Thread: Dystonia: Help
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Old 02-21-2012, 04:40 AM   #3
Junior Member
Join Date: Dec 2011
Location: Henderson, NC USA
Posts: 13
Stonewall1 HB User
Re: Dystonia: Help

Hello Momwithdystonia:

I have an update on my condition. I had a trial run with sinment and NO results. I have had another MRI last week and still NORMAL. My neurologist is Finally sending me to a MOVEMENT Disorder neuologist in April but I am going to try to get it moved up sooner. My leg still shakes and the muscle contract all the time. When I get up in the morning until I go to bed. My doctor has not told me what kind of dystonia I have but he thinks its genetic and now has me on clonezapam ( i think thats how you spell it) twice a day. I have been on this since Jan. 25 and seems to be helping.. The only thing now is that it makes me so so so sleepy. The feeling in my leg has returned since on this med but now it hurts me so bad i have to take something for the pain.. I guess its an improvement but it hurts me so so bad.. Still have no voice and hand and neck spasms have improved very well since I have been on this new medicine.

What kind of dystonia do you have and what kind of problems are you having?

Have a good and pain free day!!


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