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Old 02-03-2011, 10:53 AM   #1
Al Dyob
Join Date: Dec 2010
Location: near Tennessee
Posts: 3
Al Dyob HB User
Anyone have Persistent Idiopathic Facial Pain

My wife has been finally diagnosed with PIFP (Persistent Idiopathic Facial Pain). It is very similar to Trigeminal Neuralgia. She has episodes of Electrical Pain, along with crushing pain that is consistent except when she is sleeping. Her doctor is now experimenting with a medication they use for gout and another one for High Blood Pressure that does something to stop some channel that causes pain. We are not sure about all of it, but he is at least willing to try a few things. I will tell you she has been through so much horrific pain. Does anyone else out there have anything similar... Would like to hear from you... PIFP as it is called was once known as atypical facial pain. I have a easlier post on here describing her symptoms...Hopefully there is a light at the end of the tunnel. It is a relief just to get a diagnoses instead of hearing how its psycological.

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