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Old 08-13-2010, 06:22 AM   #4
Join Date: Aug 2010
Location: UK
Posts: 2
kelseyb HB User
Re: Crmo

Hi Lauren , have the doctors tried pamidronate? My grand daughter is being treated with this and we have seen a marked improvement , certainly the pain has gone although she does get very stiff. She was diagnosed about the same age as our son and is now just coming 6.
Keep your chin up , this is a horrible condition I know!