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    Old 05-18-2008, 03:26 PM   #1
    Victor123
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    Desperate for a solution

    Before I begin my story, I would like to excuse myself for my bad English..
    It all started one day in september 2007. I just married my long time girlfriend. We had a very nice wedding where at least 300 people came and enjoyed our special day with us, though the wedding was costly and stressful, never-the-less I was happy and excited. Then just 2 weeks into my marriege, while my wife was out, I cooked myself a nice canned soup and ate it while lying back on the couch and watching t.v. Afterwords my wife came and I felt I wanted to go to sleep. As I got to my bed and was falling sleep I felt as If I couldnt breath. I immediately panicked and got up and went downstairs. My wife, who was in the kitchen asked "whats wrong honey", in which I replied "nothing". At this moment I am thinking to myself that I need to not freak my wife and just relax. So I sit right front of the T.V. hoping this thing will just go away. Then I felt as if I cant breath and my hands became cold. I got up and I felt like I was fainting. I then go to the kitchen and drink water. The whole time I am feeling weard and getting nervious like crazy. So I tell my wife "I cant breath call 911"..LOOOOOOOL(looking back at it I feel so sorry for myself but at the same time think of my poor wife)...What she did was question me and tells me to come down.Which of coarse I told her to call "911" again. When the ambulance came, they checked me and told me that I was fine and that I didnt need to go to the hospital. That whole night I was thought I was dying. I went from one place of the house to the other seeking comfort. Finally, I went to sleep for little bit. Long story short, the following days where the same scenerio as the one I just talked about, ambulance would come and tell me I am ok. After a week, we decided that we should notify the families. Which we did. Soon after, I went to my doctor, as I came in she said that was fridigy(nervious) and examined me and right their and then ordered tests on me, I mean all types of test, EKG, Blood test, and Barrium Swallow, which all turned out to be fine. At this point I am thinking I am going crazy. I mean how can a guy who was so outgoing, in shape, young (27), athletic(addicted to sport and working out), all of a sudden thinking about death. Anyways, the doctor said that I had anxiety and panic attack and so prescribed me anti-depresent medication. In my heart I knew that wasnt the right diagnosis. So I left and took that med for about 3 weeks, in which I found out that I still was the same, even worser. Then I went back to the doctor, but this time she was away and her subtitute informed of a possible case of ACID REFLUX. Which I dismissed. Anyways I went back again for at least three more times, until the doc felt that she couldnt do anything for me and send me to a throat specialist. By now its 3 months. This specialist checked me out and said I have ACID REFLUX . So now, I am believing, and immediately started using the medication for it. After a month I got slightly better. I forgot to mention how the pain transformed over time. As I said I all of a sudden felt I couldnt breath, afterwards I produce this LUMP on the THROAT, which was very annoying and painful. Also all these weird things were happening to my body which I attribute to the medication, such as tigling, numbness of the hands and feet sometimes, eye movement, and something running through my head. My over all sleeping pattern has being good, its actually my escape time. After using the medication for 3 months I go back to the doc and tell him that I am not still alright. So he requested I go take an endo(something), which came out fine. Then he said to me that my tonsils are infected and thats the only think he can thing of besides the ACID reflux that is there. I have being taken antibiotic medicine for a 2 weeks now ( I dont how long it takes effect, because I am not feeling that much better, though the doc said used it for 4 weeks). This is where I am at now, 8 months later. In the process I lost my job and my wife. What is your take on this?

     
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    Old 05-18-2008, 07:33 PM   #2
    Victor123
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    Re: Desperate for a solution

    Guys I need your feedback.If anyone had this kind of sickness

     
    Old 05-19-2008, 07:26 AM   #3
    CHALUPA
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    Re: Desperate for a solution

    Hi I would love to help you but I have the same thing now for 2 years. I woke up and felt like I couldn't breath it has never gone away. They are telling me this is all from reflux and allergies mine is any time I am awake.

     
    Old 05-19-2008, 07:29 AM   #4
    lroberts21
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    Re: Desperate for a solution

    Hey there,

    I feel your pain.I'm 27 too & all this started for me in Dec this year.So every day i sit back & remember how normal i used to be before my body started falling apart.So my husband thinks i'm crazy.For me i cant believe you can be normal oneday & then the next thinking of death.So i do feel your pain.I too was told that i have acid reflux & to think its caused me to feel so bad & not want to go out & do anything at all anymore.I have had tests after tests done & still have a knot feeling in my throat& my throat burns all the time..Worst now is feeling as if i cant breath.This has been going on for 6 months now & counting.So from one Dr to the next Dr.ENT to A GI Dr as well as trying all kinds of meds for acid reflux & Lexapro & Xanax.Of course the only thing i'm depressed about is how i feel.All your symptons do sound like acid reflux based on what the Drs have all told me as well.ITs just so hard to grasp that.I hope & pray that we all start to feel better or they come up with a magical drug for us all.I have had many trips to the ER for chest pains & to only be told i'm too young to be thinking i'm dying.As my husband laughs because of all the bills we have due to my issues.I've realized that what i used to take for granted such as just simply feeling normal & not sick backed fire on me.I wish i would have cherish that.NOw i just hope i get back that way again.I hope you get some answers for yourself & you feel better soon.What meds are you on?

     
    Old 05-19-2008, 07:49 AM   #5
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    Re: Desperate for a solution

    Victor,

    I am sorry for your suffering and for all that you have lost.

    With all the testing that you have had and the good results - I would say that your Drs. are probably on the right track with the Acid Reflux diagnosis as well as anxiety.

    How many medications have you tried for your Acid Reflux? It could be that you just need a stronger medication and to give it more time to work.

    Antibiotics can make reflux WORSE - so do not expect an improvement until you are done with the anitbiotics and have tried a stronger medication for your Reflux for a couple of months.

    Also, have you tried modifying your diet (cutting out caffeine, chocolate, tomatos, citrus, not eating (3) hours before going to bed, watching your posture while you sit, etc.) - see if that helps as well.

    When I first developed reflux my worst symptoms was horrible breathing problems - hard to believe that stomach problems can affect your breathing but they do. My husband is very unsympathetic and calls me a 'faker' so I understand what you are going through. Because we 'look' ok people assume that we are.

    Not being able to breath properly causes LOTS of stress and anxiety which makes make both the Reflux and Worry worse - which makes the breathing worse.

    My advice (just on sufferer to another) is to try and get the Reflux under control with diet and a stronger medication and continue to take the medication for anxiety. Try to get some counseling to help with the stress and worry.

    It may take a while to start to feel better - but it will be worth the effort.

    God bless and keep you - I hope that you feel better soon.

    PS: I continue to struggle with the Reflux (severe horrible burning) and also breathing problems - has been 8 months for me and I have gotten worse? I pray daily for relief - I will be having my testing soon...

    Vanessa

    Last edited by Vanessa74; 05-19-2008 at 07:52 AM.

     
    Old 05-19-2008, 09:47 AM   #6
    Victor123
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    Re: Desperate for a solution

    I want to thank you guys so much..Irobert, I totally understand what you mean by "things that we took for granted", your definetly right. If I tell you about the medication I have being on , it goes like this..I started with Prevacid(20gm), but it gave me side effects, such as vibration of the feet and hands, I guess its because I rarely ever used medication in my lifetime and my body was having hard time dealing with it. Anyways, I changed medication and got on Prolisec(20gm) which has being alright. Like I said I have being like this for 8 months now, same time as one of the nice repliers here. I was wondering is there anyone that beat this disease?

     
    Old 05-19-2008, 11:07 AM   #7
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    Re: Desperate for a solution

    I was diagnosed with GERD and hiatal hernia in 2003. My doctor had me try several different medications but the ONLY ONE that keeps me from having heartburn is Aciphex. Insurance companies try to get you to take Nexium or other meds cause of the cost but with if Dr. will tell them that you CAN'T take any other med., the insurance company will approve it. When taking Aciphex, I can eat anything I want and eat very late at night and go right to bed and have no heartburn symptoms. Have you tried Aciphex yet?

     
    Old 05-19-2008, 06:04 PM   #8
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    Re: Desperate for a solution

    I feel your pain. I have been suffering off and on since 2003 with diagnosed severe GERD. Most days are good but I have had 3 episodes that have lasted for months in which I thought for sure I am not going to survive. The first round I even wrote "farewell" letters to my children, and I am not a dramatic person, so I do feel your pain, and I pray you will find relief soon. This is going to sound really strange, but have you tried taking apple cider vinegar with your meals and anytime you start to feel really awful? Go to a health food store and buy a good kind like Braggs organic apple cider vinegar with the "mother". (Some say cheap kind like Heinz apple cider vinegar doesn't work.) It cost me $3.49 for a small bottle, and I swear it saved my life this last time around. I also take digestive enzymes with my meals that have betaine hydrochloride like brand Parazyme. Often GERD is caused by not enough acid to digest your food believe it or not and this causes caos and extra reflux. You will have slight burning at first on swallowing the vinegar and then almost immediate relief. Start with 1-2 teaspoons and increase as needed. Can mix with honey and water. I know it sounds strange but it has helped others as that is how I found out about it.

     
    Old 05-19-2008, 06:51 PM   #9
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    Re: Desperate for a solution

    Please dont take offence at this, but a review from a psychiatrist might be advisable - just because antidepressants didnt work, doesnt mean that it isnt panic disorder.

     
    Old 05-19-2008, 08:04 PM   #10
    Victor123
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    Re: Desperate for a solution

    Lubug..I did try Apple vinegar by Heinz and it didnt work but I am seriously going to consider your suggestion. Do you think Wal-Mart has it?.And where do I get those other things that you take?..I so much appreciate your help.

     
    Old 05-20-2008, 07:37 AM   #11
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    Re: Desperate for a solution

    Hi Victor! I am so sorry to hear of your health situation and of the breakup of you and your wife. (I think that is what you said) I feel so bad for you. You are not alone. Always remember that. I think you have done all the right thing by having all your tests done. If you have had everything checked out and the doc says it's acid reflex it very well could be. Maybe switch meds. The acid coming up could make your throat swell and that sure enough would scare you feeling like you can't breathe. Once you get that under control I think the anxiety subside. I have lived with anxiety for years and it is a living nightmare. No one understands unless they have been through it. You will be ok. And you have friends here ok! Let us know how you are! Take care now.

     
    Old 05-20-2008, 09:23 AM   #12
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    Re: Desperate for a solution

    Some say that some grocery stores carry BRAGG apple cider vinegar. I found mine at a local nutrition store. You can order it online at bragg.com. They are going to add a store locator to their site, but it is not up and running yet unfortunately. I searched for it on-line at Wal-Mart and listed as not having. As for the digestive enzymes with HCI (hydrochloric acid), I googled it and found several sites that have it. Here is the link: [url]http://www.***********/products?hl=en&rlz=1G1GGLQ_ENUS271&q=dig estive+enzymes+with+hydrochloric+acid&um =1&ie=UTF-8[/url]. If you are not able to cut and paste that link, the first listed one was from TheBetterHealthStore for $5.45. Just google "TheBetterHealthStore". I bought my ParaZyme from a local nutrition store. It is sold by Renew Life. Their phone # is 1-800-830-4778 or [url]www.renewlife.com[/url]. Vitamin World which is in a lot of malls often carries their products and would probably carry other digestive enzymes as well. Just make sure whatever digestive enzyme you buy has hydrochloric acid in it. I would recommend the max doses for you at first of both the vinegar and the enzymes. For example, I had to take several chugs of the vinegar and 2 Parazymes just to get down a bowl of oatmeal without getting sick at first, but now am able to eat bigger meals with less of the vinegar and sometimes none. My chiropractor said eventually your body will start producing more of its own if you eat healthy and take the enzyme support for a time. When I had my second big attack, I tried almost everything including the Heinz vinegar and it didn't work for me either. The digestive enzymes did though along with 2 prilosec a day and antianxiety meds. This time, though, the Prilosec just made it worse and I don't want to go back on antianxiety meds. Taking the digestive enzymes and vinegar has really helped tremendously though not back to 100%. The vinegar is taken with meals and any time you start to feel symptoms coming on. I really hope it works for you. If not, I hope you find something soon. If absolutely nothing is working, I would highly recommend finding a wholistic doctor/nutritionist/chiropractor that is willing to run a FULL blood pannel/work-up. The blood can show if your pancreas, liver, etc. are not fully functioning and their is nutrition things to take to help build that up. And no, you are not losing it with regards to the anxiety. I never suffered a day of anxiety until I had GERD. Most sites don't list this, but in some research I found that the reflux actually stimulates the Vegus nerve bringing on the anxiety. Also, you have thousands of nerve endings in your stomach, so when your stomach gets highly aggitated like it does with GERD, anxiety is one of the symptoms of severe GERD. Also, it is not easy to stay calm when you are having trouble breathing. So, hang in there and know you are not losing it. I will be praying for you. Reading the Psalms and New Testament scriptures, listening to Christian music, and praying has also helped during some really hard days and nights.

     
    Old 05-21-2008, 09:15 PM   #13
    Victor123
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    Re: Desperate for a solution

    Lubug..I wanted to know if you tried the Aloe Vera(and if so , what kind, the tablet or the drink?)..Anyone can answer this.

     
    Old 05-29-2008, 08:18 PM   #14
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    Re: Desperate for a solution

    Yes, aloe vera juice does help, especially for mild to medium symptoms. I use the drink. I have used a variety of brands. Doesn't seem to matter re: brands.

     
    Old 05-29-2008, 08:21 PM   #15
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    Re: Desperate for a solution

    Yes, aloe vera juice is effective for mild to medium symptoms. I use the drink. I have used a variety of brands--doesn't seem to matter. How are you feeling these days?

     
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