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Posted by Gary Bergeron on October 11, 2000 at 11:57:38:

In Reply to: Re: Amyloid angiopathy posted by Todd Gallups on August 01, 2000 at 18:44:08:

: : : Hello,
: : : My Dad (71yrs.) was just diagnosed w/ amyloid angiopathy one day b4 his birthday,
: : : 4/21 00. We do not know anything about the disease at this point, other that the fact that he all of a sudden couldn't formulate his words and had a very unsteady retrospect my mother says that he has been more forgetful lately and it has frustrated him.
: : : He is still in the hospital...just moved out of icu into the neurlogy unit. He can now
: : : speak but is very withdrawn and angry. He may be discharged from the hospital tomorrow because of depression......I guess some physical therapy will be needed also.
: : : I would welcome any any info that you may have already found.
: : : Thank You

: :
: : My mother also 71 was just told that she has amyloid angiopathy. This after she fainted and the doctors performed a biopsy. I was wondering what you found out and how your father has progressed? What treatment is being done and is it working? We just found out and what I'm seeing on-line is not very encouraging. My mother's memory is starting to go and her speech and walking are also somewhat affected. I hope that your father is feeling better. I would greatly appreciate any information that you could
: : pass on.

: : Thanks

: Since 12/21/98 my mother has had three episodes with Amyloid Angiopathy (brain hemoraging). She is now 68 and her most recent episode was july 23rd. She cannot talk, swallow, and her right side is paralyzed. The out look is bleek, but I believe that this is a disease caused by a nutritional deficiency. That might sound out landish, but the medical communtiy has nothing better to offer. This disease has no signs until it is too late. My mother was a very active person who looked to be about 48 instead of 65 when she started having problems. My brother is a surgoen and he has no good advise either. Although we may feel helpless, I truely believe there is an answer some where. I know that I will keep looking for the answer through God.

My Dad has been diagnosed with Amyloid Angiopathy (10.05.00). He is 75 years old. I feel for any and all who are the primary care-givers for a person close to them who is afflicted with this disease. Dad has been having some memory trouble for the past year and a half, or so. He began to have more frequent and intense episodes after he moved out of his house of forty years. He is now in Medical City Dallas. I expect to have him home in the next day or two. Finding care for him when I have to be at work is what I am going about now.
I agree that there must be a nutrition and/or herbal solution. However, neurochem is developing some drug which is past the pre-clinical trial phase and in the trial phase of development. Probably too late to help our loved ones. And, probably only being developed to make money in a new, developing market.

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