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  • Please someone help me i'm worried!!

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    Old 07-16-2008, 03:50 PM   #61
    FLFLOWERGIRL
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    Re: Please someone help me i'm worried!!

    cc--I think your doing the right thing by taking notes, make them brief as possible to keep his attention. I have found that to work, it's when you really get into a list that many will disregard it completely. And also, taking someone with you is a great idea too. Everyone needs support especially when dealing with docs.

    My best advice from my experiences and I have had many, is to allow the doc to give his 2 pence (in your situation), and give all your symptoms clearly, what it is, how it feels, when it happens and how long. Do not go in and say you think you need the scope. Wait and see what his idea is about the whole DX. Then give your opinion when you feel it is the right time. Remember I told you there are many other test that can also be done that may be beneficial to you, I agree scopes sound like the right way to go with your symptoms. Good luck to you and keep us posted. FYI, you may want to start a new post to get more hits of opinion. FLFLOWERGIRL

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    Old 07-16-2008, 07:53 PM   #62
    karate_mom
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    Re: Please someone help me i'm worried!!

    HI,

    I have been reading your posts. If you have a scheduled appointment you can almost ALWAYS call in daily to see about cancellations. IF I were you, I would also ask for anti-anxiety meds such as Ativan. This can help you caln your nerves, as you seem very upset.

    Let us know how the appointment goes.

    God Bless and good luck.

     
    Old 07-17-2008, 08:44 AM   #63
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    Re: Please someone help me i'm worried!!

    Not a bad idea from karate mom. Last year when I was really ill I had to take Xanax because of health anxiety. It really helped to get me through. Talk to your doctor about what medication is right for you. FLFLOWERGIRL

     
    Old 07-18-2008, 05:39 AM   #64
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    Re: Please someone help me i'm worried!!

    Hi thanks for your advise ladies, bare with me on this, i saw my gastro doc yesterday and he is going to give me the endoscopy, i finally convinced him he was nice he listened to everything i had to say and is going to do it for me! he marked it as urgent and will give me the scope when i come back from holiday which is the 3rd, its going to be 2 weeks.. so early augest, he told me the most he expects to find is imflammation or at worst an ulcer.. the thing is in my last exam i had a year ago they found a condition called barretts now i'm only 23 and i thought this effected only people of old age, but he told me it is not the case and that he's seen alot of people my age with it also.. i am confused because he said mine is only 5 millimetre's bad or how ever they moniter it, he said its bad when its 3 centimetre's.. so a year ago it was 5 millimetre's, the thing is does barretts cause heartburn all the time? because i don't have the heartburn, do you have to have heartburn to have barretts? they told me within a year its very unlikely something has happened, and that things have changed much.. but when i had the scope a year ago i took a medication called ranitadine, and i felt better so i stoped taken them.. untill 3 months ago the symptoms return and are worse then before, so i been taken lansoprazole (precived) with no change in my symptoms but what i didnt know is that its a lifelong thing and i have to take them always even if they are not working, i'm worried now because when i took the ranitadine a year ago i felt better and i stoped because i didnt understand i still had to take it anyway regardless, i'm worried that more damage has occured? but surely once you felt better at the time you stop them, i been taken the lansoprazole only 8 days i took them and stopped because their not helping, but i have been told to always take them and never stop, whats your take on this everyone? they wernt reduces my symptoms so i stopped, they don't want to changed the medication either why take a medication that doesnt help i don't understand? was 8 days long enough? how about a year ago when i took the other meds and i stoped because i got better, was i meant to do that? you see i didnt understand i thought you stoped when you get better, what can happen that i stopped? i'm worried its caused damage cause for 3 months i have had these symptoms that have been worse then i have ever had them before and their different, also for a week i have had a bad unsual taste in my mouth mainly on my tongue, everything i eat or drink tastes different is this common with acid reflux? its worrying me.

    Last edited by ccel1; 07-18-2008 at 05:43 AM.

     
    Old 07-21-2008, 08:55 PM   #65
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    Re: Please someone help me i'm worried!!

    cc--Well, that's a new story. You didn't give us all the facts before. It's really hard to give opinions when you don't have all the information. Sorry that you got that DX and you are indeed very young for that. My mom was DX'd with BE this past year but she never knew that she had heartburn or anything, it was silent. She is 74yr, and was very surprised when they biopsied and found that. I was always the one on meds not her. Once you are DX'd with BE you have to remain on meds to heal you and to keep it from progressing. This does take years of course it's not something that happens over night at all so I think your fine on that account. I sure hope that you raised your bed as well! This is very necessary if you have BE or GERD. I cannot stress this enough. You don't always feel what is happening inside and it's not the same for everyone. You should have been given more information long ago, is this the same doctor? I would be asking questions about that if you haven't already. It is what it is, and you can only move forward, and forget the rest. At least you are getting the long awaited scope. I wish you the best of luck with your procedure. Keep us posted. FLFLOWERGIRL

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    Old 08-06-2008, 07:42 AM   #66
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    Re: Please someone help me i'm worried!!

    basically i think the doctors are confusing me, i will know more on friday when i get the scope hopefully.. originally they told me i had inflammation of the oesopigus, then the biopsy came back as barretts with a question mark? can anyone tell me what this means? its as if their unsure, but how can they be when they tested it i'm confused, i told my GP she doesnt even no, the specialist i recently saw told me i have it, but on a scale to 1-10 when they tested it was was near the 1 mark being only 5 millimetres affected, at its worst its 3 centemetres, but this was a year ago now when they do it again i want better information and i will know for sure, before i wasnt told i must take the medication for life, before i was told untill i finish the course and i feel better, its all crap i hope when they test it again its not that, even if it is its not life threatning is it? i have no heartburn, just the other symptoms i explained, the liquid feeling in my chest that rises to my throat after i eat, always belching, bloating always, regurgitation, alot of nausea i told my doctors that the medication i am taking is not working i have been on it for 3 months now they still won't change it, they keep telling me to take it these people make me angry because if medication does not work why continue take it if it does not make you feel better? the specalist was like just continue taking it, i really hope after this scope they find out what is the problem 100% so i can move on because this has ruined part of my life.

     
    Old 08-06-2008, 09:53 AM   #67
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    Re: Please someone help me i'm worried!!

    You need to ask your Dr. lots of questions and don't leave until you get the answers and understand them. Barrett's Esophagus is quite serious. It can lead to Esophageal cancer if not properly treated. The acid in your stomach is causing the lining of your esophagus to change into the lining similar to your intestines. Your doctor will be able to explain it better or do some research yourself. My husband didn't take his GERD seriously and he's gone now. Not trying to scare you, just be cautious and treat this seriously and do as the doctor says. Also try to get your anxiety under control because that can cause a lot of acid buildup. Please take care of yourself and God bless.

     
    Old 09-07-2008, 04:51 PM   #68
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    Re: Please someone help me i'm worried!!

    I don't like telling you this but: You need to chill. I can tell you, from first hand experience, Barrett's is damgerous, but it is treatablke, and in most cases when found early (and yours sounds that way) it is removable. But you need to see a GI specialist...one you can trust. Then follow exactly his/her advice. There are several abaltion process available, Radiofrequency is probably among the best, but must be done by someone who had LOTS of experience performing that procedure. There are several very promising new procedures coming down the pike and will be available soon (i.e. BWR is one very promising, minimally invasive procedure).

    Based on your own description of symtoms I have to say you have a pretty severe case of GERD. GERD can cause Barrett's...which is pre-cancer. But, you need to know that only .5 percent of those with Barrett's ever acquire cancer from it. It is treatable. It dosen't turn into cancer over night. So stay calm. See a GI specialist. For a 2nd opinion I suggest the Mayo Clinic in AZ. But there are other places as well.

    Try to stay calm, talk with others who have experienced Barrett's and who have been treated for it. Good luck.

     
    Old 09-07-2008, 05:02 PM   #69
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    Re: Please someone help me i'm worried!!

    Regarding Barrett's Esophagus: There are many over-the-counter and prescription drugs that can bring about Barrett's Esophagus. One common PTC drug is Aleve. I have to make this quick so....... here it is: Mucus at the base of the esophagus has an acid neutralizer in it. Aleve eliminates this protective mucus, thus allowing acid to repeatedly burn the lining of the esophagus. Often times there is no ordinary symptom of "heart burn"...until it's too late. There's a long list of prescription and OTC drugs that can damage the lower esophageal valve. Aleve is one of the most common because it's generally taken for very long periods of time. Cafeen, chocolate, Ni-Quill and a host of others "stuff" weaken the lower esophageal valve and they should not be used.

    With the proliferation of drugs being "pushed" on us these days (including TV ads for them) it's no wonder esophageal cancer is now the # 2 cancer killer.

     
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