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Old 04-13-2013, 09:45 AM   #7
agoodmanhattan's Avatar
Join Date: Apr 2013
Location: New York, NY, USA
Posts: 3
agoodmanhattan HB User
Re: recently diagnosed

Everyone's experience with this is different. I was 25 when diagnosed and it was a nightmare. They put me on gabapentin, trileptal, tegretol and the only thing those medications did was turn me into a zombie. They only medication that gave me a little but of relief was ativan. I decided to have the neurosurgery to correct it(my neurosurgeon is one the of the best in the tri-state area. He did a great job, haven't had at TJ symptoms I do however struggle with pain due to the surgery. I get constant headaches and pain in my neck and jaw. At least that pain can be controlled. Unfortunately opiates don't help with TN pain. Just the anti-seizure meds which have terrible side effects. If I were anything with this terrible condition I would opt for the surgery unless the medications were really helping without disrupting the quality of your life.