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 Immune Disorders in Children
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amys Newbie  Posts: 4 |
posted 04-10-2002 03:30 PM
  
I'm trying to get some information about a problem my son has. He had some immune tests run and his IGG is low. The four levels in and of themselves are in the normal range, just on the low side. However, the sum of all of the levels is about 60 points below normal. We are being referred to an immunologist but since my son is having sinus surgery tomorrow, they want to give his body a chance to heal before starting anything new. Does anyone know anything about IGG? The only things I can find that mention a low IGG are lupus, hepatitis and HIV. Tristan (my son) is only 5 years old and has been through so much in the last 18 months. We were hoping this surgery would be the end of it, but now they are telling us something new. Any help/advice would be greatly appreciated. IP: Logged |
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DDekruif Member Posts: 59 |
posted 04-13-2002 05:21 PM
An immunologist is the answer. If your kid has an immundeficiency, the good news is these conditions have been around for awhile. Let me know how you come out. Frustration from people who don't understand and the doctors, you need to say there is more wrong. Follow your instincts..Go the distance, don't settle for less..We have been through @##@@ and finally found our son will never outgrow his hyperIGD. It will eventually cause a multisystemic shutdown starting with the kidneys. No cure yet. GOOD LUCK!! IP: Logged |
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SusanM Senior Member Posts: 217 |
posted 04-18-2002 03:30 PM
Can you tell me how your son came to be diagnosed with an immune deficieny? Thanks IP: Logged |
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schmidtzoo Newbie Posts: 4 |
posted 04-20-2002 08:40 AM
My son was diagnosed with an immune deficiency because he was literally non stop sick. Then he started getting serious illnesses like pneumonia and osteomylitis. Blood tests were run, the first test was a pneumovac shot and the blood tests to check his immune responce to the shot. He had none. To find information and a list of the 10 warning signs of immunodeficiency just search "primary immune deficiencies" on your web browser. You should find lots of information. The immune deficiency my son has is DiGeorge Syndrome. However there are over 80 different kinds, IgG subclass def. being one of them, as well as IgA def., common variable def., SCID (severe combined), hyper IgM etc... getting diagnosed is not easy. It took us 4 years to get a begining diagnosis of IgG sub. def., and only just last year the diagnosis of DiGeorge. It isn't an easy road for answers but keep looking and searching. Half the battle is just to know how to search and what to search for. IP: Logged |
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DDekruif Member Posts: 59 |
posted 05-16-2002 05:29 PM
I'm on the rare disorder board with genetic periodic fever. Our situation is hyperIgD. Trying to pinpoint a syndrome.Just wondering how everyone was getting along here. We all are trying to find answers. Praers for us. Denise IP: Logged |
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