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Old 05-24-2013, 11:04 AM   #8
Join Date: Apr 2008
Location: USA
Posts: 281
Linda1652 HB UserLinda1652 HB UserLinda1652 HB UserLinda1652 HB UserLinda1652 HB UserLinda1652 HB User
Re: Am I the Only One With Unsuppressed TSH?

Originally Posted by verycomplicated View Post
Thanks Linda--
do you get a total T3 or free T3? which one has the results you're talking about?
I never had a WBS or I-131 & started levothyroxine right when I discharged from the hospital. The surgical oncologist wanted me to have both and the endocrinolgist I already see, said there wasn't much difference in the outcome(even with stage 4 papillary, follicular variant), so she didn't want to do either & she'd rather follow me closely.My endo said my Tg should be under 2 and the 1st one 6 wks after surgery was .39; free T4 was 1.85 & TSH was 1.6 & should be less than .1
levo was raised to 150 & Sept values after 6wks on 175mcg: free T4 2.76;
TSH .056; Tg .14 In Nov., free T4 1.8, TSH .18--had no quality of life & decreased levo to 150. In march free T4 was 2.34, TSH was .80 & Tg was .22 on the 150 dose--still felt awful so dropped to 137mcg and my april #'s were 1.8 and TSH 1.36. Crazy, huh?

Synthroid caused thyroid storm, migraines & I was on fire. Tirosint was going to cost close to $100/mo. and I already have costs in the hundreds for RX's & medical supplies even with an RX plan.
Your suggestions are very helpful and I will be faxing my doctor to ask about testing & cytomel--thanks so much!
The values were for a total T3. You must be outside of the US, because I don't know about Tirosint! That is very interesting that your endo didn't think you needed RAI. Refresh my memory on the size of the tumor. From my understanding, the surgeon isn't able to get the "remnants" of the thyroid, thus the need to get rid of (ablate) what is left.