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Old 02-05-2012, 08:21 AM   #4
Junior Member
Join Date: Feb 2012
Location: atlanta ga
Posts: 34
josana HB Userjosana HB User
Re: crps 1 or 2 or both

Thank u so much for responding Flaminghands (love the name)...and I completely agree with everything u said. This is w/c so they are extremely slow and I feel like I am the only one with any sense of urgency. Never in my life have I had to deal with such a slow process. The original injury was my hand was crushed in a large industrial door. First dr. said Contusion and I was sent back to work and braced for 8mths. I kept telling Ortho it burned like crazy and he kept telling me nerve injuries can take 3,6,9,12 mths to heal and the pain I felt was normal. First MRI said neuritis/neuralgia and then EMG/NCV said tenosynovitis and carpal tunnel with sprain/strain..still sent me back to work with a few limitations like no grasping. Bone scans looked ok which to dr meant see u don't have anything wrong. Even though I was in pain everyday..burning,stabbing,swelling etc I believed the Ortho cause doesn't everyone want to believe they don't need any surgery and it will all heal in time? Finally 8 mths into this I get IME and that dr. said CRPS well I had never heard of that even with all my online investigating I did not see.
When 1st dr. saw IME he says well that is what I've been saying all along..NO u did not...I would have looked it up! 3 mths later I finally go to Pain Clinic...where they have me do 3 more MRI's..results stopped the whole thing as there were partial to probably completely torn ligaments and tendons and tennis elbow and torn TFCC wrist, torn UCL elbow, and possible nerve impinged in Cspine. Pain clinic at that point said get another Ortho opinion I am not an Ortho. It took 5 additional mths of arguing with dr. and w/c to get that appt with a dr. I chose. Results CRPS 1 or CRPS 2 or BOTH and DON'T let anyone do surgery on you as CRPS will get worse. So, basically now I have all these injuries that cannot be fixed and CRPS.
So now I am waiting again to see if they will let me have a Physiatrist, who deals with nerve,bone,soft tissue and nerve blocks etc. so I'm told, cause I want the best person there is. After reading the CRPS websites BUNCHES OF TIMES...I feel like I may be in the category of ABC syndrome, b/c cold takes pain away an always has...Ice was the only thing they gave me.
So this is where I stand, except for the fact the nerve was part of initial injury and not sure if that pertains to ABC syndrome, I suppose I will have to figure out my dx by myself. Never thought a yr and 1/2 ago I would be in this shape. I have educated myself so much I now feel I should be given a Medical degree and Law degree....LOL....Thanks so much and any advice anyone has I am thrilled to hear.......:wav e:

Last edited by josana; 02-06-2012 at 07:16 AM.

The following user gives a hug of support to josana:
hatemyfeet (02-06-2012)