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Old 09-17-2008, 09:32 PM   #2
Junior Member
Join Date: Aug 2008
Location: Albany, NY
Posts: 27
FeatherMe HB User
Re: Is small fiber neuropathy prgressive?

I don't know the total answer but I do know that it started with cold feet, moved up to my shins, then to my hands, forearms , and now my upper arms.
The cold increased in intensity as well. It can be very painful. It alternates with extremely painful burning. I have also experienced it in my chest.

I find it quite frustrating. I'm on a low dose of topamax. Tomorrow I double it and I hope it makes a difference without adding any side effects. I can not take any pain meds other than lidoderm patches. This has all happened in the last two months.

It is the sick person who really knows what health is.