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  HealthBoards Bulletin Board
  Neuromuscular Diseases
  Charcot marie Tooth Disease

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Author Topic:   Charcot marie Tooth Disease | Page views:
DebiBear
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Posts: 2
From:Huron, TN USA
Registered: Jun 2002

posted 06-30-2002 12:55 PM     Click Here to See the Profile for DebiBear     Edit/Delete Message   Reply w/Quote
I am 50 years old with Charcot Marie Tooth disease (CMT) Life has become totally miserable in the last year or two. The lower muscles in my right leg have atrophied and the right foot is in really bad shape. Arm & hand muscles are very weak also. I am in constant and agonizing pain and feel so very tired at all times.
If not for my wonderful husband, I don't know what I would do. He works 8 to 10 hours a day, 6 or 7 days a week and then comes home and caters to me. As I can only walk short distances now, he bought me a wheelchair so he can continue to take me places and "show me the world"!
Anyone else with this disease, please reply.
Thanks!

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Debi

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JennyRob
Newbie
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Posts: 2
From:Lancaster, CA,93535
Registered: Jul 2002

posted 07-21-2002 02:27 AM     Click Here to See the Profile for JennyRob     Edit/Delete Message   Reply w/Quote
I have CMT also . Come and join our list at yahoogroups.com the name of the list is CMTUS. A new treatment is on the horizon called NT-3. Hope to see you soon

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JennyRob
Three with CMT

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