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Old 11-10-2012, 11:36 PM   #1
Join Date: Nov 2012
Posts: 1
andy2929 HB User
Question Chiara Malformation Husband SUFFERING TERRIBLY NEED HELP PLEASE

My husband has a chiara malformation he had the decompression surgery 2 years ago. He was 90% symptom free for almost two years. Now his symptoms are back worse than before the surgery! He is such severe pain with his head with headaches and pressure, tingling in his fingers and toes, throwing up he barely functions. We have moved really far away from where he the surgery so a gp did his mri and had no clue what he was looking for. I sent his mri and all the info to the surgeon who helped him to years ago. They have in on every pain med you can think of non of them are really working. I feel so helpless. He looks so horrible. What is going on with him? Has anyone had the decompression surgery and then had the symptoms come back worse? The pain is 24/7 with pressure! I'm terrified for him.I don't no what to do and no one understands the pain he's in. He is 6'4 and 260 pounds and he cried himself to sleep last night. What do you do when the meds aren't even working? I fanyone has a clue what's going on please write back to me so i can help my husband...

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