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  • EsophyX TIF A Big Disappointment

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    Old 01-01-2010, 07:37 AM   #1
    hawkins6
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    EsophyX TIF A Big Disappointment

    For all you fellow GERD and Acid Reflux sufferers, please think twice before having any surgery, especially the TIF, in hopes of eliminating your ailments. I had mine on December 4th of this year. The 23 hours in the hospital afterwards were less than pleasant. I have been on a restrictive diet ever since, but as I add more "normal" food, anything with the least bit of spice, I get acid reflex in terms of the acidy taste coming up my esophes and throat. At first I thought it was just a fluke and took some Tums to settle it down. This morning I finally gave up hopes of recovery and went back on my PPIs, Still on the restrictive diet so as not to cause any damage to the procedure, but I am questioning what was the point of all this. I'm pretty much the same as I was before December 4th, expect that the doctor has a lot of my money and I have gone through a lot of discomfort. I'm not sure how the promotional information can boast "no more pills...eat whatever you want" Anyone have a similar experience?

     
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    Old 01-01-2010, 01:22 PM   #2
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    Re: EsophyX TIF A Big Disappointment

    I'm sorry to hear you are still having such problems.

    I can't speak to the EsophyX TIF, but I did have a Nissen Fundoplication last year. For me, it helped a lot, but that isn't the experience everyone has. I find it interesting that the marketing is geared to "no more pills" and "eating whatever you want". Neither my GI doc and surgeon promised I'd be able to go off the pills. The surgeon said many people were able to, but my GI doc told me all along that I'd need to stay on my twice per day PPI's. My stomach is still producing too much acid, even though it isn't coming up like it used to. He was also clear with me that I should still stay on the modified diet. Although, after a couple years on it, I have lost some of my willpower and sometimes "cheat" knowing I may pay a price digestively.

    Be very careful for a while longer on what you eat. Meat and bread can take a long time to be able to accommodate since they don't break up in your mouth and kind of glob up when you swallow. They are harder to get down. Angel food cake is still a tough one for me. My surgeon was clear about the fact I'd always have to take small bites and chew well.

    Have you had a follow-up with your surgeon yet? When is your next GI appointment? You really should be talking to them about what you are still going through.

    Good luck,
    MountainReader

     
    Old 01-01-2010, 01:28 PM   #3
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    Re: EsophyX TIF A Big Disappointment

    I just read your other post that talked about vomiting after the procedure. Did you talk to your surgeon or GI doc about this? My surgeon was very clear about not vomiting and gave instructions for extra anti-nausea meds that they put into my IV and gave me a prescription with a couple refills for Zofran to help. I knew going in that the anesthesia makes me vomit and I was really worried about that so I had a couple conversations with them. It was frustrating getting the nurses to pay attention to me when I first got nauseaus after my procedure. They actually sent the CNA back with soda crackers when I complained of the nausea. This despite my surgeons orders for a liquid diet only for the first couple weeks. Tells you how little they care and pay attention. It was my first time to actually stay overnight in a hospital and I wasn't too impressed with the care.

     
    Old 01-01-2010, 04:17 PM   #4
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    Re: EsophyX TIF A Big Disappointment

    Your surgeon obviously was much more upfront with you than mine. As far as a gastro, I really don't have one. Had one in the past, but for the most part my primary doctor just prescribes the medicine. My acid reflux was totally controlled by my PPIs until about 6 months ago when I started having what I call burning mouth....a burning feeling coming from my gums, teeth. Since it got worse when I drank wine or ate chicken wings, I guessed it was acid reflux. My doctor, ENT, surgeon and dentist were convinced that it wasn't the cause. I'd tried everything else to stop it, so as a last ditch effort, I had the TIF hoping it would correct the problem. That, plus the fact that my insurance will no longer pay for my PPIs prompted me to think that the TIF was the way to go. I told my surgeon about my vomiting after the procedure and he shrugged and said it didn't really make a difference with a TIF...said it was different than the other procedures. As far as the nurses...I also was on anti vomit meds interveniously. But, I was past due for a refill and as I told the nurse I was about to throw up, she finished her paperwork first. Guess they are so overwhelmed with covering their moves that the patient truly does come last. That said, my gums and teeth still burn and I still have acid reflux. Back where I started. No, I won't try bread or meat until my schedule says to. Thanks for the reminder.

     
    Old 01-01-2010, 05:25 PM   #5
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    Re: EsophyX TIF A Big Disappointment

    My PPI's stopped being effective about 9 months before I had the Nissen. I spent those months trying every PPI on the market to see which was the most effective. I'm now on the "best of the worst" with regards to the effectiveness of the PPI's. Kapidex has a time-release for the dosages of PPI's administered.

    Does your insurance completely not cover PPI's anymore? Has your doctor tried to get authorization and show that you have tried the other PPI's that are now OTC? I know that what the insurance companies want us to do is to go with the OTC meds because it is cheaper for them. I tried the ones on the market first. I know Prevacid has come out OTC now, but it is out at 15mg. I was on 30 mg twice per day of the Solutab version prior to my surgery. I remained on it after surgery until I switched to Kapidex. I had to have my GI doc get prior authorization and write up the list of PPI's I'd tried prior to getting authorization for the Kapidex. Wish I hadn't had to go that route though. Nexium, even short term, gave me permenant issues with my gut as a side effect.

    You might ask around to get a recommendation for a GI doc to see if they can do anything else for you. I had a bunch of other testing done prior to my surgery to rule out other things that might be impacting my reflux.

    I didn't have the burning in the mouth like you have, but I had a chronic cough and asthma flares caused by the reflux. Even on meds and with diet and lifestyle changes, I eventually had a life-threatening asthma attack that led my doctors to take my reflux seriously. It was actually my Pulmonologist who recommended me back to my GI doc.

    You might try Gaviscon instead of tums. You chew it up and it foams in your mouth before you swallow. Might help alleviate your pain some.

     
    Old 01-02-2010, 02:40 PM   #6
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    Re: EsophyX TIF A Big Disappointment

    I had mine on the 4th of Dec as well. I have had a little reflux but not near as bad as I was before the procedure. I am eating well and drinking well! I was told I had a beautiful fundoplication! I can count how many times I have had reflux which is cool because before I always had it, day and night. I am still having minor chest pains and really miss beer and cokes. At this point I am happy with my decision and the money I spent. I paid out of pocket and it cost $8500. Has anyone else paid out of pocket and if so how much did it cost? I have taken a few Previcids but that is probably from Vodka and stress. Not using PPI's at all. That is great because I don't have insurance because of my Gerd and Barrett's. At this point I know I am still healing and hope it will just continue to get even better. I will get scoped in May and see how well it has healed.

     
    Old 01-02-2010, 04:54 PM   #7
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    Re: EsophyX TIF A Big Disappointment

    Quote:
    Originally Posted by hawkins6 View Post
    For all you fellow GERD and Acid Reflux sufferers, please think twice before having any surgery, especially the TIF, in hopes of eliminating your ailments. I had mine on December 4th of this year. The 23 hours in the hospital afterwards were less than pleasant. I have been on a restrictive diet ever since, but as I add more "normal" food, anything with the least bit of spice, I get acid reflex in terms of the acidy taste coming up my esophes and throat. At first I thought it was just a fluke and took some Tums to settle it down. This morning I finally gave up hopes of recovery and went back on my PPIs, Still on the restrictive diet so as not to cause any damage to the procedure, but I am questioning what was the point of all this. I'm pretty much the same as I was before December 4th, expect that the doctor has a lot of my money and I have gone through a lot of discomfort. I'm not sure how the promotional information can boast "no more pills...eat whatever you want" Anyone have a similar experience?

     
    Old 01-02-2010, 05:05 PM   #8
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    Re: EsophyX TIF A Big Disappointment

    I am scheduled for the EsophyX TIF procedure this Friday, January 8, to be performed by Dr. Bada at Fawcett Hospital, Port Charlotte, Florida. He explained that the vast majority of people, 85% to 90%, who have had this done have been able to completely discontinue taking prescription medications. He said the other 10% to 15% have had to take a prescription some or most of the time. No guarantees. Sorry to hear that you had to go back on the PPIs. That's a major disappointment after going through the procedure, 23 hours in the hospital ant the eating restrictions. Is Dr. Bada your doctor? Is there anything else that can be done to be of help to you? Best wishes to you.

     
    Old 01-10-2010, 04:05 PM   #9
    hawkins6
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    Re: EsophyX TIF A Big Disappointment

    How'd the TIF go? I just returned from a cruise and found that following the diet was a lot easier on the ship than at home where I have to cook for myself. I also found that I didn't neet to take the PPIs every day...maybe twice during the week. Yes, Dr Bada is my surgeon also. I have my final visit with him in a week and we'll see what he thinks about my condition. At my last visit, two weeks after the surgery, he told me to discontinue taking the PPIs, that I didn't need them anymore...except in rare occassions when I ate spicey food. With the diet, I haven't had spicey food since early December.

     
    Old 01-11-2010, 06:26 AM   #10
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    Re: EsophyX TIF A Big Disappointment

    Dr. Bada said my TIF, performed on Friday, January 8 at Fawcett Hospital in Port Charlotte, FL, went smoothly and was uneventful. Since then, I am closely following the liquid diet. The good news is that my throat and esophagus are recovering and I have little pain there. The not-so-good news is that I continue to have more stomach pain that I thought I would. The pain seems as if I have stomach gas that would be relieved if I could burp, but I have not been able to do that. Did you have the same experience with stomach pain? How long did it take for that to go away? I tell myself that it has only been three days...and that this will get better. I'd appreciate any input you have regarding stomach pain. Thanks for asking.

     
    Old 01-11-2010, 07:30 AM   #11
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    Re: EsophyX TIF A Big Disappointment

    No stomach pain here...maybe I didn't notice as I was still taking pain pills on day three. Perhaps it has something to do with what you are eating. I lived on milk products for the first week and they tend to keep my stomach under control....milk, milkshakes, puddings, cream of soup. I'm sure you will improve, but if not, be sure to call the doctor. Six weeks after the procedure, I need to keep reminding myself that I am supposed to be "recovering" still...keep the faith, it'll get better. I am able to go without the PPIs for days at a time. My biggest problem is that I had hoped the burning in my gums and mouth were coming from my stomach, but I was wrong and am still in pain with that. Probably has nothing to do with acid reflux, but who knew?

     
    Old 01-11-2010, 12:17 PM   #12
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    Re: EsophyX TIF A Big Disappointment

    Thanks for your encouraging words. I did call Dr. Bada today and asked about the stomach pain I was having, which seems to be gas. He suggested I try an over-the-counter medication, such as Gas-X, and said this problem should clear up in a week or so. He said I might be swallowing air, which is contributing to the problem. This might be the case because I have been drinking protein drinks using a straw, which, now that I think about it, using a straw can cause air in the stomach.
    Regarding the continued problems you are having with you teeth/mouth... According to one of the brochures I received, "GERD sufferers may experience complications" such as dental erosions. So,would it be possible that your GERD problem did cause your mouth troubles? Perhaps a dentist could recommend something to help?

     
    Old 01-17-2010, 05:28 PM   #13
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    Re: EsophyX TIF A Big Disappointment

    To hawkins6, whitewrightinc and any others who have had the Transoral Incisionless Fundoplication (TIF) procedure for acid reflux: I had my TIF procedure on January 8, so I'm just past my first week. I'm still on the liquid diet and I'm still taking Nexium. (I will probably stop taking Nexium within the next couple of days.) At this point, I do not know if the TIF procedure worked for me or not. I'm feeling a bit discouraged with the liquid diet and am losing weight that I don’t need to lose. I would appreciate any information from others who have had the same procedure as to how long ago you had the TIF and how you are doing now? Thanks in advance for any input or advice. Best wishes.

     
    Old 01-18-2010, 05:36 PM   #14
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    Re: EsophyX TIF A Big Disappointment

    Have milk shakes...they're considered liquid, also cream of soups. I found some good recipes online for soups. Steak and Shake has a happy hour with half price shakes 2 - 4 each day. That saved me! You won't really know if the procedure worked until you start going back on "real" food. I find that 7 weeks after the procedure, I'm pretty good if I eat bland food. However, if I try acidy food, like red sauce or spicey food I still need to take my PPI. My internist told me (after the fact) that most of his patients haven't had very good luck with the procedure. At least i'm not taking my PPIs two times every day...more like once every other day.

     
    Old 01-19-2010, 08:07 AM   #15
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    Re: EsophyX TIF A Big Disappointment

    Thanks for the suggestions regarding the liquid diet. Good to hear that you have some success and have been able to greatly reduce the number of times you have to take PPIs. If you would be so kind…I have another question. I saw my surgeon yesterday for a follow-up appointment (ten days after the TIF). He said I should start cutting down on my PPI by taking one pill every other day. So, I did not take a pill yesterday. (Although I still slept with extra pillows at an incline, this morning I woke up with a sore throat - the same type of sore throat caused by my acid reflux before I went on PPIs. I would greatly appreciate it if you would share with me how you felt when you started to taper off use of your PPIs? Did you immediately feel better without any acid reflux symptoms? It is discouraging to think that I may have gone through all of this without any improvement. Thanks again.

     
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