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Old 11-21-2012, 10:24 PM   #12
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Join Date: Nov 2012
Location: Southern New Jersey
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Re: Initial MS Diagnosis/MRI question

Thanks, JayHawk. I saw my neruo for only the second time and was pretty discouraged. He did an EMG which he said I passed and I am now scheduled for a lumbar MRI looking at spondylosis and an evoked potential vision test, both this Monday. However, he seemed surprised that my eyes have been hurting and my vision slightly blurry. When I heard that, I asked him about the McDonald criteria and he sort of blew me off and said there were other ways to determine MS. He asked me about going to my eye doctor for a follow up for the pain in my eyes. Duh! We went over my MRI and took note of the one lesion that was there. It was not bright but it was was there. One McDonald criteria of the main three noted that one lesion plus two other symptoms that could be present (don't have my notes in front of me) could indicate MS. The dr. said a few times he does not believe I have MS based on my clear MRI's, but I do not feel he listened to my symptoms. I made a complete list of them and even recorded daily how I have felt for the last 2 months. He did not look at it but I asked for it to be put in my file. I also asked him how a lumbar problem could account for my blurry eyes and he could not tell me. Another test that he flunked. The good thing is that he was not ready to order an LP and was willing to give me a referral for a second opinion. My next appt. is Jan 2. I think I have decided to get the next two tests and make an appt. with a bona fide specialist in Philadelphia; my sister-in-law's dr. She has had MS for 20 yrs and recommended him. I am truly frustrated that my present neuro does not seem to be up to speed although he made the comment that he was an "MS doctor". At the same time, I realize that there are still other possibilities for a dx. I am not wanting MS, of course, and also realize that it's a waiting elimination game. I am hoping that with my results from the MRI's, EMG, vision test, blood test and symptoms in hand, I may be able to get a second opinion. If you have an opinion on whether I should have a few more tests before getting the second opinion, please let me know. I certainly want to see the specialist fully loaded. Thank you for answering. More to consider. Have a wonderful Thanksgiving.