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Old 02-06-2009, 05:23 AM   #5
Junior Member
Join Date: Jan 2009
Location: NY
Posts: 10
lotusseeds HB User
Re: Who has used steriods with PFAPA?


I do hope your husband is well...just out of curiosity, how was the diagosis made? The tests are so inaccurate/inconsistant that many do not test positive yet repond to treatment.


You are spot on. Even when people haveLyme disease, they do test neg. for a very long time. We were very lucky, my husband actually did get the classic target shape rash where he was bitten. It took two rounds of antibiotic. They just did another blood draw (6 months later) to make sure he is better. He is fine now, thank you!