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Old 04-21-2009, 08:59 AM   #1
Join Date: Apr 2009
Posts: 2
chespkbymom HB User
Years of issues, 'enlarged multinodular thyroid'

Hi everyone! For several years, I have been going to doctors for what seemed to be unrelated issues. Now I'm not so sure.

First off, I was born with one kidney and later found out that I have a unicornuate uterus.

In high school, started have severe scalp problems(dry, itchy, crusting), and mouth ulcers. Also had anorexia/bulimia.

1998 - had first child

In 1999 Had vertigo, when to a doctor, eventually went away.

2000 - had second child

In 2002, I went to my PCD for dizziness, low energy, not being able to lose weight, pins and needles in feet and hands, extremely cold hands and feet, night blindness, and so on. He looked at me like I was crazy, but he sent me for some blood tests. From those, he said I was hypoglycemic. He said my thyroid was in the normal range and sent me for nerve testing for my feet (there was no nerve damage) He put me on some weight loss med (I can't remember which one), which didn't do anything except speed up my heart rate. Didn't lose a pound. Stopped taking it. He left the state.

In 2005, went to a new PCD for pain under ribs. She put me on Bextra(which is a Sulfa drug - and I am allergic to Sulfa). Ended up with Stevens Johnson's Syndrome, which can be fatal. She denied any wrongdoing and made me feel like a leper. Now I am extremely sensitive to all meds, including over the counter ones.

Found a new PCD! Had several problems such as exercise induced asthma, pain in chest(EKG was normal), tested for gall bladder (normal functioning), and treated for depression over the next several years.

In 2007, tried going off gluten and I felt much better. Still didn't lose weight. Developed nickel allergy.

So, now 2009: went to GYN for annual checkup and increasingly heavier periods with severe cramps. Mentioned that I had gluten sensitivity. All hormone tests and ultrasound came out normal. She said I should see a GI to test for celiac sprue. I had been eating gluten since I had moved in 2008(and felt horrible), so I made the appointment. He said gluten is really hard on the GI tract, but my symptoms could also be thyroid. He felt my thyroid and said it felt enlarged. He tested me for celiac and my TSH level. Sent me for an u/s of thyroid.

So here are the results: Multinodular goiter(the nurse called them cysts)
TSH: 1.6
negative on celiac panel

His office is making an appointment with an endo dr., but I am a little nervous about this. Still have chest pain, no weight loss (and if I stop exercising, I gain immediately), puffiness in face/hands, moodiness, tired all the time(even though I sleep 9 - 10 hours/night, cold hands/feet, extremely dry itchy scalp, mouth ulcers. Should I be worried and how should I prepare for this dr. visit?

If it is not hypo, what else could it be?

Last edited by chespkbymom; 04-21-2009 at 09:05 AM. Reason: added to it

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