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Old 02-28-2012, 11:29 AM   #2
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Join Date: Mar 2011
Location: Scotland
Posts: 41
wellyoulookfine HB Userwellyoulookfine HB User
Re: My Story: Looking for Answers

Hi, really sorry to hear that you're feeling so bad. In short i've had a history (16 years) of fogginess/dizziness/lightheadedness/imbalance etc and finally i feel that i might be getting somewhere with a diagnosis. I generally feel "spaced out" amongst other symptoms and have come to realise that visual stimuli make the feelings worse. I'm convinced there is a mismatch between my senses to keep me balanced - either a vestibular problem or a proprioception problem which makes my eyes over compensate for balance, hence visual vertigo.

Some tips i would give you:
1)try to establish which of the above terms applies to how you feel - gps are very flippant when you complain of dizziness or lightheadedness, but it's important to work out what you do feel ie you've established that its not vertigo spinning so thats really important.

2)dont put up with a throwaway diagnosis if your gut tells you otherwise ie i was told i have MAV after 10 minutes with an ENT and a lack of questions or thought. To be fair there are so many possible causes and ruling out the most common must be done, but stick to your guns and dont let them talk you into something your adamant doesnt apply to you.

3) be honest with yourself about anxiety. Most of us on here have probably been told it's caused by stress and anxiety - both are a huge part of any balance or dizziness problem but you REALLY have to have a think about cause and effect before visiting your gp. I was told by a neurology consultant that my most recent job was the cause and to "take another few months to see if it clears up" - my problem started 16 years ago, i only started that job 7 years ago. On this point, i must add that they are busy trying to manage their time and i'm sure that for this reason many consultants and specialists focus on your records and dont actually listen to the majority of what is said at the appointment - be succinct but make sure you keep their attention.

4) try to establish what symptoms are caused by what (in light of the anxiety thing) - it's too easy to blur the lines.

5) make them work for you - dont be intimidated, esp when you've maybe been waiting months for a 10 minute consultation - use the time to your advantage and (i'm not saying be rude, these people are under pressure) make it clear that you know yourself very well and that something is not right and you insist that some tests are done. note: on 2 occasions when i've said (really politely) that i'm not happy with the outcome of a consultation, the specialist has then spoken to a colleague about my case afterwards and sent a letter to my gp stating any later considerations - for this reason it might be worth writing a succinct list/description of your problem as it's difficult to remember all the vital symptoms when your "on the spot".

Good luck

Sorry, meant to say, your list of symptoms - i would say that the list from "shaking/trembling" onwards are all the anxiety effect of the dizziness/lightheadedness. I've suffered from anxiety, sweating, headaches (tension), stomach upsets, panic attacks, etc and i can definately put them all down to imbalance and lightheadedness - it really takes a lot out of you physically to maintain balance and go about your daily business feeling like this, and i think an important thing to say is that the anxiety it causes creeps up on you, very much a subconscious thing at the start.

Last edited by wellyoulookfine; 02-28-2012 at 11:38 AM. Reason: Forgot to add