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Old 11-15-2012, 11:32 AM   #1
Join Date: Aug 2008
Location: Pittsburgh
Posts: 2
Aseneth HB User
Question Temporal Lobe Nocturnal Seizures?

Hello! This is my first post. I have had at least a 2 year search for answers to a condition which looks, according to two EEGs, to be related to disturbances in the temporal lobe (left, or perhaps both). I will be having a 24 hour monitor EEG done sometime this week. My symptoms are not entirely typical, hence the minimizing of doctors, and the disbelief of even the neurologist until he did a second EEG, and was impressed with the spike/sharp wave activity.

My episodes are always at night to early morning, and the pre-ictal symptoms wake me up: GI symptoms are most extreme. I wake with a great urge to toilet, am loose with diarrhea (sometimes uncontrollable) and nausea/vomiting. Besides that, I have racing and loud heartbeat, tight chest and burning sensations in and outside of my body. Fear, and weird feelings, including strange unrealistic thoughts (religious in nature). Frequently I pass out (not always), even when I know I am going to and lie down first. Though I am post-menopausal, there seemed to be a cyclical pattern to this, skipping a few months in the summer (I have less stress then?)

My twenty something daughter has been diagnosed with occipetal migraine (she has had 4 episodes of aura, then blindness for a few minutes), but I am wondering if it might also be seizures. We will definitely look into this once I have an absolutely positive diagnosis. We also have three generations of repeate infant febrile seizures (myself, my other daughter, and her daughter), outgrown by 3.

Does anybody else on this list have temporal lobe action ONLY at night? I have done some searches, and this seems extremely rare. One of my concerns is driving: there is an exemption in our state for those who seize only at night (the doctor can sign a waiver) but I haven't been able to find much info suggesting that temporal lobe nocturnal-only epilepsy is recognized. I am very reluctant to go on meds, since I need my wits about me for my job--I teach at a college.

Thanks for any comments anybody might have.

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