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  • Rumination Syndrome

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    Old 02-24-2014, 08:19 PM   #1
    Rubina
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    Rumination Syndrome

    Has anyone heard about this newly discovered painful condition ?

    My son ( age 28) is experiencing the same for the last 2-3 years and no doctor/specialist seems to help him in this issue.
    I am requesting if anyone can suggest or help me in this issue I will be grateful .

    Last edited by Administrator; 02-24-2014 at 09:08 PM.

     
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    Old 02-25-2014, 11:21 AM   #2
    Rubina
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    Re: Rumination Syndrome

    Thats all information I get from internet , even some of the physicians are unaware of this newly discovered condition :

    " What is Rumination Syndrome?
    Rumination Syndrome is a condition that occurs when people constantly regurgitate and either vomit or re-swallow their food or drink soon after eating. Although the syndrome was first described many years ago as occurring in young children with developmental disabilities, it is now recognized that the syndrome often occurs in children and adolescents with intact cognitive skills.

    Even though more professionals are aware of rumination syndrome today, this condition still remains infrequent, poorly understood, and often misdiagnosed. Rumination syndrome frequently is confused with other gastrointestinal problems (for example, gastroparesis or gastroesophageal reflux disease) or eating disorders.

    The diagnosis of rumination disorder does not require any diagnostic testing. There are specific diagnostic criteria that exist that help professionals make the diagnosis. The symptoms of rumination syndrome are:

    Rome III Criteria for Adolescent Rumination Syndrome

    At least a two-month history of repeated painless regurgitation and re-chewing or expulsion of food
    The behavior begins soon after ingestion of a meal
    The behavior does not occur during sleep
    There is no retching
    Symptoms do not respond to standard treatment for gastroesophageal reflux (GERD).
    No evidence of an inflammatory, anatomic, metabolic or neoplastic process considered likely to be an explanation for the subject’s symptoms
    While these symptoms are common to patients with rumination syndrome, each patient with rumination syndrome has a different presentation. In other words, the symptoms can look quite different person to person. While some patients vomit immediately after eating even one bite of food, others are able to eat a good deal of food before the rumination starts. Some patients feel pain with eating. Others feel nausea. Some patients do not have any sensations before the rumination begins.

    Although we do not know exactly how rumination syndrome starts, medical histories of patients with the syndrome suggests that the symptoms often begin with some “triggering” event. This can be a viral infection, a GI disease, or even stress happening in the patient’s life. After this infection, event, or stressor has gone away, the vomiting behavior remains in place, almost similar to a “tic.” As a consequence, when food or liquid enters the stomach, the body has learned a new behavior – contraction of the abdominal muscles – that results in the food or fluid coming back up.

    What do we mean by “stress”? Stress can be defined in many ways. Stress can be physical, emotional or mental. Most people describe the feeling of stress as “strain” or “tension.” There are several different types of stress that all people experience.

    Fatigue and overwork: Examples include being involved in activities, taking challenging classes, having poor sleep habits, taking on leadership roles, working a job while going to school.
    Environmental: This type of stress refers to things going on around you in your life. This may include being teased or bullied, pain, family members arguing, family problems, multiple doctor visits, missing school, disagreements with friends, breakups, or living at two parents’ homes.
    Internal: This type of stress refers to stress we bring on ourselves due to the way we perceive or see things. This may include things like having a negative attitude, being a perfectionist, trying to please everyone, having low self-esteem, keeping your feelings inside, criticizing yourself, or having unrealistic expectations for yourself and others.
    How is Rumination Syndrome Treated?
    Several studies of the treatment of rumination syndrome have produced some very positive and exciting findings. There seem to be many important components to the treatment of this condition.

    Education. Families who understand the diagnosis, do not worry that perhaps another condition is present, and who take an active part in treatment tend to make the most progress in treatment.
    Undoing the newly learned “habit.” Treatment includes focusing on becoming more aware of what your abdominal muscles are doing, learning new behaviors for your abdominal muscles instead of tightening, and keeping your body relaxed during mealtimes.
    Retraining your stomach to hold food again. Patients benefit from starting very slowly and then gradually increasing their stomach’s ability to tolerate greater food volumes.
    Teaching you how to regulate your own nervous system.
    Teaching you how to manage stress and its impact on your body. "

    -------------------------------------------------------

    The reason I wanted to post about Rumination Syndrome is because I could'nt find any topic including this condition or any information about it .

    Last edited by Rubina; 02-25-2014 at 11:23 AM.

     
    Old 02-26-2014, 10:37 AM   #3
    111222
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    Re: Rumination Syndrome

    there is a treatment facility at children's hospital of Philadelphia. Unfortunately they won't treat my son who is 21. funny thing is they misdiagnosed him at age 7 with reflux. I have read that they treat adults at the mayo clinic in Jacksonville Florida I did have an appointment for my son but because of other family issues and financial issues I have been unable to travel there. the method they use is called diaphramatic breathing and it is on the Internet. we tried it but my son has autism as well and it was hard for him to get it.

    Last edited by 111222; 02-26-2014 at 10:44 AM. Reason: Spelling errors

     
    Old 02-26-2014, 11:16 AM   #4
    Rubina
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    Re: Rumination Syndrome

    Quote:
    Originally Posted by 111222 View Post
    there is a treatment facility at children's hospital of Philadelphia. Unfortunately they won't treat my son who is 21. funny thing is they misdiagnosed him at age 7 with reflux. I have read that they treat adults at the mayo clinic in Jacksonville Florida I did have an appointment for my son but because of other family issues and financial issues I have been unable to travel there. the method they use is called diaphramatic breathing and it is on the Internet. we tried it but my son has autism as well and it was hard for him to get it.
    Thanks for the response ...

    You are right I've read and tried to contact children's hospital of Philadelphia or Mayo clinic but due to some issues unable to travel as well.

    I heard breathing exercises are effective in this condition and you can consult some Yoga instructors in your city but the problem with your son is autism , still you can try consulting some yoga centres.
    My son has just joined one for only breathing exercises, lets hope for the best and pray that scientists could come up with some new research to cure this condition.

     
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