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Old 02-21-2013, 11:38 PM   #2
Join Date: May 2010
Location: S.A.
Posts: 145
mandy37 HB Usermandy37 HB Usermandy37 HB Usermandy37 HB Usermandy37 HB Usermandy37 HB User
Re: Limb Girdle 2a pain

Hi Ali

I have LGMD and also have pain issues but only my muscles and not in my limbs. (All my muscles from shoulders to legs) The worse is my back but since I'm using a wheelchair 90% of the time now the pain is basically to it's minimum.

I've tried all the pain medication known to man but the only thing working for me now is meditation and staying off my feet but still using my body (in a wheelchair you have to move your body to move)

It sounds horrible but you do start "live" with the pain and in my case it becomes so much part of my life that it becomes "bearable"

I hope you find a way to deal with your pain and although it sounds like uselesss words keep a positive attitude - it helps


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