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  knife-like pain in muscle next to shoulder blade?

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HockeyCrystal
Senior Member
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Posts: 249
From:Wichita, Kansas USA
Registered: May 2003

posted 08-12-2003 03:10 AM     Click Here to See the Profile for HockeyCrystal     Edit/Delete Message   Reply w/Quote
Hey everyone...
I'm just very frustrated with my shoulder pain. It's like someone has a very large knife stuck in the muscle right next to my right shoulder blade. Sometimes it feels like the knife is being twisted. My doctor said it sounds like muscle spasms and nerve compression. I just wonder if this is the case, why the muscle relaxers aren't helping in any way, shape, or form.. To me, I feel like there should be a better explanation for this pain. I'm serious the pain is horrible. I has surgery on May 20th, and this pain started maybe 1-2 weeks later. I don't know what in the world caused it. The only explanation my doctor and I can come up with is this: Somehow during surgery, since I was laid on my right side with my arms crossed against my chest and I was wrapped tightly in a blanket to keep me from moving... I was only sedated for the surgery (which I was against anyways) and I happened to wake up in the middle of everything.. I started fighting and struggling, and perhaps I might've injured myself at the time when I was trying to get free from the blanket that was so tightly wrapped around my arms.. I was extremely upset about waking up in the middle of things, and I wasn't put back to sleep. Luckily they used local anesthetic as well, but it hurt like hell even with that.. (By the way, they were removing a lymph node from behind my left ear, if you were wondering what surgery I was having performed.)

Anyways, My question is this.... Does this sound like muscle and nerve pain to you guys? Nothing has shown up on the spinal CT (no contrast used, because they just looked at bone) or x-rays...I haven't had an MRI done at all, and I'm hoping they do suggest it, for maybe they'll find an answer. It feels like this has become a chronic pain issue...I just wonder if they found out what is wrong, maybe they'll be able to fix it and I won't have to be on narc's as much... (The low back, TMJ, and headache pains are easily dealt with, but this shoulder thing outweighs them all put together x2.) Has anyone experienced this knife like pain in this area? Does anyone else have a suggestion as to what could be causing this pain?

I've mentioned this all before, but I haven't asked any specific questions regarding this until now.. I've just really been trying to get a better explanation as to what is causing the pain. My doc does weekly to bi-weekly adjustments to try and help this. It usually seems to cause the symptoms to flare up even worse for the rest of the day... It's just all so weird... I had a previous rotator cuff injury and I also had bursitis (shoulder joint) and tendonitis (deltoid tendon) previously in the same shoulder... But this is all next to the blade... Between it and the spine... So my doctor thinks its all unrelated. The pain is constant. At the same time it started, I also had strep throat... It seemed weird... I had strep, and the shoulder pain started... Strep doesn't go elsewhere, does it? Could it have gone to my shoulder for some reason??? I know I should all just ask my doc this, but my appointment isn't until Thursday. The strep throat went away like 1 week after I got antibiotics for it, so thats why I feel its unrelated also. Just seemed weird to all have started at the same time. And if it can go to other parts of the body, and if it did, wouldn't the antibiotics have helped it as well??!

Sorry to have gone on for so long, I just am getting so frustrated being in so much pain, especially since my meds are no longer working very well. I took my meds just 2 hours ago, and I'm at a 8.5 right now on the pain scale. Talk about frustrating. Thank God I am being referred to PM and go in less than a month.. I hope to God he will give me a stronger and longer lasting med... I've now become completely tolerant to hydrocodone, AND percocet 7.5's. I'm a little worried about apap levels, but not too much. I don't take more than 3grams of apap a day (I take about 6 pills in a 24hr period with 500mg's each pill)......

Any help or suggestions would be so much appreciated.. I was also wondering if anyone knew what meds are considered after percocets... Will they just up my dose, or give me something completely...??

Thank you all for reading and thanks in advance for any advice given.

I love you all so much! Thanks again!
Crystal

------------------
-21 year old chronic pain patient..
-Have a transitional vertebrae @ s1.
-adhesions from years of not knowing gallbladder was bad then had it removed, lots of abdominal pain now...
-Chronic severe migraines, and tension headaches... Taking Imitrex for migraines.. Working well...
-Lots of low back and mid back pain growing up.. Now having lots of knifelike shoulder pain between spine and shoulder blades..
-Pain overall between 7-9 everyday without meds.. But when meds are present, (and not wearing off) I'm between 4-7..
-Moderate case of TMJ
-Hypoglycemic
-Asthmatic
-Lots of throbbing pain in left knee and left arm from previous fractures..
-Meds I'm taking now : Percocet 7.5/500 every 4 hrs as need for pain, Flexeril 10mg 2x/day, Tofranil 20mg @ bedtime, Imitrex for migraines, Phenergan for nausea/vomitting, Albuterol for asthma... That's all I can think of for now..hehe...

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HockeyCrystal
Senior Member
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Posts: 249
From:Wichita, Kansas USA
Registered: May 2003

posted 08-12-2003 03:12 AM     Click Here to See the Profile for HockeyCrystal     Edit/Delete Message   Reply w/Quote
I also wanted to mention that I've only been sleeping about every other night... Is this insomnia? I mean NO sleep at all except every other day... Not even a nap. I can't fall asleep at all for like 36 hours at a time! I'm getting very frustrated with this also.. Thank you guys so much!

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HikingFan
Senior Member
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Posts: 143
From:San Diego, CA
Registered: Jun 2003

posted 08-12-2003 04:14 AM     Click Here to See the Profile for HikingFan     Edit/Delete Message   Reply w/Quote
Crystal

What you are describing does indeed sound like muscle spasms. They are best described (at least, this is how they feel in me) as knife-like, twisting, hot, and tight. I have tried every muscle relaxer in the book, and nothing helps. The only thing that has helped is lidocaine patches. They are non-narcotic, and just a local anethestic that sticks to your skin overtop where the muscle hurts. Also, Motrin can help with the imflammation. Ask your pain doc...he might let you try the patches. There are no real side effects, so not much to lose. Also, my PT taught me a simple exercise to help relax the shoulder spasms when they start. Maybe ask your doctor about this. Its hard to describe the move, its kinda like, you lay down on your back flat, and move your head straight back, as if your being hit in the face with a pie (silly, i know, but the only way I know how to describe it). Hold for 12-15 seconds, repeat 3 times. It sounds simple, but it works for me.

This is what I really wanted to write you about....
My pain in my shoulders started when I had a lymph node removed from behind my right ear!!!!! It stayed swollen after I had a few rounds of strep, and my doc wanted to take it out in case it was cancerous. Ever since, I've had shoulder spasms. My major neck injury came a year later, but that was definitely what started it. Wierd!! I remember when my doc told me pre-op that there was chance that he could cut a nerve, but I didn't ask many questions about it. After the surgery, I returned to him because I had these wierd numb/shooting cold pains up the back of my skull starting at the incision site, and he just gave me 100 percs, and told me to go to my PCP because he couldn't help anymore. My PCP told me she had no idea what he was talking about. Typical good care, right?

Anyhow, how wierd is that?? I wonder if there is a correlation between a nerve near the lymph nodes and the shoulder muscle with regards to nerve pain and muscle spasms??

Write me back and tell me more about your story, kay?

Sara

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HockeyCrystal
Senior Member
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Posts: 249
From:Wichita, Kansas USA
Registered: May 2003

posted 08-12-2003 05:34 AM     Click Here to See the Profile for HockeyCrystal     Edit/Delete Message   Reply w/Quote
Sara-
I've been given a number of PT stretches I do everyday. None have helped me yet. And I've tried these stretches you told me about as well. Still, no help... Anyhoo, That is super strange this happened to us both after the same surgery.. Coincidence, I think not. This almost has to be caused from this, don't you think? Otherwise, why in the world would we both have these same pains, after the same exact surgery?! I'm going to talk to my doc about this... Let him know I talked to someone who had this same surgery and has these same shoulder issues. I didn't really think about the cutting through a nerve thing, but I wonder if there's a nerve behind the ear that is associated with the muscle by the shoulder blade...

I'm not sure exactly what you wanted me to tell you about my story... I wanted to tell you also, I can't take motrin anymore...NSAIDS and my stomach don't get along too well. I was on 800mg's of Ibuprofen 3x a day for quite a while, and they started making my stomach hurt a LOT and I was told to not take them anymore... One time I tried one of those hot&cold patches... Like Icyhot or whatever..I put it on my shoulder, and it made it hurt SO bad...I took it off 20 minutes later and cried until my percocet kicked in.. Of course I couldn't get the pill myself, luckily while I was crying on the floor, my bf went and got me some water and a pill.. It was horrible. I promised myself and my poor shoulder I'd NEVER do that again!

Anyways, I can't believe this... I can't believe you and I have had the same surgery and since have the SAME shoulder pain. It's just so strange. Especially since you and I seem to be such good friends on here. I mean if I were to say I had a best friend on the healthboards, I'd say it was you. And we have this same condition.... I too have other pain issues along with this... I can't get over the weirdness of this whole thing... There has to be some kind of correlation, most definitely. I too was having a lot of pain after surgery (around the incision site), and went back to my ENT and he gave me 60 perc's and said if the pain didn't go away, he'd have to send me to a neurologist. The pain subsided to a point. It's bearable at least. It's definitely not anything like it was the first month or so after surgery. It still hurts when I touch it and it seems to have a little bit of a weird itchy and numb/cold feeling around it. It was causing headaches also for a while, but not so much recently. Hmmmm...... I'm really trying to figure this out now. I'm going to have to discuss this with my doc...

So has your pain ever gone away from this? And are you still on the lidocaine patches? I am afraid of patches after this icyhot patch I tried! Also, which shoulder is your pain in? What's weird about mine, is it's the opposite side of the ear that was operated on. I hope your biopsy was negative! Mine was, thank God! That was the 3rd scare with cancer for me.. I'm not even sure what caused mine to be so inflamed and swollen, but I went through 2 rounds of antibiotics and steroids and it didn't so much as go down just a little. In fact it got a little bigger. So my doc said, It's gotta come out... I have to make sure it's benign. And it was... Were you put completely out for the surgery? They were going to put me completely under, but because of my asthma (even though I've never had a problem with anesthesia before) they wanted to just sedate me. I will NEVER again be sedated. I have never had a problem with sedation either, but I don't like waking up and knowing what's going on and having a doctor cutting into my head. I had nightmares for like a month afterwards. I will absolutely never be sedated. Nothing but general for me from now on!!!!

Well, girl, I just wanted to write back to tell you how weird that is...And you write me back again and let me know what you wanted to know more about my story, okay? Have a good night hun!


Crystal

P.S. Maybe one of us will get an answer and can help the other out!! I also wanted to ask how bad is this pain for you.. I'm telling you, mine is absolutely horrible... I'm like a 7 JUST from this pain...Plus all my other pain issues are included!

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lostsoul15204
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Posts: 92
From:Pittsburgh,PA ,USA
Registered: Jun 2003

posted 08-13-2003 06:15 PM     Click Here to See the Profile for lostsoul15204     Edit/Delete Message   Reply w/Quote
H.C., I have had that pain tou are decribing since 3 weeks after I hurt my back in Nov. 02. The only pain med that have ever touched it were fentyl 100mcg and dilaudid. I have it on right side of left shoulder blade. I tried Trigger Point injections and as soon as th local wore off ,right back to a 8 or 9. I have never been formally diagnosed but from what I read about myofacial pain syndrome I think its that. Mine feels like a hard lump in muscle right there. I could never get the tennis ball or theracane thing to get spasm to release. permenantly locked forever I think!!!!! Or maybe if I can get rid of lower back pain on that side, I could get it to release. Good Luck and God Bless,

------------------
Rick

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HockeyCrystal
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Posts: 249
From:Wichita, Kansas USA
Registered: May 2003

posted 08-13-2003 07:11 PM     Click Here to See the Profile for HockeyCrystal     Edit/Delete Message   Reply w/Quote
Rick,
Thanks for your experience... I too have knots up and down my back. I've had them my entire life... I can't do anything to get them to go away. I've never been able to even get a real massage, because when they touch those knots, I go completely weak and if they push on them I sometimes even start crying. I don't know why I've got all those knots, but like I've said, they hurt like h***, and they won't go away. I also have a knot in my shoulder blade area, but I don't know what causes my pain...It confuses me.... I haven't had anything tried for me....except PT stretches. They make spasms worse. And, my percocets only bring my 7-9 pain 1 point or so from where it starts at. and it only works for an hour... then I'm hurting really bad again. Speaking of hurting really bad. It's time to take meds... I am REALLY hurting today. Talk to you guys later. Thanks for writing!


Crystal

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Disavowed
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posted 08-13-2003 08:50 PM     Click Here to See the Profile for Disavowed     Edit/Delete Message   Reply w/Quote
Crystal, this is only a suggestion but what you have sounds exactly the same thing my mother had about 15 years ago in her shoulder blade...it turned out to be a fatty tumor or a lipoma....what could have aggravated it was the pressure you put on it during surgery...you mentioned knots....

I also have experience with these fatty tumors...about this time last year, I began have pain while at work sitting all day...the pain got worse....took medical leave etc...pain did not go away...took PT....nothing helped....also was having chiropractic adjustments...all during this time, I was telling the dr's about a "knot" that I had for years right at the low low back on the natural dimpling where our buttocks meets our back....dr's told me all kinds of things that it was, but none acknowledged it could be cause of my pain....well...I lost my job because of the pain, like a sharp hot poker...just by my tailbone...three inches or 4 just down from the knot...I ran into a woman on the internet on another board who described the same thing I had....she called it a "lipoma"....I went to my dr and sure enough that is what it was....I had surgery to have it removed...it was the size of a walnut....my surgeon said that many times these things press on nerves and are in the fascia of our muscles which makes them painful...some dr's will argue that lipomas are not supposed to hurt....but experience has told me they do....as it turned out, it was the same type of fatty tumor my mother had years ago....so they do tend to run in families...and can be located on many areas of the body...with the back being a prime location....there is a support forum for this condition....some people have many...while others like myself, had that one....I would like to report that the pain has all gone...but it had been there so long, it had probably done a little damage....so I am slowly making progress...I am now in massage therapy to relax the muscle in my back that this lipoma was affecting....I know your condition also sounds similar to the other poster above....but this is just something I am throwing out there....from what I understand MRI's do not always pick up these fatty tumors....I have heard where the MRI has to be set on a specific level in order to do that...but mainly...I suppose they have to be felt to know they are there if Mri does not pick up...these things are hard ... and I know that when they are laid on....they only get worse...and massage therapy can even make them worse....it was funny, but before I had this knot removed...massage therapy would help a day or so...and then go right back to where it was...but now that it is gone...massage therapy is doing the job it was intended to do....I hope that you find an answer soon....I know it is frustrating....good luck...

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HockeyCrystal
Senior Member
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Posts: 249
From:Wichita, Kansas USA
Registered: May 2003

posted 08-13-2003 09:24 PM     Click Here to See the Profile for HockeyCrystal     Edit/Delete Message   Reply w/Quote
Disavowed-
Thank you for your information. I appreciate telling me your story, and I can ask my doc about it. These knots I have are ALL OVER my back, neck, and shoulders. Whenever someone tries to give me a massage, I feel like they're bruising the crap out of me, and feel bruised for days afterwards, even when they touch on my arm how actually lightly they were touching and I was crying and screaming out in pain from what feels like to me someone digging a finger into my muscles and they're barely touching me!

Anyways, I am really looking for explanations, any possible answer to what could possibly be going on. I'm just not understanding what could have possibly caused this.

Thank you again so much for your information. I will ask my doc about if this could possibly be a lipoma. Any answers for me are greatly appreciated.

Anyways-I'm really really hurting now... I was clutzy and just knocked my keyboard holder thingy off while I was leaning on it somehow, not really sure how, but of course it crashed to the floor, and so did i. I cried for about 20 minutes from the pain. I hit my left arm and shoulder and it's still throbbing and burning from the pain. I don't know what I did... I also hit my spine on the toilet the other day.. It's like I keep making myself in even more pain. And it really sucks, because my meds don't even help the pain I already had let alone these pains from the clutzy crap I keep accidently doing to myself... I'm stopping crying finally, but it sure hurt like hell. And my spine is swollen where I hit it on the toilet bowl a few days ago... Hope I didn't hurt anything major!....


Crystal

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CoffeeGirl
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posted 08-14-2003 02:03 AM     Click Here to See the Profile for CoffeeGirl     Edit/Delete Message   Reply w/Quote
Interesting.

This is how some of my pain started. It was excruciating. I couldn't move my arm or neck. I had a lymph node removed on my right side. It was after that that the worst of the pain developed.

My pain doc suggested trigger point injections. I'm open to new things but just don't feel very hopeful about them. I am currently taking Topamax and Baclofen. What are others doing??

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HockeyCrystal
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Posts: 249
From:Wichita, Kansas USA
Registered: May 2003

posted 08-14-2003 04:51 AM     Click Here to See the Profile for HockeyCrystal     Edit/Delete Message   Reply w/Quote
Coffeegirl,
My doc has been px'ing me Percocet 7.5's and Flexeril's since the pain began. Well, at first I was given Ultracets for the pain. They didn't really do anything so he gave me Lortab 5's, but my tolerance was already pretty high from them, and after another bottle of them, they no longer helped at all. I was then px'ed the Percocets. They are now no longer helping very much at all, and I have been referred to a pain mgmt doc. I haven't been yet, and won't until 9/9. I am not sure what he will intend on doing, but he might try trigger point injections, but I'm not sure. My PCP also gave me stretches to do, but they just seem to make the spasms/pain worse. I get weekly to bi-weekly adjustments by my PCP (who is a D.O.) until I get into the PM clinic. It's weird that this has happened to us, there must be some sort of correlation.

Anyways, I am not sure that I have much faith in trigger point injections, and am afraid this will be my new pain doc's only option for me. I really hope he gives me a new med for the pain. I was given different NSAID's for pain issues in my low back, and was offered them for my pain in my shoulder blade, but then after discussing how they made my stomach hurt and my Sulfa allergy with my doc, he decided that Celebrex, Vioxx, Ibuprofen 800's and other NSAIDs weren't a very good idea...

I don't blame your hesitancy for the injections. I think i'd be very reluctant as well. I haven't heard many success stories, and don't really care to go through unneed pain for something that doesn't help my pain.

Well, Coffeegirl, I hope one of us will soon find a much needed answer for our pains. But promise me if you find one, you'll let us that suffer from the same problem know what you find out!

Keep me updated on things!! By the way, are you experiencing the same pain in the shoulder blade area after lymph node excision behind the ear? Just trying to clarify, because you weren't exactly specific.

Thanks for your reply!


Crystal

------------------
-21 year old chronic pain patient..
-Have a transitional vertebrae @ s1.
-adhesions from years of not knowing gallbladder was bad then had it removed, lots of abdominal pain now...
-Chronic severe migraines, and tension headaches... Taking Imitrex for migraines.. Working well...
-Lots of low back and mid back pain growing up.. Now having lots of knifelike shoulder pain between spine and shoulder blades..
-Pain overall between 7-9 everyday without meds.. But when meds are present, (and not wearing off) I'm between 4-7..
-Moderate case of TMJ
-Hypoglycemic
-Asthmatic
-Lots of throbbing pain in left knee and left arm from previous fractures..
-Meds I'm taking now : Percocet 7.5/500 every 4 hrs as need for pain, Flexeril 10mg 2x/day, Tofranil 20mg @ bedtime, Imitrex for migraines, Phenergan for nausea/vomitting, Albuterol for asthma... That's all I can think of for now..hehe...

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harleycat
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Posts: 15
From:Levittown, NY, USA
Registered: Oct 2002

posted 08-14-2003 11:32 AM     Click Here to See the Profile for harleycat     Edit/Delete Message   Reply w/Quote
Hey Hockey..

I was reading that you are having a lot of trouble sleeping and looking at your meds, any number of them can cause insomnia. Believe it or not, I used to get insomnia with Percocet! Both Albuterol and Imitrex can cause insomnia.

Here are some suggestions that may help..

Avoid caffiene, especially after dinner
Try a dairy product before bed..milk, cheese, yogurt, even ice cream. The milk contains L-Tryptophan which helps promote sleep.
Bed is for sleep and (dare I say) sex only. No reading, watching TV, paying bills, etc.
A hot bath with some really nice bath oil can promote sleep but you should go to bed right after the bath. ( not always easy with kids!)
Avoid alchohol..easy enough for us with all our pain meds. Alchohol promotes "false sleep"
If possible, time your meds so you take them several hours before bed time or right before you hit the pillow so they don't hit your system until you are asleep.
If you are not asleep within 20 minutes, get up out of bed and go to another room. Read a book or watch TV until you are sleepy. They say if you lie awake in bed you get more and more frustrated about your inability to fall asleep.

Of all the above, the dairy products helped me the most. I used to eat a yogurt right before bed and it worked great.

Jennifer

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HockeyCrystal
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Posts: 249
From:Wichita, Kansas USA
Registered: May 2003

posted 08-14-2003 02:00 PM     Click Here to See the Profile for HockeyCrystal     Edit/Delete Message   Reply w/Quote
Thanks Jennifer.. I didn't know that these meds can cause insomnia... I knew tofranil can make insomnia worse, but none of the others. So basically all my meds are keeping me up.. heh.... Thanks for the tips, I've done a lot of them already, including the dairy thing... And I have to use my bed for other purposes than just sex and sleep. I can't go elsewhere in my house to just hang out and watch TV..I don't have a chair in my room other than this chair which I definitely do not want to sit on for long periods of time because it's wooden. I doubt that's whats making things so hard though... I've never ever had an insomnia problem....til now.

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HikingFan
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From:San Diego, CA
Registered: Jun 2003

posted 08-14-2003 11:42 PM     Click Here to See the Profile for HikingFan     Edit/Delete Message   Reply w/Quote
Crystal

I agree about the comment to try getting out of your bed/room more. I know this is hard living with your grandparents, but the more you regulate yourself to only think of the bed as a place to sleep, it will come much more naturally. When you do everything else in bed, you then try to tell yourself, "now its time to sleep," and your body isn't in that mindset. I swear it helps to try and reserve the bed only for sleeping. I doubted it too at first, but when I incorporated this in my life, it really helped. Maybe spend more time in general away from the house if thats what it takes.


Sara

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HockeyCrystal
Senior Member
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Posts: 249
From:Wichita, Kansas USA
Registered: May 2003

posted 08-15-2003 02:24 AM     Click Here to See the Profile for HockeyCrystal     Edit/Delete Message   Reply w/Quote
You guys misunderstood me I think. I'm not doubting at all that this would work, I'm just saying it is practically impossible in my house if I want peace from my family. Anyways, I really am not trying to sound rude or anything, but I really don't want to spend more time away from my bedroom. I have everything in here... My bf and I rent movies quite often, and we have to watch them in here... I have the DVD player and VCR in my room... If I were to go elsewhere I'd disturb other family members or try to fight them off to use another part of the house. It's just simply easier to get along with them. And I can't really get out of the house more either... I don't really have any friends here where I live, so that's out of the question to go to a friends house. The only option is my bf's place, but he's moving back in with his parents, and school's starting soon and he has a younger sister who's in high school, so his parents are really strict about how late they have friends over. Therefore, my only option is here.. I also study in my room, on my bed where I'm not in so much pain. I'm not trying to be rude or make excuses, or even deny that this will work. But I am glad that my insomnia for the past couple nights has been a little less out of hand. And my doc today upped my dosage on my anti-depressant which is supposedly supposed to help my sleep. And he recommended getting an over the counter sleeping pill, which I already have, for when I absolutely can't fall asleep. I used it last night, and slept wonderfully. So, I honestly apologize for not taking your advice, but I'd probably end up making things worse with my family... My grandpa and I already don't get along too well, and we fight quite a bit... So I try to stay out of his face as much as possible. Because the less I'm around him the better he acts when he actually sees me... PLUS, when he gets in his moods, if he ticks me off, I go off too, and 2 hot tempered people aren't very good together.... I once told him to kiss my *** after he got a smart mouth with me and said some things that really upset me (one of the things he said was he was gonna get rid of my dog...) and then he slammed me up against the wall by the throat, and threatened me to get out of his house before he beat the hell out of me. It was pretty ridiculous, but things have calmed down since that incident a little over a year ago... And I just try to stay out of his way.. Do you blame me?! hah... Anyways, guys, honestly sorry again for not taking you up on your advice, but I really really thank you for all your suggestions.

you all!
Crystal

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hottrodd
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From:Southern California
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posted 08-15-2003 02:59 AM     Click Here to See the Profile for hottrodd     Edit/Delete Message   Reply w/Quote
Crystal,

Sounds like you have a pretty rought time at home. I only hope things can start looking better for you. I sometimes find myself thinking about you through my day, knowing your having a lot of pain, family, and personal problems, wishing you the best. I guess I am lucky in a sense of having the ability to just get out of the house, or go out with my wife to have some fun. Being locked in your room has to get to you sometimes? I know you don't have much of a choice!

This weekend we are going to the beach for a BBQ that my wife's work is throwing "FREE food! *lol

Then on Saturday we are going to the Long Beach Aqauarium to take our son. He is only 5 months old, and even though he will not remember, it will still be a fun family trip. He is a good baby, sleeps all night, doesn't cry. I guess we got blessed. I bet the second one will be a terror! *lol

Although that's a ways away, hopefully.

We are both first time parents and just getting used to our first one.

So I guess that's my way of escaping, and I also watch a lot of movies. My DVD collection is ridiculous, since I only go to the theatre when it's a "HAVE" to see movie. I hate crowded theatres, too loud, can't enjoy the movie.

Even though I am in pain most of the time on these outings, I just take meds with me and try and make the best of it. I do actually have some good days, and I guess that keeps my hope up. This last week I had one whole day, but still.. One whole day I didn't have to take any narcs, only muscle relaxers. I am almost absolutely refusing to let my son grow up and me be the Dad who can't run and play with him. I just hope I get get my diagnosis and find a treatment that works. I get so pi$$ed off, especially when we go dancing, which I hurt the next day, but SO worth it, I can't enjoy a few social drinks at the bar, when were out. It get's to me..

Anyway, I am WAY off topic now.. I just wanted to say.. I hope you find some answers, hope you get a better med or whatever it takes for you to enjoy life again, and hopefully you can one day have a place of your own, no matter what it takes to get there.

Have a good night
hottrodd (Rod)


PS.. I have knots too, my chiro pushes on them hard to release the cramping, it works for me. Your knots might be different. I don't cry but it REALLY hurts alot. I go home and for that day it's much better and more relaxed. I just whine and take the pain, knowing it feels better after. Have you tried a TENS unit?

------------------
* 27 years old, male
*Chronic upper back pain for about 6 years, recently getting really bad, really stiff in the morning takes forever to get going, lasts all day everyday.
*Crackling sounds from rib cage area across upper and middle back when stretching.
* Pain, tightness and burning all day long, usually ranges from a 4 through 9 depending on the day and how my body wants to react. Usually it's at least a 6/7 all day recently, used to be an annoying 3/4 all day, which I lived with but hated.
*Problem areas are mainly around breastbone area of chest, across shoulder blades, dead center upper back, upper shoulders and back of neck. Feels as if it's muscles and bones/joints, possibly ribs.
*Muscles spasms, had a couple that were severe enough to go to ER, felt like I was having a heart attack, pain radiated through upper back to chest area.
*Taking Vicodin 5/500 Soma 350 and Celebrex 200, which also helps somewhat but not to where I am not bothered by the pain, burning, tightness ect..
*Chiropractic 3 years, PT on and off again, all of which produces results that do not last for more than the day I have them.
*Can't remember any trauma I had that would have caused all this. Don't understand how it's getting worse.
*Can't really do anything, lifting, heavy physical ect.. Try and walk and stretch when I can.
*Still undiagnosed and waiting

[This message has been edited by hottrodd (edited 08-15-2003).]

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HockeyCrystal
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posted 08-15-2003 03:55 AM     Click Here to See the Profile for HockeyCrystal     Edit/Delete Message   Reply w/Quote
Rod A.K.A. hottrodd,
Thanks for your heartfelt reply. I am blessed to have you and my other oh so helpful friends here. You guys always are there to drop your own problems to help others. Such sweethearts. Anyways, I wish I could see your son, I bet he's precious. I have a 4 month old nephew. He's soooo adorable... He's sweet and doesn't fuss too much. And his older brother (2 1/2, will be 3 in Dec.) is an absolute terror! So I guess their parents got lucky that Preston is so sweet and non-fussy.. But Trey was the total opposite!!! So hopefully that means Preston will be a little sweet boy when he's Trey's age.

Anyways, I'm not exactly locked in my room... i mean, I can leave... I just don't have many places to go, if you know what I mean. My best friend won't talk to me still plus has a new baby that needs lots of attention since it was so premature, and every other friend I've made here has either screwed me over in some way, or is busy a lot. Like my cousin's wife and I are pretty close, but she's got 2 kids (my nephews, even tho' they're *REALLY* my 2nd cousins..hehe) so she has lots of things to do for her family...And one of my other friends has 3 different jobs.. She hardly ever is off of work and not sleeping and wanting to hang out. It's a rare occurence I actually have somewhere to go. I have been really broke so I haven't even been able to go out to go anywhere either, like a movie, but I finally got money from school today, so we went out today... I went shopping, and out to eat, and to a movie. I spent a LOT of money, but I did get out of the house... I just can't do that very often, because I don't have that kind of money!! haha... Well, I have some guy friends too, but out of respect for my bf, I don't spend too much time with them.... Other than that, I'm pretty much on my own if my bf's not around.... I grew up as an only child, but I do have a half brother...but he's 4-5 hours away from me..

Anyway, I just wanted to say thanks again for replying.. You guys are there for me, and understand how I feel. My bf has never been through a day of rough pain, so has no idea how I feel... Nor has any advice for me ever because he doesn't understand..

Oh, and about the TENS thingy.. From what I've heard it sounds like this thing the chiropractor would slap on my back when I went there, but other than that, I've never had it no... But if that's what you're talking about, it doesn't do much good... It actually hurt quite a bit with those electrical impulse thingys.

Gonna go watch a movie again... Talk to you guys later


Crystal

P.S. I hope things go well this weekend for you Rod! And congrats on not having to take narcs one day this week! I too hope you get the treatment you need so your son can have his daddy play with him growing up. I know you'll be a good dad.. And I'm always happy for kids that have a good father.. Because I know how crappy it feels to not have one at all, so I always give my gratitude to those who are good daddies that way not all kids go through what I went through. Have a good weekend!

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painintheneck2
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posted 08-15-2003 04:05 AM     Click Here to See the Profile for painintheneck2     Edit/Delete Message   Reply w/Quote
Crystal, Hi!

I didn't read all of your reply's, cuz I'm gettin ready to go to sleep, so someone may have mentioned this, I don't know.

But, when my right hand went completely numb, my GP doc pulled out a little red book, it was some kind of mini medical book that showed what nerves attach where. For example: he knew by looking in his book that my c6 herniation in my neck has a nerve (theres a name for it) that travels down front of right arm and ends at my right thumb. After doing a pin prick test up and down my arm we discovered that I had total loss of sensation in my right thumb. Therefore he was able to conclude that indeed my numbness was/is caused my by cervical herniated disc at c5 & c6, because of the nerve that travels from there, and not due to carpul tunnel or something.

Have your doc pull out that book at locate the nerve that travels from your shoulder to your ear (where lymph node was/is), or visa versa. That would give you and your doc almost a positive diagnosis that a nerve was injured during your surgery!!

Hope it helps. This should get you going down the right path anyway. I apologize if you or someone else has already told you to do this, but I didn't have time to read all reply's. Just wanted to make sure I gave my insight b4 I cashed in 4 the night.

((((hugs)))) I'm so sorry about your pain. It sounds excruciating and very uncomfortable. Let us know what you find out, cuz it sounds like this info could be beneficial to a lot of people in here!!

------------------

~head on collision in 1999 (car totaled)
~badly sprained ankle, bruised chest cavity, whiplash
~month later, recovered
~month and one week later, couldn't move neck LOTS of pain and crying. Tingling in right index and middle finger. Pain down right arm, pain always in neck and in upper back between shoulder blades (burning). Legs also hurt at times.
~went to various docs, prescribed muscle relax. and pain meds on and off whenever I got a "flare up".
~found my doc 2 years ago, prescribed lortab. insurance wouldn't cover preexistin cond till 6 months lapsed
~doc said "you are having muscle spasms and will prob be on pain killers the rest of your life"
~later, doc started to question my pain
~told him to schedule MRI
~MRI showed herniated disk, bulging on right side at C5 & C6
~kept me on pain meds and referred me to a wonderful chiro.
~now seeing chiro and taking pain meds
~next step is epidural shot if chiro doesn't work.
~UPDATE: Aug 2003: Saw Doc., discussed tolerence to Lortabs; Discussed long acting meds and complete loss of sensation in right thumb up to first finger; and pain worse, + wake up with right arm "dead" often!
~Set up appt with Neuro
~Prescribed MS Contin 30 mg 2x day plus Lortab 10 5 per day for BT.
~ 1 wk later: bumped up to 60mg MS Contin 2x day
~ So far MS Contin works excellent. Pain level 0 to 1 for 8-10 hours :)

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HockeyCrystal
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posted 08-15-2003 04:11 AM     Click Here to See the Profile for HockeyCrystal     Edit/Delete Message   Reply w/Quote
PITN-
Thanks sweetie! Even though you didn't read the replies, you did give good advice. No one has mentioned this yet, so thank you for your so helpful insight! I will talk to my doc about this, and hopefully maybe we can get something figured out!!! Thank you so much, again!


Crystal

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Disavowed
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posted 08-15-2003 03:16 PM     Click Here to See the Profile for Disavowed     Edit/Delete Message   Reply w/Quote
Crystal...I know what you mean about leaving the house...when you walk out the door, it cost money...I lost my job in March due to this horrible muscle problem in my back....so I try not to walk out the door as much as possible...plus, if you start just hanging out with friends, they tire of it and so would you...I also spent a lot of time this past winter in my room because of the things I had been dealing with...I was on medical leave from work then, and I thought I was recuperating...little did I know I would not go back....but, my room offers a lot of comfort to me too, even though I have no family members that I can't get along with, being in a place that meets all your comfort needs is well..comforting....as for sleep....I have found that "ambien" a prescrip sleep aid has helped me tremendously, not just with sleep, but to relax that long rock hard muscle in my back...and buttocks...where all the real bad pain is.....the good thing about ambien is that it does not leave you with a drugged effect in the morning...as with any med...you should use caution when taking it and be ready to go to bed when you take it..because it does act fast...I don't even use a whole one..I break a 10 mg in half....

Hope you are having a good day....

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HikingFan
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posted 08-16-2003 01:33 AM     Click Here to See the Profile for HikingFan     Edit/Delete Message   Reply w/Quote
Sorry Crystal, you just sounded like sleep was a top priority right now. Sometimes it may take a sacrifice to get what you need. If you can't think of a solution to get out of your room more, you probably will just have to deal with not being able to sleep. You simply can't use a bed for everything, and expect sleep to come naturally. I hope you can figure something out!

Good luck!

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HockeyCrystal
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posted 08-16-2003 05:12 AM     Click Here to See the Profile for HockeyCrystal     Edit/Delete Message   Reply w/Quote
Sara. I have NEVER had a problem before this, and I've always used my bed for multiple purposes. And I already told you, I found a solution. I was upped on my tofranil, from 20mg to 50mg, and that was yesterday, so last night I took 50mg, and had no problem getting to sleep... I also was told that when I can't fall asleep, if I absolutely have to, take an OTC sleep aid.. Which also helped before I was upped on my Tofranil. But I don't have the resources to "sacrifice" using my bedroom. If you don't understand why I have to use my room so much, then I'm sorry, but I honestly don't have much of a choice. I'd rather not sleep than sacrifice what I'd lose.. I'd lose money I don't have or peace with members of my family or mental stability or time with my boyfriend and a bunch of others. I've already found my answer. My meds have already helped in ONE DAY, so I'm not going to sacrifice my only place that I have to myself. It's like my sanctuary, and I'm sorry if you feel that I can't do everything on my bed. I just don't think this is the problem. I am sorry you're annoyed that I didn't accept your advice. I just cannot sacrifice these things. Sorry you don't understand my outlook. If you knew me better, maybe you'd understand. But this is not why I can't fall asleep. The pain is just simply too bad that it's disturbed. It has nothing to do with me hanging out on my bed when I'm awake. I just don't agree with your opinion. And I'm afraid I know myself a tad better than you. I honestly am not trying to be rude, I just felt a tad offended by your reply, Sara.

Disavowed- Thanks for being understanding. I am feeling a little better today, just because I'm finally sleeping better. If only I could get my pain under control! Have a nice night and day tomorrow.

Again, Sara, I truly apologize if I sounded rude. I just don't think you understood my point. I just find comfort in my room, and my entire life I've spent time during the day in my bed, and it wasn't until this pain got so bad that I had a problem sleeping.. As far as I'm concerned, getting out of my room isn't the problem. And I'm not going to even try to find a solution to that, because if it's not broken, I'm not going to fix it. And if this IS the case, then why is it I can't sleep on a couch or anywhere else either? The problem is not being able to sleep because of pain, not where I hang out while I'm awake. Maybe it works for you, but not for me. And yes, I can use a bed for everything and expect sleep to come naturally, because I always have. And I will not simply just "deal" with not being able to sleep. Again, Sorry... I really wasn't trying to be rude. But I think you're not even trying to listen to my reasoning for not getting out of my room.

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HikingFan
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posted 08-16-2003 07:14 AM     Click Here to See the Profile for HikingFan     Edit/Delete Message   Reply w/Quote
Whoa, okay Crystal. Just trying to help. Calm down and realize nobody is trying to criticize, only help. Look how many people responded to this thread if you have to question the fact that people are just trying to help you bounce around ideas about how to fix your problem.

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HockeyCrystal
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posted 08-16-2003 11:08 AM     Click Here to See the Profile for HockeyCrystal     Edit/Delete Message   Reply w/Quote
I didn't say anyone was trying to criticize, but don't tell me what I can and cannot do. I think I can judge that myself. And I wasn't hardly even griping about my insomnia, I just happened to mention it and someone replied to it saying that looking at my meds, they said that they all can cause insomnia. This thread originally was about my shoulder pain, NOT insomnia. I know everyone here is trying to help, and I also try to help whomever I can. I simply told you that although I did not doubt your advice and if it would work, I did not want to accept that bit of advice. And you upset me by replying telling me that I cannot use my bed for everything and expect my sleep to come naturally. The only reason it's been so bad is because my meds are no longer helping much with the pain, so it makes it difficult to fall asleep. And you also told me that I would just have to deal with it, if I wasn't willing to make a sacrifice in getting out of my room more. Sorry, but I discussed things with my doctor, and told you that what he suggested was working, and you insisted on pushing the stay out of my bedroom thing onto me. It just seemed like you couldn't accept that I wouldn't accept your advice. I'm honestly not trying to be mean, but you just seemed like you got pretty offended when I declined your advice, even though I told you I didn't doubt it's ability to work. You didn't want to hear my reasoning, or even try to understand it. Maybe I didn't make my reasoning clear enough... I'm not sure, but I apologize. I'm honestly not trying to step on any toes, but I just wanted you to know that I've found ANOTHER solution, and I don't WANT OR NEED to get out of my room more (even though I will when school starts, but I'll also study in bed too). You reacted like just because I didn't accept your advice, that sleep wasn't a priority to me, and just because I spend time in my bed outside of sleep time, NO MATTER WHAT, I would never be able to sleep if I didn't get out of my room, which is absolutely ridiculous. And I should just "Deal with it" since I wasn't willing to get out of my room. Like this HAD to be the problem. Which it isn't. And I don't need to calm down, because I'm not freaking out, just simply telling you how I feel about how you reacted to me.

Crystal... Just forget it. I'm not explaining myself anymore. If you don't understand why I don't want to do this, then nevermind I said anything. I don't want to p*ss anyone off.

[This message has been edited by HockeyCrystal (edited 08-16-2003).]

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Disavowed
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posted 08-16-2003 01:39 PM     Click Here to See the Profile for Disavowed     Edit/Delete Message   Reply w/Quote
Well I must confess I too spend lots of time in my room and I am a married woman...is that odd? I didn't think so...I have a large tv in my room, and I have a temper-pedic mattress which is the most comfortable place to lay, sit and I can even jump up and down without spilling wine....just like the commercials...I am someone who just enjoys my room.....I also do lots of things on my bed...I read, eat, watch tv...I even scrapbook on my bed...I just like hanging out in my room.....in the winter, I have an electric blanket..so it is definitely the warmest place to be on a cold winter evening....see I have a problem totally opposite from some....if I am not familiar with a room or a bed, I cannot sleep...I cannot travel without sleep aids for that reason....I think there are many others like that too....Crystal, it used to be that when a person went to their doctor and said they can't sleep, the advice of not spending time in your room was given to them....so it has hung around for a long time..but I never found this to be a problem with me either.....I wonder how many of us out there are bedroom dwellers??? come out come out wherever you are...and let us know some of the things you do in your room....this has got me wondering now....inquiring minds want to know...right Crystal??

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Wes1212
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posted 08-16-2003 02:51 PM     Click Here to See the Profile for Wes1212     Edit/Delete Message   Reply w/Quote
My bedroom doesn't have a bed in it. I pulled it out to the living room and put the sofa in its place. My daughter has a canopy bed in her room but she sleeps out in the living room on a futon.

My sleep patterns vary a quite a bit but it doesn't bother me as I'm not on a schedule right now. When i was taking interferon, I think I went 4-5 days at a time w/o sleep, and it showed.

If I can ever get some pain relief and can get back into society, I feel pretty confident that a regular sleep pattern will result, with the usual up all night every-now-and-again.

I guess my bedroom is whever I am when I fall to sleep

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Wes1212
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posted 08-16-2003 03:18 PM     Click Here to See the Profile for Wes1212     Edit/Delete Message   Reply w/Quote
Crystal, Is there any chance you tore something in your back when you were struggling in the blanket? Just a thought.

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herniated35
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posted 08-16-2003 03:48 PM     Click Here to See the Profile for herniated35     Edit/Delete Message   Reply w/Quote
Sounds like you need to suck it up! Try heat and ice and lay off the meds. Man up

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HockeyCrystal
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posted 08-16-2003 05:32 PM     Click Here to See the Profile for HockeyCrystal     Edit/Delete Message   Reply w/Quote
Disavowed-
Right. I too cannot fall asleep in an unfamiliar place. I have always hated travelling for that reason. Because especially on hotel beds, I simply can't get to sleep. I'd be better off in my car trying to sleep, sadly which, I've done before while travelling. I bet a lot of people spend tons of time in their rooms. Think of college students in dorm rooms... They have to spend lots of time in their rooms, because they don't really have anywhere else to go. And the only places they can sit other than their beds is maybe a computer desk, but that gets your butt really sore, just like mine! And I'm a college student so I'm allowed to spend tons of time in my room. I love my room.

Wes-
My doc seems to think something to that effect happened while I was struggling... I don't know though, I really don't have any kind of an actual diagnosis.

herniated35-
Excuse me? Suck it up? Here's some news for you, I ice and heat my shoulder and low back several times everyday. I also have 6 different stretches I do 4 times a day. I haven't gotten results yet from either. And I'm not sure who you seem to think you are, but I simply cannot just lay off the meds, they're the ONLY thing that help the pain, and I cannot just lay off because you tell me you think I should. You sound like you've never been through a day of pain in your life, and maybe you shouldn't be here at all because this is a pain management board. Us chronic pain patients hear enough from our docs to "suck it up" or "deal with it" we don't need another insensitive person like you telling us the same thing here. Have a nice day, and don't bother replying to anymore of my posts, because I care to not hear from you anymore unless you have some more insightful things to say... I don't need someone else making me feel bad about being on pain meds for the rest of my life at a young age.

Crystal.

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HikingFan
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posted 08-17-2003 12:53 AM     Click Here to See the Profile for HikingFan     Edit/Delete Message   Reply w/Quote
Crystal,

I don't get mad when people don't take my advice. I'm just trying to help, and if that means sometimes playing the devil's advocate to help look at things at different angles, then so be it. I'm not apologizing for that. I've taken my own time to try and help, so when I see its not needed anymore, or that it offends someone, then I stop. I went back and re-read my post, and I definitely did not say anything offensive, or imply that I know you better than you know yourself. I'm only speaking from experience during my college years.

Anyhow, I don't like drama and don't want to continue any kind of bickering or hurt feelings, so I'll leave it at this:

Good luck,


Sara

Sara

[This message has been edited by HikingFan (edited 08-17-2003).]

[This message has been edited by HikingFan (edited 08-17-2003).]

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HockeyCrystal
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posted 08-17-2003 04:12 AM     Click Here to See the Profile for HockeyCrystal     Edit/Delete Message   Reply w/Quote
Sara,
Hey, I don't want to bicker either. I don't think you should apologize for giving me advice. I just want to say I'm sorry for taking what you said obviously the wrong way. I just felt as though you were telling me that if I didn't do that, then I would see no results for the better. Again I'm sorry. You're like my best friend on here. You've always helped and I truly thank you for that. I consider this board a great help in this pain filled life, and you help make the board even more wonderful. You've helped get me on the right road to getting help for my pain, and for that, I'll forever be grateful. Anyways, my boyfriend is driving me nuts by reading over my shoulder, but again, I truly apologize, and hope you will forgive me. Let's just forget this happened, and move on. I don't want you to stop giving me advice... And I want to give you advice when I can offer it, although I don't know much to advise you on, but hopefully one day I'll be able to help you in some way to repay you for how you've helped me. Please accept my apology, I too don't like to bicker.

Friends?
Crystal

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painintheneck2
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posted 08-17-2003 06:43 PM     Click Here to See the Profile for painintheneck2     Edit/Delete Message   Reply w/Quote
Sorry ya'll, but I've been reading this long thread and just had to give my point of view on a few things. We are all allowed to express our opinions, so I hope you don't mind.

To quote Healthboards Guidelines: NO one is an expert on what is appropriate for someone else. So, sorry HikingFan, but I do not think you are the final say on the cure for insomnia. It certainly is not getting out of your room an doing other stuff.

Quote: "If you can't think of a solution to get out of your room more, you probably will just have to deal with not being able to sleep. You simply can't use a bed for everything and expect sleep to come naturally."

I'm really surprised, Sara, that you would make such a conclusive statement like that. Have you ever had insomnia? Well I have! and the whole "can't use a bed for everything and expect sleep to come naturally" is just wayyyyyyyy off base and very presumptuos.

I spend loads of time in my room. Like Crystal and Disavowed, I am a "bedroom dweller" and do everything on my California King Size bed and I have no problems with insomnia. Your advice, although well meant, is your opinion. It certainly doesn't mean that just because someone doesn't agree with you that they are destined to never sleep again (which is how your statement sounded).

:wave: Disavowed: :wave: You wanted all of us bedroom dwellers to come out. Well, HERE I AM (lol), and I am also married. We could start our own club (lol). We could call it "BEDROOM DWELLERS AGAINST INSOMNIACS" with a slogan "fighting for our right to live in our bedrooms and proving to others that we can!"

I absolutely LOVE my room. My bed is HUGE (California King Size) and the setup I have in here (computer next to my bed, 27" TV, Phone hung on the wall, nightstand filled with my meds, vitamins, candy, crafts and files, corkboard on the wall next to my computer....)is extremely comfortable and convenient! No one could convince me of anything better!

Also, I wanted to tell you how sweet and caring your post to Crystal was. You assured her that there are many of us out there, weird as we may be to some people (lol), without criticizing "anyone else" for their opposite opinion. You obviously are a very caring person and you wanted to help out Crystal by showing her there was nothing wrong with hanging out in your room and doing more than just sleep in your bed. Just had to tell you that.

:love1: Crystal: :love1: First off I want to say that I think very highly of you for being the bigger person and apologizing (many times) to Sara, although I feel that you did not owe anyone an apology and had every right to express your feelings. Especially when someone is trying to make you feel bad for not taking their advice! I totally agreed with everything you said in your responses.

I don't know you, but I saw in your profile that your only 21. I certainly didn't have that kind of emotional maturity at that age and although I felt that you were not the one who should have been apologizing, you took the high road and I respect you for that. I hope that you get an apology back, because you deserve one.

Here I'll start it: Crystal, I am so sorry that your innocent questions about your pain ended up being about insomnia and that you were put into a position of having to explain yourself. I am really sorry that happened to you :heart: And your right...you DO NOT have to explain yourself to anyone. I think there are a lot worse things than using your bed and bedroom for things other than sleep and sex :)

I too have had insomnia (years ago) and I couldn't sleep for about 3 days straight. Anyone that's had insomnia tries any advice given to them to get some sleep. When insomnia sets in, it's very frustrating cuz you don't know why it happens and you just wish like hell that you could close your eyes and fall into a deep sleep, but try as you might, you just can't.

This is why, in my opinion, it's ludicrous and ridiculous for someone to say "sounds like you need to suck it up! Try heat and ice and lay off the meds" OR/AND "..you will just have to deal with not being able to sleep"!! I just can't believe that they have ever had to deal with insomnia!! Someone should not give advice about something to which they have no experience.:bang:

I tried everything back then, and the ONLY thing that worked for me was time. It has to run it's course (at least that was my experience). Back then I never went to the doctor for anything, unless it was life threatening, so it didn't even cross my mind to see a doc and get prescribed something for sleep. If I got it now, it wouldn't take me long to get my butt to the doc! Especially when your going to college (which I'm starting on Tuesday)! You need your sleep to be able to concentrate. So I think you're getting meds to help you sleep was the best solution for you. You needed something that would work quickly and effectively. I've heard great things about the Ambien, and if I ever have sleep problems again, that is what I will ask my doctor for.

I also wanted to tell you that I don't blame you one bit for getting upset and offended by Sara's statements. To me, they sounded very condescending and unnecessary. You and I are much alike in our "love affair" with our bedrooms (lol). This is where I can escape, but also where I get things done and relax and be comfortable. Chairs are very uncomfortable for me. Lots of times during the day (every day) my head feels like dead weight, I can barely hold it up. My bed helps with that because I can stack pillows behind me to support my head and yet still get a lot more accomplished if I am comfortable and not distracted.

Now, of course, we still have our daily duties. Me with 3 kids, having to do all for them on top of laundry, kitchen, meals, running errands and etc. So, when I'm done with my "chores" or "duties" for the day, then I can't wait to get to my "sanctuary" that I too call my bedroom.

I know this is long, but I had a lot to say (lol). Also, I read that you got your insomnia under control, but I read some useful information that you might find beneficial if you ever get insomnia again (which I've heard that once you get it, your more likely to have a recurrence, although I've only had it twice in my lifetime (I'm 35)). I'm going to start a topic on what I've read about it so that others can benefit in case they too have insomnia issues.

I hope that you are feeling better and I hope that you get in to see your doctor about your shoulder. I hate to think of you, or anyone, sitting in their room crying because the pain is so excrutiating (sp?). (((Hug))). Hang in there and let me know what you find out about what is causing your shoulder pain, ok?

HERNIATED35???? :wow: How long did it take you to come up with your extremely unintelligent remark? :wow: Hey, here's an idea :idea: how 'bout if you have nothing nice to say...don't say anything at all? :idea: :wink:

Don't quote me or anything :wink: but I think this board is used for people who really give a sh** about other people. I'm pretty sure :wink: that people who use the board are here for people in pain that want to HELP others with their own personal wisdom and experiences or just to lift someone up from the brinks of hell, which is our life sometimes. I think I speak for all when I say we need your advice like we need a hole in the head. But why am I telling you this, anyone can see by your hateful post that you could care less if your advice hurts someone or not. After all, that was obviously your intention.

I think you posted that ridiculous, unintelligent remark because you wanted a reaction. Maybe you should check out one of the forums in here that deals with low self-esteem. Only someone with a low opinion of themselves or someone whose miserable in their lives could post something so thoughtless and FLIPPANT!

Remember: "Everybody has the right to be stupid, but some people abuse this right."

Painintheneck2

------------------

~head on collision in 1999 (car totaled)
~badly sprained ankle, bruised chest cavity, whiplash
~month later, recovered
~month and one week later, couldn't move neck LOTS of pain and crying. Tingling in right index and middle finger. Pain down right arm, pain always in neck and in upper back between shoulder blades (burning). Legs also hurt at times.
~went to various docs, prescribed muscle relax. and pain meds on and off whenever I got a "flare up".
~found my doc 2 years ago, prescribed lortab. insurance wouldn't cover preexistin cond till 6 months lapsed
~doc said "you are having muscle spasms and will prob be on pain killers the rest of your life"
~later, doc started to question my pain
~told him to schedule MRI
~MRI showed herniated disk, bulging on right side at C5 & C6
~kept me on pain meds and referred me to a wonderful chiro.
~now seeing chiro and taking pain meds
~next step is epidural shot if chiro doesn't work.
~UPDATE: Aug 2003: Saw Doc., discussed tolerence to Lortabs; Discussed long acting meds and complete loss of sensation in right thumb up to first finger; and pain worse, + wake up with right arm "dead" often!
~Set up appt with Neuro
~Prescribed MS Contin 30 mg 2x day plus Lortab 10 5 per day for BT.
~ 1 wk later: bumped up to 60mg MS Contin 2x day
~ So far MS Contin works excellent. Pain level 0 to 1 for 8-10 hours :)

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HikingFan
Senior Member
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Posts: 143
From:San Diego, CA
Registered: Jun 2003

posted 08-17-2003 07:21 PM     Click Here to See the Profile for HikingFan     Edit/Delete Message   Reply w/Quote
Yes pain in the neck, I have insomnia, and am reiterating what every single doctor has ever told me. Good job on your presumtiousness too!!!

You must be really bored with your life to sit and write such an idiotic post because I simply offered one solution to a problem. I never said I was a doctor or the bottom line. Take it or leave it, but geez, find something better to do with your life than to psychoanalyze me when all I was trying to do was be helpful. You are way out of line on that one. You know nothing about me.

This thread is wearing me out...I won't be checking back.

Crystal, lets be bygones be bygones, I don't harbor any bad feelings.

Painintheneck, get a life,

[This message has been edited by HikingFan (edited 08-17-2003).]

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HockeyCrystal
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Posts: 249
From:Wichita, Kansas USA
Registered: May 2003

posted 08-17-2003 08:35 PM     Click Here to See the Profile for HockeyCrystal     Edit/Delete Message   Reply w/Quote
Okay everyone, I'm not going to say much cuz I'm in a lot of pain right now...

PITN- Thanks for your caring reply... It's nice when someone understands how you feel. I also want to apologize for Sara's reply to you... I think she was honestly just trying to help me, and feels offended at your long post...

Anyway, thank you again for caring so much to write such a long post telling me your opinions. Also thanks for standing up for me. Also, I've been told several times that I am rather "mature" for my age, so maybe you're right.. I'm not sure.. Hah... I mean sometimes I feel out of place here being basically the youngest person here.. Sara helped me a lot though, and she's young too, that's why I thought we were up above this petty bickering level... I hope things calm down, I don't like the stress of people arguing. I can't stand it.. The only time I like arguing is with my boyfriend cuz then my stress is all released...and he's just really supportive. I gotta go, the pain's getting really bad and I'm now crying...I'm waiting for my meds to kick in...if they do that is.... I'll write more later PITN. Again..Thank you so much for being here for me.

Sara, I won't even reply to you because you won't read this anyways.

Hope the pain gets better soon so I can stop crying..
you all, Crystal

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Disavowed
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Posts: 58
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Registered: Aug 2003

posted 08-18-2003 11:34 AM     Click Here to See the Profile for Disavowed     Edit/Delete Message   Reply w/Quote
Well...Pain in the neck!!...I am glad you posted and told us of your love affair with your room...because I now feel like I am ok....I agree with you....why wouldn't ones bedroom be an escape from the rest of the world? Today people are nesting more and the bedroom is the first place they need to start....It can be an oasis from the rest of the world when stress and the pressures of everyday life, not to mention when you are dealing with chronic pain, are closing in....I believe that the last year of my life has proven that dr's give text book quality advice most of the time, and the old info they are passing on about bedrooms and insomnia needs to be revamped....for instance...lots of people are into meditation and all kinds of relaxation methods...I can't imagine another room in the house that would offer me more privacy to do this in....I think all who love thier rooms should unite...we could hold a convention....and wear our pj's...and fuzzy slippers....we could swap stories of what great things we have discovered whilst laying across our "big brass beds".....I think anyone who is not loving their bedrooms are missing out on some good relaxin!! Bedroom Dwellers Unite!

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painintheneck2
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Posts: 117
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posted 08-18-2003 02:44 PM     Click Here to See the Profile for painintheneck2     Edit/Delete Message   Reply w/Quote
Crystal,
You are so welcome. I knew I'd take some heat for that one!(lol) But, for some reason I just felt the need to take up for you. I didn't like the fact that sometimes people get angry in here then don't admit it and try and turn it all around on you. It's happened to me once before in here and no one ever says anything to the one that was, in my opinion, being mean, or rude or condescending

I didn't write that post to offend Sara, I just wanted to keep it "real". I won't even comment on her "get a life" statement. With 3 children, going to college, doing volunteer work, working on computers and being a professional cake decorator...I just don't have time to reply to her (lol). I was acually hoping to offend herniated35, lol!!

I hope your feeling better Crystal ((((BIG HUG))))

Disavowed: Thank you for your post!! I love how you manage to stay away from the bitterness and anger in here (lmao) . Your one classy lady! I also love your idea! I think your right about getting back into society and having a normal sleep pattern. The work I do, I don't have to get up early, so I usually stay up late, but now that I'm starting college I will have to go to bed earlier!! I'm glad I made you feel better! Oh and about the pajama convention...I'M THERE! I love my p.j.'s and fuzzy slippers.

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Disavowed
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Posts: 58
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Registered: Aug 2003

posted 08-18-2003 07:35 PM     Click Here to See the Profile for Disavowed     Edit/Delete Message   Reply w/Quote
Oh my gosh Pain....after starting school there will be no insomnia in your house...you will be out before you hit the bed....I went back to school when I was 35 and graduated at 38 with a family and working also...yikes, how did I do it all....you just find a way...but when it is over you will wonder that yourself...a cake decorator??? i am sooooo envious...I have been wanting for a very long time to learn to decorate with just the wilton roses etc....but it takes skill and slight of hand from what it appears....there is nothing prettier in life than a decorated cake, it is one of those things in life much like a cozy bed, fuzzy slippers and a remote control on a rainy day, that just makes you happy because it's there....thanks for the kind words....sounds like you have a full plate, but do take care of yourself when you start those classes....

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HockeyCrystal
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From:Wichita, Kansas USA
Registered: May 2003

posted 08-18-2003 09:45 PM     Click Here to See the Profile for HockeyCrystal     Edit/Delete Message   Reply w/Quote
PITN- I too was hoping you'd offend herniated35! And, again thank you. No one ever seems to stand up for me, so it's nice that someone finally has.. Anyways, I just woke up a little bit ago... I too will have to be going to bed earlier and getting on a better schedule so that I can start school on Thursday! 7:45pm is unacceptable to be WAKING! hahaha...

Anyway, I am hurting already pretty bad today, and it sucks because I can't take 6 pills everyday, due to the fact that I have to stretch my pills from last thursday until next monday, and I was only given 50, so thats about 4 pills a day....I'm not complaining or anything, I've just gotta keep a close eye on how many I take each day. I know it could be tons worse and not have ANY meds.. So thats why I'm not complaining. It's just going to be a little tough.

Well I hope everyone's having a great day..


Crystal (Another member of the Bedroom dwellers united)

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