View Single Post
Old 03-07-2013, 08:28 AM   #6
Join Date: Dec 2012
Location: Texas
Posts: 5
phast845 HB User
Re: Limb Girdle 2a pain

I have been diagnosed with Lamberts Eaton Syndrome, and now they are going to test me for FSHD(facioscalpulohumeral Muscular dystrophy) and OPMD ( oculopharyngeal muscular dystrophy). My pain is constant now days, especially in my calves & thighs, shoulders, ears & eyes. I look forward to a morning I wake up and can get out of bed without straining or in pain. I too have problems turning over while I am in bed. It is such a struggle. And it seems to be getting worse. I am not with the aid of a walker , yet, but have noticed that feeling like my legs are giving out on me while I am walking.
I had a shingle of the eye, and am now being treated for glaucoma. I have times when it feels like something is choking me, and I will gag on water.
I have been learning a lot over the past few months about this illness that the doctor suspects I may now have. God bless all of you for all that you have to go through.

Reply With Quote