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Old 07-17-2011, 03:16 PM   #16
Join Date: Mar 2011
Location: Tampa, FL
Posts: 73
BYU1972 HB UserBYU1972 HB User
Re: Chronic Progressive External Ophthalmoplegia (CPEO)

hi my friend, I'm so sorry. You are not alone. I wish we could all get together and have a a support group gathering. None of my family, mom or dad's side, great grandparents and beyond have had this. Mine was apparently a rare occurrence. Along with droopy eye, (mainly right eye), also have chronic dry eye and now balance issue due to weakness of my feet. I went to Hopkins and basically the diagnosed me and said i have a while to wait to get frontalis sling. They said wait till your eye almost closes. Computer bothers me a lot, so i have to get off this thing.

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