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Old 03-12-2006, 10:34 AM   #3
Senior Member
Join Date: Dec 2005
Location: uk
Posts: 136
suziewong HB User
Re: Leg pain on walking

Hi vee,No mine is the whole leg i am not seeing a rhumatologist but these are a list of consultantsai do see.
1,nuerologist as thought it was M.S
2,nuerosurgeon, Op for intercranal pressure Also dry eye
3,nueropsycologist memory problems
4,urologist,kidney removed
5,Opthamologist optic nuritis,also pressure on optic nerve
6,dermatologist,dry skin patches on legs also morphea
7,maxifacial surgeon for sjogrens in mouth bleeds when eating
8,was seeing gynocologist untill had hysterectomy 4 years ago, also for dry virgina tearing when drying myself after toilet.
9,Also been seeing a doctor about my hiatus hernia and reflux of food also IBS,
10, Also cardiologist due to heart palpertations.
It was in the past when i had IV steroids,but am on prednislone perminatly and also betnasol to stop my mouth bleeding have to hold these in my mouth as long as possable then spit out.I have in the past been told i have spinal stenosis well that is what was seen on CT scan but when i had MRI nothing seen.That is one of the reasons M.S was mentioned,Another reason M.S was mentioned was i was unable to stand due to fatigue and my speach had gone wrong my husband couldn't understand me,And i had a red blotch right down side of face my GP said he had never seen this before,Also my pupils were dilated and could see swelling on my optic disc,I was rushed to another hospital as no nuero were i live as doctors thought it was a bleed.This all happened some 10 years ago now.I was in hospital 4 weeks doing tests for M.S,or sarcoidosis,Although my Spinal fluid showed something wrong,And the MRI showed empty sella syndrome.Since then i keep going in and out of hospital for IV steroids.I have sjogrens,And looking back now i did have raynauds in my teens.My two daughters have raynauds now my eldest also has pernicouse anemia,Takes b12 injections every two months for life she started when she was 13,now she's 20.Now my youngest daughter has started with raynauds she is now 13.My eldest daughter has also got this leg pain,This pain started when i was 26 after my youngest daughter,who was 10 weeks early due to my kidney problems.But i can remember having the white cold fingers in my teens.My dad also had something like this but never diagnoised sadley we lost him 4 years ago to brain stem stroke after being paralised for 10 years with first stroke.So sorry this goes on and on.But would be greatful for any help thanx