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Old 04-18-2010, 11:46 AM   #38
Join Date: Apr 2010
Posts: 1
huwey HB User
Re: Hospice wants me to stop feeding my dad

I am in the same situation. My Mum has dementia and has had a stroke. Her swallow is gone and the only option seems to be the tube. However she keeps pulling it out. Option is to put mits on her to stop her pulling the tube out but is this really giving her any dignity? I want to her to stay with me but the dementia is so bad now that I dont really know if she is here any more. Life is like a roller coaster with each day bringing its ups and downs. I am an only child so there is just me and my Dad visiting the hospital. I have a demadning job so it is exhausting getting to the hospiatl in the week but the guilt is worse.
It is terribly lonely but I still dont want her to leave me yet..
Huwey L