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Old 10-26-2012, 01:59 PM   #3
Join Date: Oct 2012
Posts: 3
loffrem09 HB User
Re: Discouraged with my orbital pseudotumor/ocular myositis

Scare me? No...but your post does make me wonder what exactly my doctors are doing.....i havent had a biopsy or any type of surgery presented to me. At this point ive only gained 10lbs but ive had the rare side effects for awhile...the easy bruising, losing of the hair, ive lost most of my musclw mass and my whole body hurts to the touch...its just doctors did try to swap the pred. For the methotrexate but that didnt work we r now onto another immunosuppressive called cellcept. I wish i could get down to a even a lower dose of the steroids but per my doctors today looks like im stuck at 40mg for atleast 2more months .....wondering if/when radiation therapy will ever be suggested to me...did the radiaton help at all?