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Old 01-21-2013, 05:13 AM   #3
Join Date: Jan 2013
Posts: 5
kiwidinok HB User
Re: what should I do?

Hello Heather,

Wow, really another year? I am so exhausted I actually slept close to 20 hours yesterday! I feel just spent. I am going to make an appointment with my new pcp and talk to him about trying to get a referral to a hematologist.

I am not sure why he wants the spinal tap done, I guess in light of other symptoms.
My next question since it takes so long to get the iron up orally when they are at level not at as low as mine, is this when a hematologist is more inclined to go the transfusion route to boost you up?

Got to say-loosing my hair like this is not on my top 10 list