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ttynn Senior Member ![]() ![]() ![]() ![]() Posts: 79 |
Hi, I haven't been to the boards in a long time, but I was wondering if tremors in hands or inside body were symptoms of fibro. My muscles twitch all the time, but lately I noticed tremors too. Sometimes my whole finger will twitch and move for a few seconds. I woiuld love to hear if anyone has expeienced anything similar. IP: Logged |
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tolern Senior Member ![]() ![]() ![]() ![]() Posts: 160 |
. [This message has been edited by tolern (edited 08-23-2003).] IP: Logged |
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ttynn Senior Member ![]() ![]() ![]() ![]() Posts: 79 |
Thanks for responding. I had a problem w/finger numbing too. It was happening when I would bend my wrist a certain way, it was weird. That went away though. My doc always tells me it's nothing and not to worry about it. I have had countless tests to rule out other things. It's just frustrating. Have you ever gotten twitches in your fingers? IP: Logged |
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tolern Senior Member ![]() ![]() ![]() ![]() Posts: 160 |
. [This message has been edited by tolern (edited 08-23-2003).] IP: Logged |
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ttynn Senior Member ![]() ![]() ![]() ![]() Posts: 79 |
Oh I get the eye twitch too! My fingers twitch a few seconds several times a day. It comes & goes just like everything else. Days/weeks will go by & I don't have it, but then it comes back again. The finger twitching/tremors are my newest symptoms and of course, just like the rest of my symptoms I probably make it a lot worse than it really is. I stress out over these symptoms I really have no control over. IP: Logged |
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tolern Senior Member ![]() ![]() ![]() ![]() Posts: 160 |
. [This message has been edited by tolern (edited 08-23-2003).] IP: Logged |
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ttynn Senior Member ![]() ![]() ![]() ![]() Posts: 79 |
Sometimes I feel these "tremors" inside my body. The only way I can describe it is it feels like a fast pulse like a shaky feeling, but inside. It's weird. Sometimes, I'll be holding something and my hand will shake for a few seconds. I asked my doc about parkinsons and he said no, that it couldn't be that. I don't know what it is, but it scares me. IP: Logged |
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Raven Senior Member ![]() ![]() ![]() ![]() Posts: 128 |
Hi to you both. I am Raven and I have twitching, spasms, numbness and tremors. All FMS, CFS, MFS, related except the numbness in my hands The Doctors think it is partly Carpel Tunnel again and I have pinced nerves in my neck. But I get severe tremors sometimes almost looks like I am having seizures yet they are not. I also get bad shakes( twitching) and the spasms are here almost everyday. I take meds for nerves, spasms, Pain, inflammed muscles and to sleep. So I am a mess. The meds help some but I still have problems off and on. Good luck to you both and yes occassionally I get eye twitching but the Doctors have never said if it is related to my FM. Plus I also get the internal shakes where you can't see them on the outside. My pulse is strong and I feel like I am shaking but noone can see them. too I believe it is all FM related too. Hugs Raven [This message has been edited by Raven (edited 11-07-2002).] IP: Logged |
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tolern Senior Member ![]() ![]() ![]() ![]() Posts: 160 |
. [This message has been edited by tolern (edited 08-23-2003).] IP: Logged |
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tolern Senior Member ![]() ![]() ![]() ![]() Posts: 160 |
(((hugs))) to you too raven... IP: Logged |
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ttynn Senior Member ![]() ![]() ![]() ![]() Posts: 79 |
Thanks to both of you! Raven, does your fingers ever twitch where the twitch makes the whole finger jerk? I know what you mean about the tremors, its scary. Are you taking meds to control it? I was taking zanaflex for awhile for the cramps & twitching, but it only helped briefly. I've been trying to eat a lot healthier and I started taking more vitamins/antioxidents/minerals. I do feel better then I have, but that could be cause it's the fall. My symptoms always seem to get better during the fall & winter months. IP: Logged |
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la_brat Senior Member ![]() ![]() ![]() ![]() Posts: 182 |
Finger twitching I couldn't relate to, but tremors and spasms I can. Our youngest daughter has what she call core tremors (Your insides shake without it showing on the outside.) and sometimes her hands shake so much that she can't write or type. Our eldest daughter has spasms where her hand will release what she is holding. These symptoms come and go without warning. Both have had Neurologists say they can find nothing to explain the symptoms. Their fibro doctor says it is very common in people with FMS. So far we have found nothing that takes it way. It is seems as with so many things with FMS that it just runs its course. IP: Logged |
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batman777 Senior Member ![]() ![]() ![]() ![]() Posts: 162 |
Hello ttynn- I see that you are over here now instead of the MS group. Check out my post for "fibro-fog at work ....". IP: Logged |
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ttynn Senior Member ![]() ![]() ![]() ![]() Posts: 79 |
Hi batman 777. I read your post, interesting, but I was wondering what it had to do w/my post????? IP: Logged |
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batman777 Senior Member ![]() ![]() ![]() ![]() Posts: 162 |
As I mentioned on the MS board, I had most of the symptoms that you have. Have you thought of trying to get a prescription for Low Dose Naltrexone? IP: Logged |
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Raven Senior Member ![]() ![]() ![]() ![]() Posts: 128 |
Hi ttynn, usually when I twitch my whole hand jerks not just one finger. But sometimes when I use a finger it jerks as I try to use it. It hasn't been as bad lately yet I have had more Hypoglycemic episodes which can really cause me to shake. Do you have Reactive Hypoglycemia? Anyways I too am trying to eat better and I do not take any meds specifically for the shaking, tremors ect but it helps some anyways!I took Zanaflex for a short time yet had no benefit so the Doctor told me to stop(in fact I felt drunk when I took it) If I am thinking its the same drug. I may be a tad in fibro fog( I have a bad cold) and I am feeling pretty bad due to all the stress the school is putting me through(My daughter's school)I had wrote a post here about it. Take Care Hugs, Raven IP: Logged |
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mookiemike Senior Member ![]() ![]() ![]() ![]() Posts: 104 |
I get eyelid twitch that comes and goes, finger spasms and the newest and strangest is a spasm in the muscle group in my mid-chest (for women it would be under the left breast) near my heart which simulates skipped beats. IP: Logged |
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Esoteric Senior Member ![]() ![]() ![]() ![]() Posts: 138 |
I had a lot of tremors in my hands when I first had Fibromyalgia and the rhuematologist had me on Zoloft and Ambien. For several years it seems like the Doctors kept trying this or that, and depending upon what it was I was shaking like an old woman. I finally said, enough, and had my Doctor wean me off all of my meds. It took one year. I can honestly say that at that time I felt better when I was off the medications. Sometimes the side effects are worse than the problem they are trying to fix. I used to get whole body jerks when I was over tired, over stressed or did to much physically. It was very scarey until I figured it out that I was just reacting to overstimulation. I have cut back my activities, stress factors and expectations of myself and I am doing much better than I used to. I have also been taking a much higher dose of magnesium than I used to and I have found that to help with all of those little twitches in the eyes and here and there and everywhere. IP: Logged |
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ttynn Senior Member ![]() ![]() ![]() ![]() Posts: 79 |
Thank you guys, everyone on this board always make me feel better. It seems like every new symptom that arises I get really upset & worried about. I think to myself, there's no way this symptom can be related to fibro. Then I start thinking I have something else. batman777 - I am going to look into the naltrexone. It was probably prescribed to me before, but I never use to want to take the meds the doctors would give me. Can you refresh me on what your symptoms were? I must have spoken to you on the MS board a while ago because I don't remeber. Why were you at the MS board? Did you think you had or do you have MS? I was convinced that's what I had, until after my 20 different doctor visits and 1,000 tests. (exagerrating just a little) Raven - Yes, I have reactive hypoglycemia, I ended up in the emergency room one time because of it. I try to always eat properly now, If I don't eat for hours I start getting really shaky & weak. mookiemike - I get twitches/spasm in my chest. I get them EVERYWHERE. When I keep myself busy & active, they seem to go away. They're so annoying. They mostly happen when I am sitting at work or laying around. I even get them on my face. It's ridiculous. Esoteric - I've been taking Mag at very high doses too, but I had blood taken recently & it said my Mag was very low, so I don't know if I can't properly absorb it or what. I have to talk to my doctor about that. I think it helps a little though. I do feel I am better than I have been because I am gradually changing my diet & trying not stress over things. I am starting to finally accept that stress is the worst thing for your body. IP: Logged |
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AimeeRose Newbie ![]() Posts: 1 |
Hi all, I'm a newbie first post . Let me tell you I've read all on the finger-twitching and I've experienced that as well as the other things eye twitching, leg spasms. I'm newly diagnosed with FM but have had it for about 7 years now progressively getting worse and am trying to discover exactly what I have by way of symptoms - so many - so much pain and then the depression is also bad sometimes. Hopefully I've found a place to go to get info as well as find out what more I'm in for. Seems like a great place to be!------------------ IP: Logged |
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batman777 Senior Member ![]() ![]() ![]() ![]() Posts: 162 |
ttynn, Do an internet search for "low dose naltrexone" to find the website. Regular 50mg naltrexone is useless and will not work. And your doctor has never heard of Low Dose Naltrexone (LDN). LDN addresses the autoimmune aspect of FMS- your symptoms may never go away unless you halt the mechanism that causes the symptoms. The hardest part will be to find a doctor to prescribe it to you so that you can try it out. IP: Logged |
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tolern Senior Member ![]() ![]() ![]() ![]() Posts: 160 |
batman777, when you used the phrase... "halt the mechanism that causes the symptoms" ...could you explain what mechanism you are talking about? IP: Logged |
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batman777 Senior Member ![]() ![]() ![]() ![]() Posts: 162 |
I believe that when the master hormone glands (hypothymus, pineal, addrenal, pituitary, etc) go out of sync some individuals develop autoimmune/immune disorders (including age related diseases). Low Dose Naltrexone (LDN) interacts with the master hormone glands to normalize the immune system- it truly is a miracle drug. I am treating FMS as an autoimmune/immune disorder. The mechanism is "an autoimmune response" where your body is attacking itself causing most of the symptoms that you feel. I am taking LDN to halt the mechanism (an autoimmune response) that is causing the symptoms- neuropathy (nervous system), vasculitus (circulatory), arthritus (connective tissue/joint). One line of thought is there evidence that FMS may be caused by manmade intracellular pathogens (escaped biowarfare) that among other things causes an autoimmune response and circulatory problems. CFS and FMS were never heard of before the 1970's. Another line of thought is that long term low level exposure to pesticides are a cause of the master hormone glands going out of sync thereby causing FMS, CFS, MS, and many other disorders including Parkinson's and Alzheimers. IP: Logged |
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tolern Senior Member ![]() ![]() ![]() ![]() Posts: 160 |
. [This message has been edited by tolern (edited 08-23-2003).] IP: Logged |
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