Thread: PFAPA -what?
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Old 07-17-2008, 02:30 PM   #3
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Join Date: Jul 2008
Location: Wyoming, MN
Posts: 10
walli6 HB User
Re: PFAPA -what?

I would like to know everything about this rare disorder, mostly is it likely that her symptoms will worsen to include the mouth sores, leg aches, vomitting, etc? I spoke with the infecious disease doctor regarding her bloodwork today. He wants to run one test again to rule out the possibility that something else is going on. Also, to see if she cycles again on the same schedule as the last three times. Before the last three her fevers were a little farther part, but still got as high and lasted as long. So, we wait.