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  • A last point of view for the time being: LPR being recently revised as red herring

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    Old 12-28-2011, 09:35 AM   #61
    noni2
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    Re: A last point of view for the time being: LPR being recently revised as red herri

    Yes I do have health insurance as for the vitamin D I get 800iu with my calcium, which I just started taking regularly. Last February I had my B vitamin checked and I was so high in it, I stopped taking it. I had been taking it for a long time (B complex I think can't remember). The nexium I take is only 40mg. once a day. I will be going for my annual bloodwork in February and will have my D checked. Also I have heard on this board some things about omega fish oil, any info would be appreciated.

     
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    Old 12-28-2011, 10:30 AM   #62
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    Re: A last point of view for the time being: LPR being recently revised as red herri

    Good idea Jude. It would really give someone who has exhausted all other therapies something to try that looks like it works! Very good find!

     
    Old 12-28-2011, 03:18 PM   #63
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    Re: A last point of view for the time being: LPR being recently revised as red herri

    Quote:
    Originally Posted by noni2 View Post
    Yes I do have health insurance as for the vitamin D I get 800iu with my calcium, which I just started taking regularly. Last February I had my B vitamin checked and I was so high in it, I stopped taking it. I had been taking it for a long time (B complex I think can't remember). The nexium I take is only 40mg. once a day. I will be going for my annual bloodwork in February and will have my D checked. Also I have heard on this board some things about omega fish oil, any info would be appreciated.
    Hi Noni, on the omega fish oil the last regional GI Dr I saw told me my "LPR" problem was a "vegal nerve" problem (which is a nuerological problem) that would take 10 years for science to find a way to deal with it. I felt I did not have 10 years to wait so I went on the web and did researches and found literature that indicated emerging opinions that omega fish oil is promising in helping nerve deterioration. I put myself on 2,000 units of omega fish oil and together with Vit D I continue to feel better and better. As added interesting information it appears that fish oil keeps our DNA replicating properly. I read that the western diet has a 20:1 ratio of vegetable oils to fish oils in our diet and it plain and simple is the cause for higher cancer rates. The ratio should be 1:1. Asian countries have a 3:1 ratio. So it indicates that we could cut cancers rates by quite a bit just by cutting down on Omega 6 oils (vegetable oils) and increasing fish oil. It helps the DNA strands stay elongated which helps cancer from starting. I read it heals over several years nerves like the vagel nerve, which my Dr. said is the problem causing my searing throat problem. I've learned quite a bit from having LPR and researching what improves the biological functions of the body and cell functions. I don't have a science back ground so this is all new to me. I realize how much jeopardy I put my health in by not being well read on new and emerging science.

     
    Old 12-28-2011, 06:27 PM   #64
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    Re: A last point of view for the time being: LPR being recently revised as red herri

    I wonder about the vagal nerve problem,but let me ask you this if that were my problem would my vocal cords have looked red and inflammed also (like they did)? Is it that it ends up with a nerve problem after the initial imflammation problem? Hope I am making some kind of sense.

     
    Old 12-28-2011, 06:57 PM   #65
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    Re: A last point of view for the time being: LPR being recently revised as red herri

    Eew, that sounds quite depressing imagining him telling you ten years for any progress on the matter... I feel as well, why live with something I know deep down somehow, I shouldn't have to. I really can picture the absurdity of being told to live with it as a motivation and I appreciate everything that feistiness has brought you.

    My Vit D update is I started today on the store stuff -- 4k i.u earlier today with some avocado, and evening dinner with the small meat portion for the fat, for a total of 8k. I need to figure out the 'taking with fat' aspect as I am trying to cut hugely down on animal products.

    I would say I am interested in the Vit D as much if not even more for the business of D deficiency behind phenomenal fatigue. A knock out punch to "LPR" symptoms as well as the fatigue, sleep issues and to wash and wax my car, and walk the dog would be nice.

    I'm a little concerned about the mega dose @ 50,000 i.u. just seems a bit scary. Also wonder frequently if I am assimilating food properly lately. I might try it next week if it appears I can handle the daily 8k.

     
    Old 12-28-2011, 10:48 PM   #66
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    Re: A last point of view for the time being: LPR being recently revised as red herri

    Quote:
    Originally Posted by noni2 View Post
    I wonder about the vagal nerve problem,but let me ask you this if that were my problem would my vocal cords have looked red and inflammed also (like they did)? Is it that it ends up with a nerve problem after the initial imflammation problem? Hope I am making some kind of sense.
    Yes, you are making sense with your question Noni. LPR eminates from the both the LES & UES spincters/muscles not closing off the stomach. That's the first problem. And yes, when acid vapor/gas/droplets are reaching your throat it will most definitely burn everything in your throat including vocal cords, lungs, ears, sinuses, mouth, tongue. Depending how far the acid reaches and how much acid is escaping. I too couldn't talk more than a few seconds for the 2 years as my condition deteriorated. The regional GI Dr seemed to think there is an additional problem with me which is the vagel nerve. If it is, I'm determined to address it and it appears that omega 3 fish oil does so many good things in your body and the literature indicates it can help heal nerve system in the body over time. Its natural and I have nothing to lose by trying it. All I know is that I'm improving every week/month that passes and no medication or surgery worked. Well, let me qualify that...my acid score after surgery went from a 40 to a .4, so that does show great improvement but I came out of surgery 10x worse and my ENT confirmed that in my clincal exam. I was burnt to a crisp 5 months after sugery. They didn't know what to do for me. It was a real night mare. My Drs would just stare at me and say they believed me but there was no more they could do for me. I was determined to exhaust every avenue in my research to dig myself out of the LPR twlight zone. And I'm determined to leave a paper trail that will last for years on these blogs when we are no longer blogging to help other people who are desperate for answers in the future. I don't really understand how it works. I can only share what appears to be working but it is only anecdotal. It is not proven, only what I have been able to piece together for myself. I do know that Vit D is a hormone and among so many other things it does in our body, it improves muscle tone. And my reasoning is that the LES/UES are muscles and that maybe it can stengthen them into closing and opening properly. Vit D does improve muscle tone. And emerging research points in the direction of fish oil to help neurologial problems. I'm getting better and can't quite believe it. I just have to share this incase it can help someone else. Please keep asking your questions. They are all good Noni. LPR takes along time to figure out what are the mechinisms at play. The Drs can't help us so we just have to keep connecting the dots for ourselves. I also think about someone who has mild LPR and what if they don't get enough Vit D. Lets say they go into winter months and we all know that we don't get as much sun in the winter months. And then what if they get a virus during the winter months. They get worse with LPR etc etc. It can get progressive. I suspect that is what happened in my case. I avoided the sun for 40 years, I didn't take enough Vit D, and I laid in bed because of excruciating pain and deteriorated in every way. I couldn't eat, was on PPIs that drain you of all you essential nutrients, went through surgery and got progressively worse from not being able to get out of bed. I have read of people all over the world with LPR and they just waste away when LPR is severe. Drs never think of trying Vit D on them. I will be real interested in seeing if Brien's LPR improves as he begins his Vit D treatment. It may take 6 months but I suspect he will improve. Just a hunch. And he will have more energy and feel stronger. There is definitly a connection with Vit D as LPR sufferers range from babies, children, young adults to older people like me. The common denominator points to the hormone D from the sun.

    Last edited by eew; 12-29-2011 at 12:16 AM.

     
    Old 12-28-2011, 11:35 PM   #67
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    Re: A last point of view for the time being: LPR being recently revised as red herri

    Quote:
    Originally Posted by BrienE View Post
    Eew, that sounds quite depressing imagining him telling you ten years for any progress on the matter... I feel as well, why live with something I know deep down somehow, I shouldn't have to. I really can picture the absurdity of being told to live with it as a motivation and I appreciate everything that feistiness has brought you.

    My Vit D update is I started today on the store stuff -- 4k i.u earlier today with some avocado, and evening dinner with the small meat portion for the fat, for a total of 8k. I need to figure out the 'taking with fat' aspect as I am trying to cut hugely down on animal products.

    I would say I am interested in the Vit D as much if not even more for the business of D deficiency behind phenomenal fatigue. A knock out punch to "LPR" symptoms as well as the fatigue, sleep issues and to wash and wax my car, and walk the dog would be nice.

    I'm a little concerned about the mega dose @ 50,000 i.u. just seems a bit scary. Also wonder frequently if I am assimilating food properly lately. I might try it next week if it appears I can handle the daily 8k.
    Yes, Brien, it was depressing. And Drs just don't talk to their patients. If a pharmacutical pill or surgery doesn't work they just say there is nothing more that can be done and your watching your precious life go down the drain. Frankly it made me angry. And even when they told me they had never seen a case of LPR before I knew something was wrong with those statements. LPR is a very common problem that is not recognised by Drs. They call it asthma, or sinus problems. I believe there are thousands of people walking around for decades thinking they have sinus problems or asthma and its LPR. They are swallowing medications that aren't working for them. I had to drop two primary Drs who kept getting angry with me and telling me I had allergies. When I politely told them I was in horrible head, throat, ear, neck pain the 2nd primary told me angrily and I quote exactly, "...like I said, keep taking the Flonase and if the pain is not gone in two months then frankly there is not much more we can do for you." She abruptly left the room. I was so devasted as I knew something was really wrong with me. I humbly wrote her two weeks later in horrific pain and said, "Dr, you indicated in my last visit that you thought I had allergies. I'm still in horrible pain. Would you give me a referral to an allergy specialist?" Without comment she gave me the referral. Why do I have to ask for a referral when I've been going in for 5 months with horrible pain. Why wouldn't a primary Dr automatically give me a referral. We pay good money for Drs to watch over our health. Not brush us off. I can't get over how slip shot medical care is. In my case I've had been paying since 1983 for my health care and I can't get over how patients are treated. I'm educated and know how to ask questions and I still got the brush off. What happens to patients when they accept everything the Dr says. When I finally got in the room with the allergy specialist I was beside myself with pain after 5 long grueling months and full of anxiety over being brushed off constantly. The allergy specialist just listened. Asked me to get up on the exam table. Examined my throat and head throat thoroughly in 3 mintues said, "...you don't have allergies, you have silent acid reflux." I was stunned as I couldn't wrap my mind around what he was saying. I suspect he knew I would continue to go through a revolving door with other Drs and he gave me a battery of allergy tests, a sinus scan, a throat culture etc and every test came out negative. But no Vit D test. It should be the first thing on the list when someone is sick. But no Dr is trained to do it! Its not part of the health system prodical. The allergist did try to stop any other Dr from saying it was allergies. I then had to go back to the primary Dr for treatment. As you can guess I dropped the 2nd primary Dr the instant I got home and got a 3rd primary. She was nice but she had to follow their algorythems in treatment. She treated me for HPylori. No Vit D test was given. I got worse and worse. Took two different antibiotics at the same time and got worse and worse. Then there were the series of different low level PPIs, then the heavy duty hitters like Nexium... my dosage got to 80 mg a day and I got worse and worse. I got pnuemonia from the Nexium as it shut down my immune system (the stomach acid is 50% of your immune system). A difficult problem when their trying to shut down your proton pumps in your stomach to stop the acid they are also shutting down 1/2 of your immune system. That's when they said they were sending me to surgery as nothing worked on me. Until this summer, when I made my own personal request for a Vit D test, no Dr in my entire life has ever done a Vit D test on me. I personally think that is outragious for all the money we pay in premiums. It should be one of the most basic tests you get when you go in for illnesses or a physical. It deeply bothers me that a great percentage of the population is suffering from various illness that Vit D could have either prevented or improve their condition. The suffering is what bothers me. Its so unnecessary.
    Brien, so glad you have started your Vit D dosage. You will not be on the high dosage for too long. Your body really needs the Vit D. Your wide open for even more deterioration of your health until you can get your D levels up. Your levels are so low its scary. Its good you take your D with your meals. Sounds like your eating good to me. So happy you got yourself tested. Try to sit in the sun every day for at least 20 minutes. So important. You will begin to feel better real soon. And I suspect your LPR will improve. So proud of you.

    Last edited by eew; 12-29-2011 at 12:19 AM.

     
    Old 12-29-2011, 10:27 AM   #68
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    Re: A last point of view for the time being: LPR being recently revised as red herri

    Also, Brien, check with your Dr on what a male should be taking in Calcium every day. Vit D helps regulate Calcium and moves it properly. I take about 1,200 of calcium a day. Its important that Calcium levels are considered when your taking D.

     
    Old 12-29-2011, 11:50 AM   #69
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    Re: A last point of view for the time being: LPR being recently revised as red herri

    Indeed, I am making sure I have calcium and magnesium covered, I am also told vitamin a can get a little wonky with D supps. Eew, part of my research on Vit D is going places beyond "acid reflux/ LPR" issues.

    All best -- Brien

    Last edited by moderator2; 12-29-2011 at 01:55 PM. Reason: please do not post a commercial website, for any reason.

     
    Old 12-29-2011, 12:02 PM   #70
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    Re: A last point of view for the time being: LPR being recently revised as red herri

    A thought - re magnesium. I've taken it on and off for years since perimenopause hit 10 years ago. The thing it really helped me with was the restless and twtichy legs many women get at that time. When I stopped taking it, the twitching returned. I've not takne it for a few months now, when I thought about starting it again I hesitated as it is a muscle relaxant -

    Don't you get so confused with all of this LPR.
    Take the manuka honey, then the carrot juice, then the herbalist's potion alternated with the slippery elm and probiotics every 4 days. The supplements, apple cider vinegar, the fish oil with Vit D, and let's not forget the digestive enzymes. Whew it exhausts me thinking about it all.....

    Jude

     
    Old 12-29-2011, 12:31 PM   #71
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    Re: A last point of view for the time being: LPR being recently revised as red herri

    Whew it exhausts me thinking about it all.....

    Jude[/QUOTE]

    I'm as guilty as anyone as far as keeping a ridiculously packed table and shelf full of supplements. If we are are own best advocates, then at a time and place with the right guidance I do see a case for taking a variety of stuff but -- don't you stop and think about it too... hey, what are we doing! I also have found good in declaring a moratorium on pills for awhile and flushing out.

     
    Old 12-29-2011, 02:03 PM   #72
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    Re: A last point of view for the time being: LPR being recently revised as red herri

    Very good Brien! That's where I am too. I'm learning so much. LPR in a strange way brought me to a whole new understanding of how our biological processes work. I have my whole family on Vit D and fish oil and I'm adding to my new vitamin routine the following: Ubiquinol CoQH and R-Alpha Lipoic Acid(stabiliezed RALA). New and emerging research indicates they really do great things inside our cells. Happy New Year everyone. I wish you all good health and that LPR will fade away for you all.

     
    Old 12-29-2011, 03:41 PM   #73
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    Re: A last point of view for the time being: LPR being recently revised as red herri

    Thank you for all your info. I think I will try the fish oil and vitamin D Although I am wondering if I should have my level checked first. It sounds like you have really had a time with this. I sometimes wonder if mine will ever be gone, but it is so so much better (many symptoms I hardly have anymore), but I want it to be completely normal, anyway not giving up. Thanks, hope you have a great new year.

     
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    Old 12-29-2011, 06:02 PM   #74
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    Re: A last point of view for the time being: LPR being recently revised as red herri

    You are so very welcome Noni. I do agree with you. Its really a good idea to see where you are at first by taking the Vit D lab test before you start taking it. I would be very interested in knowing your levels when you go in and then to know how much D you plan to take. Yes, I do think that the two most important two to take is Vit D and omega fish oil if you take nothing else. Noni how did you get your LPR to fade away? Was it diet alone? Yes, I can really relate with Jude and Brien that at the high point of LPR I was on so many medications to sooth my searing throat and none of them did one thing. It was dizzying. Now that I'm down to just D drops and omega fish and I'm so much better and enjoying uncomplicated life. The burden of worrying about everything I ate and wether it would burn me has lifted. It was horrible when I had to travel. Not only was I in horrible pain and worked not to not show it or become burden to anyone, but I had to drag my spring water with me and not be able to eat anything at the restaurant. My food list was limited to apples and non-fat yogurt. Everything use to burn me. I'm having the most wonderful holiday season eating most things along with all my family and guests. And going to the restaurant is a joy as the menu is now open to me to enjoy. I'm so appreciative of finding something that worked.

    Last edited by eew; 12-29-2011 at 06:06 PM.

     
    Old 12-29-2011, 06:23 PM   #75
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    Re: A last point of view for the time being: LPR being recently revised as red herri

    that is so wonderful for you eew - a lot of pain and hard times have preceeded your success.

    I also would like to know what Noni has done to ease her symptoms.

    Any little thing helps. I tried the gagrling with a small amount of baking soda yesterday and I felt that really helped.

    It's not too bad today, but i tired of thinkign about what I have eaten or not eaten that increases or decreases symptoms. But I will certainly continue with the fish oil with Vit d D. Now I just need the sun to come out so I can sit in it for 15 mins a day. It's summer and it's raining - darn!

    Jude

     
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