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    Old 12-26-2011, 01:16 AM   #31
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    Re: A last point of view for the time being: LPR being recently revised as red herri

    EEW:

    I recently developed LPR-like symptoms (mucus after eating and drinking, waking up choking in the night, strange taste at the back of the mouth, trouble swallowing, food sticking in throat, pain and tightness in voicebox etc) and have been feeling really unwell, scared and am now way too thin.

    I'm really interested in how vit D and fish oil have helped you. So far I have been researching magnesium and Vit b12 since the former can have an effect on the muscles in the gut and the latter can affect nerves if you are deficient.

    Please could you tell me which brand/type/dosage of fish oil you took?

    For D3 you said you take the drop form and stated the dosage. Are you able to mention the brand?

    Thanks in advance.

     
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    Old 12-26-2011, 02:52 PM   #32
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    Re: A last point of view for the time being: LPR being recently revised as red herri

    LPRsolver: Yes, I'd be happy to answer your questions. I'm happy to share. I had severe LPR...excruciating pain throughout the head, back of neck, ears, cheeks. Last year it was radiating down my arms and my legs. The vapor/gas/droplets of acid had so damaged my throat. The acid was burning through my throat nerves. It took alot of reading to understand what was wrong with me. I only had a few Drs before I moved who gave me just enough information that I put together what was wrong with me. The white mucous stuff in the throat is the throat tissue trying to protect itself. Its a horrible illness. I too was wasting away and I'm being very accurate when I state that all my Drs could say to me was that I had to live with unbearable pain. No one ever addressed pain levels. It's like being a burn patient only on the inside. It's horrible.

    I haven't stopped researching for the last year 1/2. The the strongest PPIs did nothing for me except give me severe pnuemonia (30% of patients on PPIs develop pneumonia; thats why, after 4 months of being diagnoised with LPR, they sent me to fundoplication surgery. The lead surgeon did say that a fundoplication for LPR only had a 50-50% chance of working. The assistant surgeon (a thorastic specialist) said I would have a 90% chance of success. I was desperate for pain relief I went for the surgery. I came out 10x worse after surgery. It was devasting. I wasted away steadily. Lost 30 lbs not due the surgery and was wasting away. The surgery healed fine and I had no stomach problems at all. Only searing LPR pain.

    Between writing desperate emails to my Drs in the old region and new region I moved after retiring (yes, I had the fundoplication 14 days before retiring and moving to a new region; it was so hard trying to not show my pain. I couldn't sit any length of time from the radiating throat pain and had to walk (through the house) to bear the searing throat pain.) I began my research when my Drs and my tests showed that the fundoplication did work but my GI just looked at me puzzled and said my acid score went from 40 to .4 and that there must be a secondary problem that they couldn't figure out. They told me I didn't have any more acid than the average person. But my clinical presentation showed I was so burned that my ENT insisted on a biopsy of my lower throat. I could barely bare the thought of anything thouching my throat I was in so much pain. The biopsy was negative. It was good news but no meds worked for me.

    ...but I knew from my research that LPR is both the LES and UES not closing off the throat from vapor/gas/droplets of acid. Its a very small amount, as it only burns the throat. The throat tissue is only one layer thick and the acid damages tissues and nerves that run up to the head/brain quicker than the lower esphogus. The lower esophgus is much thicker and can take the occastional reflux. The nerves are not close to the surface. But the throat nerves are in the one layer of throat and thats why the pain is so intense. It made sense. I knew if I could find something that strengthen muscles it would be worth trying as the UES/LES are muscles of the esphogus. Could it help close off the stomach?

    I read extensively and somehow ran across the benefits of vitamin D when I did a web searches on what stengthened muscles. It came up Vitamin D in some of the literature. I got excited because with that bit of insight I began researching and reasoned that maybe it could work on my strengthening my LES/UES. I research the different kinds of Vitamin D. There is the Vitamin D from the sun...the best Vitamin D you can get. I was struck with the realization, as I read, that I had avoided the sun for over 40 years! I have always tried to stay out of the sun. Additionally if you live above certain latitudes one just doesn't get enough vitamin D. Vit D affects every part of the body and its functions. I read articles that indicated that many illness are caused directly by not enough Vit D and that Drs don't think about testing for it. Its not a routine test in yearly physicals or when you go in due to illnesses.

    My research pointed to Vitamin D3 in liquid drops as the best assimulated. The pills don't absorb as well. Also I read that after 50 years of age the ability to make Vitamin D on the skin is reduced. (Vit D is not really a vitamin; its a hormone made on the skin by the sun.) I read also that weight affects how much Vitamin D is circulating in the blood. The fat cells attract and retain the Vit D that is meant to circulate in the blood. I read also one article that recommended taking 35 IU Vitamin D per pound of weight. I asked for a Vit D test 6 months ago. My Dr just sent me the outcomes. She never told me what to do about a low score. She answered and said to take 2,000 IU of Vit D for life. Drs just don't have the time to really study the issues patients have. Medicine seems to be only about pills not looking at the whole person.

    My Vit D score was 25. I paused for a moment when I read it and realized that for the 4 months before I requested a Vit D test, that I was in the sun for the first time in 40 yeas because we just built a pool, the grandchildren were over every day and I learned to swim and was in the sun alot. Prior to April 2011 I was probably alot lower than 25. Being in the sun for those 4 months had to have raised my score to 25. I had to have been much lower. Vit D score should be closer to 50+. My goal is to get close to 80 and then go into maintenance. I used the 35 IU x body weight for the first 3 months minus what I calcuated I got in food everyday.

    My Dr said to go on 2,000 IU for life but I felt that was not enough for my condition after all the reading I had done and knowing my personal history of avoiding the sun. After 3 months I did a new Vit D test and my Vit D score went up to 44. I then dropped my Vit D3 drops to 4,000 IU a day and will remain on that until I take my next test which I will be requesting in Jan/Feb 2012. If I get my score up close to 80 I will go on what my Dr advised to take which is 2,000 IU for life. I also spend 20 minutes in the sun every day and feel like I'm improving every day/week/month that passes.

    I will not recommend any Vit D3 drop because I feel they are all about the same. I bought mine back in July 2011 and the small bottle lasts a real long time and it is inexpensive (especially compared to the espensive PPIs my insurance paid for!). I bought my grandchildren Vitamin D3 drops at 1,000 IU per drop and different one for my daughter/husband that are a different brand from mine. Just go on your favorite vitamin web site and order it. It will be ok.

    Vitamin has done more for me than anything tried by the Drs. I'm so shocked that no Dr has ever thought about at least testing for it. Nor do they even worry about the results when the test comes out low. My Dr didn't tell me what to do about it until I emailed and asked her what do for low vitamin D scores. Incredibly disturbing. I just hope so much that more comes out on Vitamin D, as I think a significant amount of the population is suffering illnesses due to low Vit D levels. And it is so inexpensive. So much money in health premiums being paid, expensive medicines and surgery that don't work and simple Vitamin D3 drops took away the horrible searing pain of LPR.

    Additionally after asking a series of questions from a impatient head GI I saw in Sept 2011, where all he kept saying to me was that I had "sensations in my stomach" for every answer he gave me, drawing on all my research, I told him "while I don't refute what your saying Dr, sensations in the stomach don't explain why I'm burning to death in my throat." I looked at him and asked, "...is it my vegal nerve causing this problem?" He was quite frustrated with me as he couldn't get me out of his office fast enough, he repled quite impatiently, "Of course it is!" It gave me one more piece to go research. I put into the web, "what heals nerves." It came back Omega fish oil. The articles indicate it takes awhile (maybe 2 years) but they can heal with a good diet, sun and fish oil. I researched the best one I could find. Not sure if it is but I ordered for myself Carlson Norwegion Cod Liver oil with lightly lemon and use it on my green salads and I noticed that together with the vitamin D3 drops I've been improving. I still have LPR but every week/month I get better. Its a milder form of LPR now.

    Yesterday on XMAS day I only hesitated on the peppercorns in the Beef Wellington sauce, but other than that I enjoyed my meat and everything for the first time in 2 1/2 years. I had champagne...I'm so grateful. I felt good all day. Sometimes I go 5 days with no residual throat pain. I've basically become my own Dr and developed my own treatment plan for myself. I have quality of life now. Had I accepted what my Drs said I would have slowly withered away. When I sit next to my husband now I'm not in horrible pain and we are able to go out to eat and I can enjoy myself. I still stay away from tomatoes, pepper, garlic etc but my diet is not so restrictive. Lately, because my research has opened up a better understanding of what our body needs, I have added a B Complex, Ubiquinol CoQH, R-Alpha Lipoic Acid to my diet. I'm not really a vitamin person but realize that as I age I may need some supplemention of a few real good nutients that may be missing from our western diet. I research everything before I take it and my first criteria is being sure that I will benefit from it. And of course really being sure I eat well, lots of fresh greens and vegetables and lots of water. As I've improved, I've been able to add back some meat but fish remains my main "meat". Thank you for asking your questions, as I ws devasted by LPR and writing/sharing on these blogs has been theraputic. I still can't quite believe I have overcome this devasting illness just by connecting the dots and thinking logically and not accepting "that there was nothing more that could be done". My ENT, on my last visit was so surprised that my lower throat had completely healed. He wanted to know what I had been doing. He kept staring at me in dismay. He noted in my chart that I was on Vit D and fish oil when he asked me what I had been doing.

    I'm keeping my fingers crossed that on my 6 month check up with ENT he will find improvement in the upper throat. My GI turned me over to ENT as she said there is nothing more she can do for me. I still worry about throat cancer but the pain level is not searing and only once and while I feel like my neck is bruised and my ears will sometimes get an ache. My throat still looks white opaque up to my molars so I try not to look at it as its upsetting. Thank you for asking as it allows me to talk about it. When I read you were losing weight and were thin I know you must be so worried. Pull out all the stops and experiment and use your common sense. Drs give us pills that sometimes help but LPR doesn't respond to medications for some reason and the medications are seriously dangerous as they deplete the senergy of nutrients in our gut. The gut is 50% of our immune system and the PPIs come close to shutting it down...logically that points to further deterioration of health in every area. I read so much on this and I was terrified of taking PPIs. I felt so sick on them. My legs where like lead weights when I took them. Probably depleted Vit B. I know sometimes PPIs are necessary but I'm terrified of them. That is probably why I chose surgery over taking PPIs, because did nothing for me except make me worse and give me pneumonia. Write me how you are doing. I'll answer. Don't give up no matter what the Drs tell you.

     
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    Old 12-26-2011, 04:27 PM   #33
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    Re: A last point of view for the time being: LPR being recently revised as red herri

    eew: Thank you so much for your fast reply. I will read it a few times over and when I can formulate some more questions I will post them here.

    I'm glad you find the forum process therapeutic for getting over the trauma of what you have been through.

    Many many thanks.


     
    Old 12-26-2011, 05:08 PM   #34
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    Re: A last point of view for the time being: LPR being recently revised as red herri

    Hi again EEW, and LPRSolver, May you solve......................

    Here they drew some blood last week for Vit D and checking something else. It will be interesting to see the result, could be soon -- in fact this was the primary doc's idea in his exam room, he had just gotten through telling me I have a 'magic problem,' a condescending joke as in: 'you must have anxiety, as I can find nothing wrong with you.' Then turned to the computer and said, "ok I'm running out of things to check but we'll look at your vit D and testosterone...' Still.. good!

    Actually, I don't completly disagree with him on the subject of mood. Even though I am angry being given the bum's rush and not a referal (this is public health care for uninsured in Atlanta, you also stop and think about the diagnosed cancer patients who need help immediately).

    I have opportunities to test a model for myself, that is (at least for me) 'LPR is primarily an expression of an unhappy nerve system bundled around the throat and esophagus and there may not be that much terrible damage in the larynx' etc. It may not even involve much acid or reflux. Reflux events may even be normal or close to the general population. But the twist in this is -- they could also be ABnormal based not on structural dysfunction but out-of-whack pressures generated by stress. (I have not had an ENT exam -- did have EGD in Feb which was normal, but they don't look at throat)

    EEW, obviously with you and tons of people it appears there has been horrendous reflux and affected tissue, but even if that's plainly there and measurable -- there could be a neurological basis for it in stress and a hyperactive or otherwise distressed vagus nerve and not a structural problem with the valve. Not to mess up your sense of things as your own advocate and nurse -- but is it that the D is tightening muscle tissue, maybe it is -- OR is the D doing other things it does as a natural anti-depressant and anti-anxiety supp? Is it keeping valves from transiently relaxing, which apparently stress can cause. Could be both too.... glad you are continuing to improve, it's great to read that!

     
    Old 12-26-2011, 08:05 PM   #35
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    Re: A last point of view for the time being: LPR being recently revised as red herri

    Quote:
    Originally Posted by BrienE View Post

    I have opportunities to test a model for myself, that is (at least for me) 'LPR is primarily an expression of an unhappy nerve system bundled around the throat and esophagus and there may not be that much terrible damage in the larynx' etc. It may not even involve much acid or reflux. Reflux events may even be normal or close to the general population. But the twist in this is -- they could also be ABnormal based not on structural dysfunction but out-of-whack pressures generated by stress. (I have not had an ENT exam -- did have EGD in Feb which was normal, but they don't look at throat)
    I agree with this.

    My problems with my LPR (throat) started at a time when I was under a lot of stress.

    Even now I notice when I am in a good mood, my throat does not hurt as much.

     
    Old 12-26-2011, 08:21 PM   #36
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    Re: A last point of view for the time being: LPR being recently revised as red herri

    Kevinla I wonder, does your throat not hurt as much when relaxed and not under stress, or do you just not notice it the same? I've thought this regarding myself.

    I thought mine started after taking some tough antibiotics about 8 years ago. Recently I've been thinking that about 2 years earlier, I was under enormous emotional strain and completely fell apart causing a breakdown. At the time I remember thinking I had something stuck in my throat, and tried with no luck to get rid of it, and eventually went to the Dr who decided I had a sinus infection as I also had post nasal drip, and he put me onto antibiotics. Hmmm, so was that in fact the beginning of my LPR??

    I've been closely watching my diet over the past 4 weeks, and come Christmas Day I ate a lot of 'no go' foods, and didn't even notice the LPR. yesterday I was much the same. Today I'm home, and quiet and time to think and I'm very aware of it all day. So is it what I ate, or I have time to notice it?

    I do know over the years when stressed it's worse, but today I am relaxed so like most of you, I have no idea at all. I might post start a new post regarding bronchitis and see what happens.

    Take care

    Jude

     
    Old 12-26-2011, 08:27 PM   #37
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    Re: A last point of view for the time being: LPR being recently revised as red herri

    Quote:
    Originally Posted by JudeNZ View Post
    Kevinla I wonder, does your throat not hurt as much when relaxed and not under stress, or do you just not notice it the same? I've thought this regarding myself.

    I thought mine started after taking some tough antibiotics about 8 years ago. Recently I've been thinking that about 2 years earlier, I was under enormous emotional strain and completely fell apart causing a breakdown. At the time I remember thinking I had something stuck in my throat, and tried with no luck to get rid of it, and eventually went to the Dr who decided I had a sinus infection as I also had post nasal drip, and he put me onto antibiotics. Hmmm, so was that in fact the beginning of my LPR??

    I've been closely watching my diet over the past 4 weeks, and come Christmas Day I ate a lot of 'no go' foods, and didn't even notice the LPR. yesterday I was much the same. Today I'm home, and quiet and time to think and I'm very aware of it all day. So is it what I ate, or I have time to notice it?

    I do know over the years when stressed it's worse, but today I am relaxed so like most of you, I have no idea at all. I might post start a new post regarding bronchitis and see what happens.

    Take care

    Jude
    When I am relaxed, I don't think it hurts as much.

    I don't have any trigger foods. I can eat anything. As a matter of fact, when I eat, my throat becomes better for two hours.

    A few weeks ago, I ate the greasiest pepperoni pizza I have ever eaten. No effect on my throat.

     
    Old 12-26-2011, 08:54 PM   #38
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    Re: A last point of view for the time being: LPR being recently revised as red herri

    LPRsolver and BrianE and everyone with LPR: Please do ask me any questions LPRsolver after you read more, I'd be happy to share what little I know. We'll put our heads together to see what you would like to try to do to reverse your LPR. If you do not have a vitamin site to order from I will tell you mine but its not necessarily the best one. There are many others. Please don't forget to write me as time goes on to tell me what you have tried and if you tried Vit D, did it help. I have a strong interest in knowing if it helped anyone else out there and improves your quality of life.

    Yes, BrianE, I do understand what your saying. It took about 5 months to get diagnosed with LPR. My Drs thought it was stress related when the medications didn't work. They were truly mystified at my condition. I personally felt it was a terrible thing to put the burden of the illness on our "inability" to control our stress. They kept telling me to reduce stress. How do you reduce stress when you don't have any? It made me feel like I was losing my mind. And I knew I wasn't crazy. I was burning to death. It is only my personal opinion, based on knowing my body and the research that I've done, but I honestly believe it is not the problem. I don't have the scientific background just what I've read and how I feel, I believe that sometimes the gastric spinchters are affected by different hormones like loss of estogen/testosteron and the hormone called Vitamin D and of course diet. Things that really help relax the spinchters are things like chocolate and alcohol...yes even our much beloved wine. Over time the spinchters weaken. Age, diet and hormones. Nutrients that are missing can damage all the nerves of the body. Sometimes it effects people in the form of diabetes. They develop neuropthy, as you mentioned. There is a definite link there somewhere. We have different type of nerves in the body and lack of certain hormones or proper nutrition can trigger lots of different types of illnesses and functions of the body can stop working when they are lacking. For me I believe that the loss of estrogen after 50 years old combined with avoiding the sun and lack of the hormone called Vit D may have come together in a perfect storm for me. Another thing about my personal history is that I love sweets. It affects nerves in the body even if you don't have diabetes. I'm not diabetic but it could explain a deterioration that presented itself in the damage of the vegal nerve together with the lack of Vit D and estrogen. Why did I improve immediately after starting Vit D? Why have I continued to improve being on Vit D and Fish oil? What I read is that Vit D improves muscle tone. And fish oil heals nerves with time. It seemed a logical conclusion that it might help improve muscle tone and heal the vegal nerve. These are threads that I've pieced together on a hunch. I wish we LPR sufferers had Drs that could help solve the mystery of LPR. The Drs in the field currently are busy trying to create things that they can patent, they are not thinking about how to prevent LPR. There is big money in people being sick. I guess that is where I'm at. I don't want other people to suffer. I want to understand why we get LPR. What causes it and how do you prevent it from happening to other people who don't have LPR yet. I've read that babies are coming into ER rooms in convulsions and more and more Drs are finding that it's lack of Vit D as babies today are bundled up and get very little sun exposure and of course they are in sun zones that don't have the right latitude for creating enough Vit D. Could being in an area of the world that doesn't get the required sun intensity cause LPR along with other variables that come together? We, as a species evolved near the equator. The sun is essential to our health. Our new way of working is inside buildings not in the forests and open land where we evolved. We have very little sun exposure and government recommendations appear to be too low for good health. Perhaps its stress....but it doesn't feel like the answer. But it's good to keep an open mind. Experimenting with what works is good. I thank you for sharing your thoughts as all thoughts and ideas help us piece together our own treatment plans as Drs are just not able to help us. We have to help each other. I can't bear the thought that someone out there is suffering horrible pain without at least making sure I do my best to share my theory on what causes LPR. It could be that a certain amount of the population is born with weak spinchters although I don't buy that completely. I think the bulk of LPR sufferers could be helped with a better understanding of the variables that start LPR. I will reply if you write. Lets keep in touch and please share what your research points to.

     
    Old 12-26-2011, 09:24 PM   #39
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    Re: A last point of view for the time being: LPR being recently revised as red herri

    JudeNZ: on probiotics...there is a link there. When the medications didn't work after the surgery I began experimenting with probiotics. I took medical mega doses of probiotics under my GIs approval. I took 900 billion four times a day. My ENT saw a 20% improvement when I went on it after a month. The bacteria of our gut helps nutrients get into our blood stream. They help Vit B. There is a link there. Pershaps taking antibiotics destroys the natural bacteria that help transport nutrients and make biological functions work smoothly.

    Also, I forgot to mention that I have had a condition called sleep apnea. That could have been another variable in the severity of my LPR. It causes some deterioration of the pressure of the esophogus. The severity of my LPR I think has many variables that came together in a perfect storm. Vit D could just be a piece of it. So far Vit D and fish oil are the only things that have brought me some relief.

     
    Old 12-26-2011, 09:31 PM   #40
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    Re: A last point of view for the time being: LPR being recently revised as red herri

    I've been going to a herbalist and she has me on a formula, which I do four days on it, then the next four days it's pro biotics and slippery elm. That's my plan, this formula does seem to be helping as well.

    I also takle the fish oil with Vit D, but only the recommended dose of 1 tsp a day. But it's summer here so getting Vit D from the sun is an easy thing to do.

    Interesting re the lack of estrogen and perhaps that causses the muscles to weaken. I"m 58 and got this about 8 to 10 years ago at the time of perimenopause.

    I am trying something else, and when I see how it goes I'll report back with a new thread.

    Jude

     
    Old 12-26-2011, 09:58 PM   #41
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    Re: A last point of view for the time being: LPR being recently revised as red herri

    Very good Jude! Yes, there is a link with lack of hormones like estrogen and the sun hormone. I think I will always have some LPR. I have lessened the severity of my LPR with Vit D and fish oil. But bringing the spinchter muscles back completely may only be a hope. At least though I'm not in horrible pain anymore. Also, I was thinking about what is the common link with young people getting LPR. They have their natural hormones like estrogen/testosterone. I keep coming back to Vit D being the common link for all people of all ages getting LPR...it sure is a mystery. I have found a site called the The Vitamin D Council out of San Luis Obispo California and Dr. Cannell. Interesting reading. I can't wait to hear from all of the people on this blog if Vit D has helped you. I'm so anxious to hear if it made any difference. So far no one has written to say if it has helped. My improvement happened within 2 days and has continued for the last 6 months. Maybe my LPR is caused by lack of sun and estrogen while other LPR presentations are caused by many other variables. Maybe its not just one reason.

    Last edited by eew; 12-26-2011 at 10:03 PM.

     
    Old 12-26-2011, 10:45 PM   #42
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    Re: A last point of view for the time being: LPR being recently revised as red herri

    EEW, interesting as always to hear from you and thank you for your caring and all the info. So happens I too have been diagnosed with apnea and have a CPAP -- it's actually pretty modest, 9 cm water prescription which I hacked down to 7.9 'cause the exhaling against pressure thing was a real problem.

    Do you feel the Vit D has also helped with your sleep? May I ask, was your diagnosis obstructive, central, or mixed apnea? Mine was mixed. Interesting thing I noticed though... after the study looking at the stats for events, I practically had none, or they were no different than the gen population on my right side -- left side was a little worse, and of course on the back, bad news. Even though sometimes falling asleep on back can be very relaxing....

    I am determined also to beat the CPAP and apnea (have to get serious playing didgeridoo or doing exercises?), especially seeing as I am practically a normal night breather on my right side. Problem is, as much as I find the power of positive thinking to be a real phenomena and healing force, waking with a snort out of a world you cannot really affect makes it all very real, and a pain!

    btw, I have read right side is the best sleep position anyway for all the organs esp the heart... it can work easier at night. Was even pointed out to me that, despite the logic of left side sleeping being a better gravity angle with the lower part of esophagus and stomach, an interesting counterargument is that on the left side there is pressure put on the stomach....

    Love how your vit D did things for you in two days... you are like an informercial....lol.. I believe you and you know I will be on that vit D if mine is at all low... would not be surprised really. Summer in Atlanta is pretty much a steambath and we don't go out until after dark certain times of year.

     
    Old 12-26-2011, 11:33 PM   #43
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    Re: A last point of view for the time being: LPR being recently revised as red herri

    Oh Brien, yes please do tell me what your Vitamin D levels are before you take it. I'd be so interested in knowing. Yes, I use to live in the pan-handle of Florida in the mid-70's and I never went outside in the sun as the heat/humidity was too intense for me. I stayed inside in air conditioning all the time. I was probably low in Vit D all these years as well. I was always tired...dragging through my days. Could it have been Vit D levels? Hard to say.

    So glad you believe me. Even if Vit D only works for me it is worth investigating as you said. Yes sleep apnea is the pits but after one year on the C-Pap I couldn't take it anymore. I did lots of research and found 25 different appliances and studied each one. I decided to try one device that appeared easy to use and discreet, just see how it worked for me. I put my husband on duty to listen! It was called a Aveo TSD. It took about two months to get use to it. I put it on when I feel ready to fall asleep. My research showed that 90% of sleep apnea is just the tongue falling back in the throat. The Aveo TSD cost 1/10th of the cost of a C-Pap. No I never found out what type of sleep apnea I had. The Dr just said I had severe sleep apnea after testing. The Aveo TSD is like a pacifier that holds the tongue from slipping back. It worked for me! What a difference not using the C-Pap. Its hard carrying it on a trip. Most people stop using C-Pap after a few weeks. Its so cumbersom. The AVEO TSD worked as I had it tested twice with my Dr. I had no sleep apnea with the AVEO TSD and my husband said I was quiet at night and breathed ok. Its so discreet. I've had nurses, when I've gone in for surgeries, who took my medical history before surgery ask me where I got the Aveo TSD, as they wanted to purchase one for their husband and themselves and family members. I think that sleep apnea over years could possible contribute to the onset of LPR. Hard to say. It could be a variety of reasons that come together. But I keep coming back to young people of all ages having LPR...what is the common denominator?

    Yes, when I went to graduate school I was considered the 'master of research' by my professors. Lucky for me that I like following the pieces of the puzzle and trying to put it together. I'm so curious if Vit D helps other people with LPR improve somewhat. Do keep in touch and thank you for writing. Its nice finding other LPR patients and that one is not the only person with LPR. My current Drs have never had a patient with LPR. They've never even heard of LPR. And they don't seem interested in learning about it or sharing any information. Having LPR is like falling into a black hole in space and Drs don't appear inclined to do research on the subject nor do they share much so that the patient can understand what they have. Look forward to everyone's feedback and what is happening as you try new treatments on yourself! Best wishes on success.

     
    Old 12-26-2011, 11:40 PM   #44
    BrienE
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    Re: A last point of view for the time being: LPR being recently revised as red herri

    thanks for Avio DST info, I have seen something like this on the web.. seems worth it to look deeper and another case of seeing something work well for you, very good.

     
    Old 12-27-2011, 02:15 AM   #45
    JudeNZ
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    Join Date: Nov 2003
    Location: Hamilton, New Zealand
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    Re: A last point of view for the time being: LPR being recently revised as red herri

    Hi EEW,

    I think you're an absolute legend. Like you, I"m very interested in searching out some natural answers.

    Why does this suddenly occur? What causes it? Some say stress some say diet, some say both. When I told my Dr I'd taken one of the tetracycline years ago just before developing LPR, she replied, "Oh yes they can do it." Grrr i thought, then why don't they tell you that before they dish them out.

    Why does my sphincter suddenly weaken? Can I strengthen it? Why can some people eat certain foods that others can't? It seems to me there are no answers, so people do exactly what you're doing. Try and heal yourself.

    I've just started on Manuka honey, and if it's successful in any way I'll post a new thread. I started it 2 days before Christmas, and was amazed at the difference, and how my symptoms had reduced. Then Christmas day came and I ate 'bad foods' and I'm back to square one. Apparently ti can take 2 - 6 months for it to heal your damaged parts, but if you read about it, people have some amazing success for not only LPR and GERD but also other complaints such as colitis. It does have pretty incredible healing powers, and as I live in New Zealand I can go buy a jar of the proper good healing stuff from the supermarket.

    The other thing I've been doing is juicing carrots, and every morning have a carrot and apple juice which i also find soothing to my throat.

    I keep going back to why did this suddenly happen and get so much worse after years of LPR, why? For me I keep tying it into having had the bronchitis, and all the horrendous throat clearing I did, so like you I'm following that path to see if I can heal and help myself.

    Good luck ot us all out there.

    Jude

     
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