Thread: Scared
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Old 08-13-2008, 10:47 PM   #1
Join Date: Jun 2005
Posts: 90
Sophia85 HB User
Question Scared

I am a 23 year old college student and I have been dealing with some neurological issues for the past several weeks. It all started with episodes of right sided facial numbness, tingling, loss of hearing in right ear, blurry vision, dilated pupils that were non-reactive to light, unequally dilated pupils, difficulty with finding words, and inability to communicate despite being conscious during these episodes. I was in the ER at the veterans hospital twice within a week trying to figure out what the problem is. They did a head CT (no contrast as I am very allergic to contrast) that was normal. They also did blood work and urinalysis that all came back normal. I also consulted with my psychiatrist (I have a mental health condition that I take medication for. None of my meds have been changed within a month and a half though and the psychiatrist says that the meds that I am taking would not cause this type of reaction). I then met with my primary care provider at the VA. She put in for a referal for me to be seen again at the Neurology Clinic. I have been seen there before because I have nerve pain in my back and leg from a service connected injury and I take 300mgs of Topamax every day for it but had recently been discharged from Neuro back to Primary Care since I was on a maintenance routine. Complicated I know. So I am schedule to see Neurology on September 15th which was going to be ok I guess until last night I had something unexpected happen. I was feeling really strange before I went to bed. I couldnt' figure out if I was sick or what. I checked my blood sugar and blood pressure and pulse and temperature before I went to bed and it was all normal so I took a bucket to bed with me in case I should wake up with a stomach bug in the middle of the night and then I went to sleep. Well, around 3am I was asleep and the best way I can describe what happened is to say that my entire body like jerked or all of my muscles contracted at once and it woke me up. For a few minutes after it happened I was wide awake and very alert. Then I went to sleep and woke up for a few minutes at 9am then back to sleep and then again for a few minutes at 11am then back to sleep and didnt' actually wake up and get up until after 3pm. By the time I finally was moving enough to think of calling the VA it was too late to get through to anyone but the ER and I was not going to their ER again. I am going to call Neuro in the morning and see if they can do anything or see me sooner.
I'm just wondering if anyone can relate to any of this. I'm frustrated because so far no one seems to know what is going on and now this thing happened last night and I am really scared about what is going on. So any input anyone could share would be appreciated.

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