided to take him to the dr and get any case of swolen tonsils noted somewhere, so that if it happens heaps he might be able to get them removed while still young, and thus perhaps not have to deal with the probs i'm now dealing with.

seriously, i'm so self-consious now of my breath, i carry gum everywhere, and the other day when i first found this site i hardely wanted to even talk to ppl for fear of offending them with my breath. i had a good day today and i'm realising that i may have cought this tonsil stone prob early as i dont seem to be able to open my mouth up every day and see stones, but i believe there there, deep down inside, i'v stoped picking as this only irritated my throat and made it sore, and i really think that the post nasil drip that i'm experiencing atm came after i began picking, if it goes away i'll let u know, caus it is possible that i'm just more aware of it now, just like the stones, i thought my throat was feeling normal b4 and now i know theres stuff in there.
anyway best of luck to all

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scorpricorn
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From:McPherson, Ks, USA
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posted 10-30-2003 11:54 AM     Click Here to See the Profile for scorpricorn     Edit/Delete Message   Reply w/Quote
i am so glad i found this topic! i am 16 and i just started getting this "Stones" about 2 weeks ago. they are freaky as hell! i immediately showed my mom and she wanted to take me to the doctor but i said no cuz i didnt think they were serious. but now after reading this, i think i will tell my parents to take me to the doc so i can have them get my tonsils removed!

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canegroover
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posted 10-30-2003 12:32 PM     Click Here to See the Profile for canegroover     Edit/Delete Message   Reply w/Quote
Honestly Scorpo!

If I were you i would do the same thing while you are under your parent insurance but you will need to tell them that the stones cause you a chronic throat irritation. Tell them the amount of money saved on drops and sprays will be well worth it. Good luck!

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halitophobe
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From:swindon, wilts, uk
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posted 10-30-2003 05:42 PM     Click Here to See the Profile for halitophobe     Edit/Delete Message   Reply w/Quote
Update on the Grapefruit Seed Extract:
I'm now 7 days in.....
Had a couple of stones on day 2, but not surprised as they were probably forming when I started taking the GSE. A similar thing happened when I started taking antibiotics which also stopped the stones.
Since then, no stones whatsoever. Hurrah!
My doc's referred mt to the ENT man, insurance will cover a tonsillectomy, but not sure whether I want to go ahead with it. I'll see how I feel when I meet up with him (clearly dependant on the GSE continuing to work - if it doesn't those bad boys are coming out!)

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MrsLee
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posted 10-31-2003 12:08 PM     Click Here to See the Profile for MrsLee     Edit/Delete Message   Reply w/Quote
I'm so glad the GSE is working for some of you! It's still working for me. It tastes horrible, but I think it's worth it. Maybe I'll try the thyme. I can't see or feel any stones, but I'm still a little self-concious about my breath. If it stops working though, I'm gonna find an ENT that will take the darn things out.

It's amazing how many people have these things! I just found out my sister-in-law gets them. She calls them pus-pockets. She had one that came out of her tonsil and somehow got stuck on the back of her uvula. The poor girl was gagging all night....

It would be interesting to know just how many people have these. It is interesting that most people have no idea what they are and society in general is not familiar with them. There should be some news special about them on CNN or something.....

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Pootsi
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From:Wa., U.S.
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posted 10-31-2003 03:37 PM     Click Here to See the Profile for Pootsi     Edit/Delete Message   Reply w/Quote
Once in a while I would get those little curdle things in a tonsil pocket and could not stand to have it there, that I would put my fingers back there and push the sides of the pocket like a zit, and it would pop out. I'd feel So much better! I'd be gagging a few times, but still had to do it.
I'd rinse with a little antiseptic mouthwash and everything would be okay.

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