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Old 02-24-2013, 08:50 PM   #10
AmberP333's Avatar
Join Date: Feb 2013
Location: San Diego, CA
Posts: 7
AmberP333 HB User
Re: Essential Thrombocytosis (high platelets)

Did you have any risk of blood clotting?
I am still researching this, as my husband was just diagnosed with ET less than a week ago. (He is 43) here is his story:

My husband has high platelets and high WBC...neutrophils are high.. After FORCING (i had to yell and cuss) our primary care dr to send him to hospital because of severe headaches....they did CBC and CT scan of his brain...said everything was fine....however...they didn't bother to tell us his platelets were almost a million, and his WBC was 14.2, neutrophils were 82. We were referred to Neurologist who ordered an MRI....they called us the next morning and said to go to the hospital and they had a room already ready for him, he was being directly admitted. MRI revealed Cerebral Venous Thrombis (in Left transverse sinus and sigmoid sinus...and partial thrombosis in superior Sagittal sinus) other words, his veins that drain blood out of his brain were clogged up with blood clots. We were in the hospital for 6days....they sent him home on high dose of blood thinners...saying he will be on them forever. So that was one problem. Now, back to bloodwork... A week later (last week), the Hematology Oncologist called us in with her results....he too has Essential Thrombocythemia. For now, he is on Coumadin, and HYDROXYUREA. I am trying to get him to see a MPD specialist in Arizona. Most HEMATOLOGISTS and Oncologists are not too familiar with this, as it is so rare, and just follow the so called protocol on how to diagnose/treat. I'm actually more concerned with the Thrombosis than the his neurological focal defects worsen everyday.