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Old 01-14-2010, 01:57 PM   #2
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Re: Glioblastom stage 4

Hello Al

I am very sorry for your sad troubles. I want you to know that I understand and sympathize greatly with your roller coast ride with both parents in such a short time. A number of years ago, my parents were both diagnosed with cancer within a week of one another. My mom with breast cancer, my pop with lung cancer. One week later again, my uncle was diagnosed with lung cancer. Life became an exhausting nightmare for all of us... the patients, my husband and children and myself. Sadly, my pop and uncle died within six months of diagnosis.... strangely and sadly on the same day, an hour apart. My mom made it. As she finished treatment, I myself was diagnosed with a rare cancer.. a sarcoma. By the grace of God, I have survived. It was two years of riding the roller coaster of cancer and treatment. However, even in the hell of uncertainty, good things did come about. My children grew into extraordinarily compassionate and empathetic beings. Our family sustains a closeness of huge depth.

So, as to Mom and your family. However awful days may get, know that good things are also building at the same time. Unfortunately, glioblastoma stage 4 does not have a very good prognosis. Glioblastoma just gets so intertwined in the delicate areas of the brain. A dear neighbor of ours passed away from it maybe 5 years ago now. It was about a year from the diagnosis to the passing. Like your mom, he just slept a lot the last few months. His wife, a nurse, looked into options that might be available and there really were none other then the options already used for your mom. Ironically, his cancer hit around the same age as your mom is.

If your mom desires, there is always the possibility of clinical trial. Searching glioblastoma and clinical trial together would probably yield some results.

There is also a clinic in Philadelphia that specializes strictly in brain cancers.
I believe it is connected with the Children's Hospital in Philly. I know for me, going to a clinic in Boston that specialized in sarcoma is why my leg was able to be saved.

I think mom needs to be consulted about this if she is coherent. My neighbor made the decision that he wanted no more treatment. We really must honor the patients wishes in this. For me, the chemo that I took was so harsh that after 4 treatments that I said, "No more." And I meant it. Thankfully, my family did not argue it with me. With no guarantees that more chemo was going to cure me, I decided that whatever time I was going to have, I didn't want to be so foggy and sick.

Talk to mom. Let her wishes be your guide. Whatever may come, honor her feelings. I know you love her with all your heart. Especially after losing your dad fairly recently, it is heartbreaking to be possibly facing this with mom. I am so sorry. Whatever the decisions may be, remeber always that you are a good and caring son and that is what every parent longs for.

My thoughts and prayers for mom and for your family.