Click Here to Visit our Sponsor
|
 HealthBoards Bulletin Board
 Neuromuscular Diseases
 Charcot-Marie-Tooth Disorder
|
 Email This Page to Someone! |
next newest topic | next oldest topic |
| Author | Topic: Charcot-Marie-Tooth Disorder | Page views: |
|
Maria Leach Newbie  Posts: 2 |
posted 11-07-2001 04:21 PM
  
I am 35 and have Charcot-Marie-Tooth disorder and do not have much information would like to here from anyone else with this Disorder. IP: Logged |
|
gidget Member Posts: 36 |
posted 01-04-2002 09:43 AM
Hello, I just read your post and I had to look up your dx and I am wondering if I might be classified with it too, I have had muscle biopsy, spinal tap and lots of blood work and have confirmed dx of paraneoplastic syndrome and I am from the lymphoma board. I have a great neroulogist and I go to the pain clinic where I am a lymphoma patient at M.D.Anderson Cancer Center in Houston, Texas. I am in final stages and wheelchair bound. My legs are getting weaker and weaker. I can feel the weakness in my thighs when I walk. I also live with lymphoma symptoms cause I can not take treatment at this time nor do I want to take treatment. My pain onc keeps me comfortable as possible. I will post dx later must rest now,.gidget [This message has been edited by moderator3 (edited 01-04-2002).] IP: Logged |
|
Maria Leach Newbie Posts: 2 |
posted 01-17-2002 05:51 PM
Hi, Dont think its the same thing, im still relatively able bodied and can do most things except run. Maria IP: Logged |
All times are ET (US) | next newest topic | next oldest topic |
  |
|
|
home |
join free |
boards |
search |
about us | Copyright (c) 1998-2003 HealthBoards.com All rights reserved.
|
contact |
disclaimer |
board guidelines |
privacy |
Ultimate Bulletin Board 5.46