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Old 02-22-2013, 08:52 AM   #4
Ali76's Avatar
Join Date: May 2012
Location: Wisconsin
Posts: 5
Ali76 HB User
Re: Limb Girdle 2a pain

Hi Mandy, Thanks for the reply! Maybe a wheelchair would help...I get around with a walker right now but holding myself up has been more difficult lately. I have never tried meditation, might be worth trying- I really have nothing to lose.

Positive attitude is really hard right now, I've had the pain for a long time and I've tried a million things for relief. I also get super frustrated at people who tell me that when they look online it says "pain is not associated with limb girdle MD". Anyway I appreciate the response and if anyone out there has some pain relief advice or just wants to vent about the issues you're having regarding your disease I'll listen- This is all very new to me and I don't know a single soul with MD so I'm very much learning as I go on this crazy twisted journey.


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