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Re: Amyotrophic Lateral Sclerosis

Re: Amyotrophic Lateral Sclerosis

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Posted by Brenda L. on November 03, 2000 at 15:30:28:

In Reply to: Re: Amyotrophic Lateral Sclerosis posted by Judy on October 28, 2000 at 19:29:16:

: : Amyotrophic Lateral Sclerosis is the correct spelling.
: : MY mother has had symptoms of ALS for over a year. She is 72.
: : She went through a battery of tests and medications for the last 8 mos. or so. Yesterday she received an official diagnosis of ALS from a team of physicians at the University of Utah hospital. They think she is progressing slowly and have given her a name of a local phyician that specializes in treating ALS patients. They claim that there is a drug that can help slow the progression of the disease. I hope it works for her.
: : I have read where most people die within 2-3years in an older MERCK manaul, 3-10 years in an encyclpedia. Stephen Hawking was diagnosed with ALS in or before 1987. I guess the rate of progression is different for each person. The rate of progression is out of my control. I hope I can at least give her moral support and help her with some of the physical things that she is not able to do.

: Dear Scot:
: I was diagnosed in March of this year. The nearest my drs. can tell I'm in my 3rd year. All the time, from first unusual symptoms, I knew I had something *bad*. The only meds for ALS only give you an additional 2 or 3 months. Meds have side effects, please consider that. I am now under Hospice care. That means somewhere in the next six month or so I'll be passing on. I'm 68 yrs old. Been there and done that. My faith keeps me strong. Please give my love to your Mom and tell her she is not suffering alone, others are here to help her any way we can. And we pray alot, not just for ourselves, but for others.
: Judy

Have you tried any of the meds. What are the side effects? My Mom was just diagnosed and I'm just beginning to research all of this. There seem to be a lot of different opinions. I'm glad that you have had some time to cope with this and that you have a strong faith. I will keep you in my prayers.


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