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Old 07-07-2011, 07:13 PM   #2
Join Date: Jul 2011
Location: Tacoma,Wa,USA
Posts: 1
klcj HB User
Smile Re: Possible Celiac or something else undiagnosed?

Originally Posted by AmyFed View Post
Hey everyone! I'm new to this specific board, but have been posting on the digestive disorder board. Anyway, here's my story.

I'm a 24 yr old female, relatively healthy (have a low platelet count and eczema but nothing serious). I've starting having upper abdominal pain in the beginning of April, that felt like a constant pressure in the center along with nausea. Sometimes, it will get bad after eating fatty/greasy meals (or I'm guessing just large meals). I can eat cereal, cookies WITH milk, and simple sandwiches (turkey and some mayo) without having pain if I eat small bowls of it. When it gets bad, the pain will build up and sometimes feel pain all over. The pain has lasted at most 4-5 hours before dying down. Area is very tender after these episodes, and makes me feel like puking my guts up the entire time. I've puked once, but other than that I don't have constipation or diarrhea.

Went to the doctor in the beginning of April, and was diagnosed with gastritis, and was given Prilosec OTC. I was told to take it for a week, and return if it wasn't helping. It didn't do anything for the pain or nausea, so I went back in a week. That time I was given Dexilant (1 per day) and Zantac (2x a day) to see if that would do the trick. Dr also ordered a blood test to check liver and pancreas enzymes which came back normal. Another week later, still having the same pain and nausea so was ordered an abdominal ultrasound. Came back normal.

Came back to see another doctor, who then ordered a stool test for H Pylori. That came back normal as well, so I was referred to a gastroenterologist. I saw the Gastro specialist on May 12, and he said it sounded like a poorly functioning gall bladder so he ordered a HIDA scan. Did the scan on the 26th, and that came back normal as well. I did an upper endoscopy on the 23rd of June, and GI doctor said everything looked normal but took biopsies for H Pylori and Celiac.

He prescribed me Librax the day of the scope, and I've taken it without noticing an improvement.

I took my first pill of Librax on the night of the 26th, and decided to have some meatloaf, potatoes, and veggies for dinner. I guess that was way too much for my body to handle, because I ended up in the Emergency room for about 3 hours later that night. They gave me a GI cocktail which didn't do anything, so then they gave me pain meds via IV for an hour and sent me home with some Vicodin. Blood tests came back fine for WBC and liver/pancreatic enzymes.

I've lost 6-8 lbs since this started, doesn't seem like a lot but it's usually hard for me to lose. I barely have an appetite, and when I do eat, I usually only eat a little bit because I can't finish even a whole plate of food.

I called this afternoon for my biopsy results and the nurse said the H Pylori was fine, but something about elevated leukocytes (I think that's what she said) in the small intestines, but it's fine. But she did say she was going to talk to the dr and see if he wants to order blood tests for Celiac disease.

Now it's the 4th of July weekend, and I won't hear back until at least Tuesday, so I'm worried sick over this. Please does anyone have any advice or ideas?
Hi, while you should have the results by now it sounds to me like Celiac disease. I had alot of the same problems only it took years to get a scope done. Don't worry, with a bit of work esp. at first you will get the hang of the gluten free diet. Google --GIG (Gluten interolance group), Gluten-free mall-- you can buy just about anything here, and to start informing yourself. Try not to do what I did and buy everything gluten free (in huge print) just because it says gluten free it is often more expensive, with just a little bit of lable reading you will find that regular foods are really marked gluten free just not on the front label.
Good Luck

Last edited by klcj; 07-07-2011 at 07:16 PM. Reason: spelling errors

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