FREE HealthBoards.com info from vendors! Select: Signup
Cerebral Palsy - new products and services
Aging Alternative Medicine Back Care Beauty Exercise & Fitness
Free Stuff Health Products Herbal Products Natural Healing
Nutrition Pain Mgmt Quit Smoking Sexuality Skin Care
Stress Mgmt Viagra Vitamins Weight Loss Yoga
Many more topics available!
Enter your email address:

Enter your zip/postal code:



  HealthBoards Bulletin Board
  Cerebral Palsy
  Surgery-Good or Bad?

Post New Topic  Post A Reply
profile | register | preferences | faq | search

Email This Page to Someone! next newest topic | next oldest topic
Author Topic:   Surgery-Good or Bad? | Page views:
Dannycee
Newbie
stars explanation

Posts: 2
From:Vacaville
Registered: Feb 2003

posted 02-27-2003 03:41 AM     Click Here to See the Profile for Dannycee     Edit/Delete Message   Reply w/Quote
I havent heard any positive stories from anyone who had surgery...does anyone have any or is it just temporary relief until another surgery??? All opinions please

IP: Logged

Thereandbackagain
Newbie
stars explanation

Posts: 1
From:
Registered: Mar 2003

posted 03-14-2003 01:27 AM     Click Here to See the Profile for Thereandbackagain     Edit/Delete Message   Reply w/Quote
I am not a doctor, but I had several CP surgeries as a child. I'm 32 years old. My CP wasn't terribly severe in the sense that I could walk with crutches and now walk unasited. Some argue that it helps with muscles that are hypertense and thus allowing for greater mobility.

The drawback is that many of the surgeries like the adductor transfer (inner thigh) are a tradeoff. Mine stopped my knees from crossing, but now I walk with bent knees. I had heelcord surgeries, but even today I don't have a great deal of movement in my ankles.

I'm not sure what I would have been like without them, but there might be other alternatives to try first if it is a less severe case.

The traditional passive stretch is limited because it just stretches the muscles. They just go back if you don't keep doing it. I think a better investment might be in a really good massage therapist and a qualified Reiki practitioner. They are expensive, but a lot less expensive than surgery. For excercise Tai-Chi and meditative excercises are sometimes better than ordinary PT, which just focuses on forcing the muscles to do what they don't want.

I think the key is to find something that calms the person rather than causing more discomfort (especially for a kid) and ultimately strengthenes the mind first and body second. CP is a brain disease. The tight muscles are just a symptom.

IP: Logged

lascot
Senior Member
stars explanation

Posts: 207
From:
Registered: Jan 2002

posted 03-15-2003 03:42 AM     Click Here to See the Profile for lascot     Edit/Delete Message   Reply w/Quote
I've had a bunch of operations on my legs & feet. Most during childhood. Now close to years old.
i have alot more pain stiffness and low energy. Yep, the operations due usually come in a series. They have not been a cure. They are a treatment. In my case, I think a worthy one. I know that w/o my operations i would not be able to stand or walk.... The one thing I wish I'd done: dancing. As a childhood thing or at home with video--for coordination & the stretching. Its never too late but i think i may have been more fearless as a lassie.
LAS

IP: Logged

prisc1125
Senior Member
stars explanation

Posts: 103
From:
Registered: Mar 2003

posted 04-05-2003 02:37 PM     Click Here to See the Profile for prisc1125     Edit/Delete Message   Reply w/Quote
The surgeries for me were a necessity. I came to the surgery route later in life (31) than most CP folks I know. I only found out at 31 that I had CP so imagine my surprise! Long and short: I tore a ligament in my R foot after running a marathon and it took two years of various docs and PT to get to this dx and my current ortho. In that time, I did more damage compensating and the foot got quickly and progressively worse. I just had my fourth foot surgery in February for hardware removal and FDL re-release. On the whole, I'm very been pleased compared to where I was and have an ortho who has really gone to bat for me. I continue to have lots of tightness in the foot/calf and limited ROM in the ankle due to all the work.

I have not been a textbook case at all through this. Lots of the things that are expected to work have not so it is all wait and see. In the meantime, I do what I can to stay active -- swimming, walking, Pilates, weights, biking. My case is mild, but, as I've learned, that is such a relative term. If it were so mild, I'd not be at the mercy of specialists.

I am still glad I had the work done. While the recovery took alot of time away, I can walk better now. Expect to need tune-ups every now and again.

IP: Logged

Texacali213
Junior Member
stars explanation

Posts: 6
From:
Registered: May 2003

posted 05-03-2003 01:30 AM     Click Here to See the Profile for Texacali213     Edit/Delete Message   Reply w/Quote
Hi. I'm new here and read that you wanted some opinions on surgery. I am not a professional in this area, but have had most of the common muscle release surgeries when I was a child (I'm 35 now). What I have learned is that some of the procedures done to help certain conditions caused other conditions to arise.

Do I think I shouldn't have had surgery? I don't know. They corrected things that made my life easier in some ways, but more difficult in others.

I had my heel cords cut at 18 months. It left me with 40% muscle strength permanently lost. I now need to have them done again, but am not about to lose another 40%. So I live with tight heelcords. This would be fine if I hadn't had a triple fusion on my ankle joints when I was 10. So now the tight heelcords are cause tremendous stress on ankle joints that don't move. OUCH! I walk on forearm crutches and hold down two jobs-- I just have to deal with the pain.

Don't get me wrong-- I try not to be bitter. I've talked to my Mom and she explained that the doctors told her that I had to have the surgeries in order to live a normal life. I understand that. But at what cost in the end?

In my professional life I have worked with severely disabled children and listened to parents agonize over what the best treatment is. This is good for me because it gave me insight into the challenges Mom faced and the mindset the doctors were in.

I don't the answers to your questions, but this was my experience.

Texacali213

------------------
"To love is to be happy with." Barry Neil Kaufman

IP: Logged

BarbaraH
Senior Member
stars explanation

Posts: 149
From:Chesterfield, VA, USA
Registered: May 2003

posted 05-04-2003 09:02 PM     Click Here to See the Profile for BarbaraH     Edit/Delete Message   Reply w/Quote
Hi, My 19 year old son was born 3 months early and has spastic diplegia. He began therapy at 18 months but could not walk alone because of too much "tone". He got around well using a small Kaye posture walker. I carried him often. When he was 5 years old, he had his first surgical procedure, a selective dorsal rhizotomy, done in Louisville, KY at Kosair Children's Hospital in 1989. That procedure was followed by therapy 3x weekly and 11 months post-op, he was able to walk alone for the first time and to the cheers of his fellow 1st graders! He continued in therapy and at times has needed a cane for better balance. He has endured many falls over the years because of balence problems. At age 15 he needed bilateral hamstring releases and a left posterior tib. lengthening because his growth was causing him to have a crouched gait. 6 weeks of bilateral long leg casts followed and then more therapy. He walks without support and with sightly flexed knees. He also has build 4 computers and will enter college this fall intending to major in computer science and engineering. NOTE: The surgery he had at age 5 was the best thing for him. It was important for the success of that procedure that he had not had previous orthopedic surgery. I encourage you to explore all the options so you can decide what is best for you child with all the information in front of you. Good luck!

IP: Logged

All times are ET (US)

next newest topic | next oldest topic

Administrative Options: Close Topic | Archive/Move | Delete Topic
Post New Topic  Post A Reply
Hop to:
Site owned and operated by HealthBoards.com™
Copyright and Terms of Use © 1998-2013 HealthBoards.com™ All rights reserved.
Do not copy or redistribute in any form!