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  • My Accutane Experience

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    Old 01-09-2011, 04:17 PM   #1
    LovelyC
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    My Accutane Experience

    Accutane Experience


    --------------------------------------------------------------------------------

    I have struggled with acne since I was 13 years old. Over the years it has started on my chest and back aswell. (I am now 24) About 5 years ago I got put on Minocycline which worked wonders until my doctor suggested around 2 years later that I take a break from it as it is a very intense drug. Then within a year of being off the medication the acne slowly started coming back. I started getting cystic acne on my face which is VERY painful and frustrating. At this time I had been visiting steam rooms at the pools around home and over a good 5 month period noticed my back and chest getting tiny bumps all over. I just figured it was a reaction to something and continued on with life. The bumps kept getting more big and more red and seemed to cluster the most on my upper back near my shoulders. My chest had them everywhere. I took it as my acne coming back swinging so I went to my doctor and asked that she put me back on Minocycline. After 2 months the bumps only got worse so we tried another hefty acne medication. (Sorry forgot the name) This had the same effect on my skin. My doctor said it could be a yeast infection of the skin a.k.a "Folliculitis." Having been hanging out in steam rooms... hot, moist areas where bacteria grows best we figured this is where I picked it up. I tried half a dozen percribed creams for yeast infections, even monistat on my back and chest which definetly brought the redness down but that's it. I tried dandruff shampoos on my skin such as "Nizoral" and "Selsun Blue" to try and kill the yeast but had no luck. Finally after a year my doctor gave up and sent me to s dermatologist specialist. He was sure it was just bad acne but he sent in culture from my back to make sure. The results showed acne and folliculitis. So we had our verdict and my last and final option... ACCUTANE!

    I read many stories about experiences using accutane and decided to keep record of my own experience to help others who are thinking of using this medication or are currently on it. As I continue to use it I will add to my blog.

    Month 1-----

    About a week in I got a real bad nose bleed that lasted a good 10 minutes. My face started peeling like crazy, especially my chin and nose. I constantly have to load lotion onto my face. Coverup is not an option unfortunately as much as I want to coverup acne on my face it's impossible. The second you put makeup on, skin dries out and starts to peel. Corner of lips are cracked right open. You know the feeling after eating a freezie when you slice the corners of your mouth open? well, that's what I was experiencing only it didn't go away, every day I have to constantly put a huge glob of vaseline on the corners of my mouth to feel relief. Yes, I looked like a fool but I didn't care. It was better then feeling the pain. Talking and eating hurt so I would have to have vaseline handy at all times. At night I put "Prevex" ( a lotion for extremely dry skin) on my lips and in the corners of my mouth. I did this at night because the lotion is white and it would stay on till morning. I'm shedding hair like a cat! It's everywhere!!! I really hope I don't go bald! I Have never been so tired in my life! I have ZERO energy. My body aches, mostly my back it feels like I've done the workout of a lifetime. Joints hurt so bad especially my legs. Usually I workout every single day but I couldn't. It's impossible at this point. I feel like I got hit by a truck...
    On the bright side though, within the first 2 weeks of using accutane my chest and back cleared up! So all the side affects are worth it... right?

    Month 2-----

    Still very tired with little to no energy. Face is more dry then ever and peeling intensely. Lips still dry and cracked open on sides. My eyes have become extremely dry which is painful and uncomfortable. Started using "Refresh tears" which is exremely helpful. My back pain has become unbearable! It burns like crazy in my middle and lower back both when I sit and stand, sitting being the worse of the two. Laying on my back was the only way to ease the burning. I started seeing a chiropractor. I was told my back was severely inflamed. I have regular visits now to help tame the pain. I also ice it regularly which helps. I Had one nose bleed. Right nostril is also getting very dry, vaseline helps. Started having chest pains on right side. Whenever I'd move my upper body or take a deep breath. Felt like "Chostocondritis" (inflamation of the chest wall) I seem to have chronic chostocondritis. As Ive had it many times in the past. Seems to come and go, sometimes it gets worse and not better and I have to go on strong anti-inflamatories to get rid of it for awhile. I went to a walk-in and got tested and X-rays to make sure the accutane wasn't doing damage. Results proved healthy and was put on "Naproxen" taken 3x a day. After 6 days on the meds the chest pains were gone. My face is looking better no more cystic acne popping up. My chin is breaking out pretty bad though. Chest and back still clear.

    Month 3-----

    Had one nose bleed again. Right nostril still very dry, putting vaseline in often. Hair isn't falling out in large masses anymore. Face isn't as dry or peeling as bad. Noticed that little scratches and scrapes on skin take FOREVER to heal! Skin is definetly thinning at this point. I burn in the sun VERY easily! Still quite tired and donot have my energy back but my back no longer burns and my body and joints no longer ache. Corner of my lips finally healed, no more open cracks and no more gobs of vaseline on my mouth, wahoo!! Face looks great, I get a pimple here and there. Back and chest still clear! Things are looking up.

    Month 4-----

    I put lotion on once in the morning and once before bed and I see no more dryness and no more peeling. Right nostril still very dry, because of this bleeds often. Vaseline is still being used for relief. Been having chest pains on the right side on and off again. Hasn't gotten to the point of "uncomfortable enough to see a doc" it just comes and goes. Annoying if anything. Still not sure if it's a side affect of accutane or if it is just "chostocondritis." I guess I'll know if it continues after I'm off theaccutane. My face is clear!!! Havent had any breakouts lately. Eyes aren't dry anymore. Tiredness still holds strong though, energy isn't back to normal yet but seems to be coming back slowly. I can use normal lip chap on my lips now as I normally would if I weren't on accutane. No more vaseline on these lips!

    Month 5 & 6 -----

    Lipchap is needed all the time. SO tired with zero energy! My forehead and outside corners of mouth have become dry and peeling. Walls of nostrils (especially the right one) dry out and bleed all the time!! Very annoying, sometimes painful if the blood dries up and skin gets peeled off. Still get a minor pimple here or there but am very very happy with my skin. Joints hurt more then ever. Going from a sitting position to standing feels like Im 50 years older then I am all joints are stiff. Body aches. Eyes are really dry and hurt alot by bedtime and also first thing in the morning. Drops are heaven! Top eyelids are also very swollen in the morning. Can't wait until this is over....

    Month 7 -----

    Stay tuned....

     
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    Old 01-27-2011, 07:07 PM   #2
    ukladybird
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    Re: My Accutane Experience

    Holy cow........it seems you are going through so much hang in there I hope you are doing well??? some of those things you are describing do not sound fun a tall

    I have had acne In my before it was actually when I was pregnant it was AWFUL remember every day crying looking at the spots appear bright red and angry!!! so I understand

    I posted a thread tonight as I am a PICKER and Its got outta control a bit.......and I regret so much time ive wasted in the mirror looking and trying to find the smallest thing to squeeze or playing with the Cyst like Acne (which are painful) sometimes they take weeks and week to go down leaving a scar....that is something I have gotta kick........
    I am using Proactiv at the moment.......not sure if its helping. it stinks....and my face is dry etc but people say takes weeks for skin to react...and honestly I am tired of trying things........wish I had no ACNE I hope if I can stop playing my face will start to get better from that alone.....I know its not good to pop zits but still DO IT..aghhhhh lol
    I am 35 you would think Id know better......my friend said just STOP and its SO HARD;....I dont get what I even get outta doing it, nothing but a red sore face and often scabs that I cant cover with Makeup........so silly............

    I hope your face continues too heal.......will check in soon

     
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    Old 01-28-2011, 05:26 PM   #3
    LovelyC
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    Re: My Accutane Experience

    Yes, stop picking! lol. And whatever you do donot go on Accutane. I just found out now things that I didn't know before I went on it. It does horrible things to your health down the line so I have completely screwed my body up by being on this. Im so scared my symptoms wont go away when Ive completed my course as this happens often, people have to learn to live with them for the rest of their lives and I am so not up for that!! And Im worried about all the many health issues I am going to have 10 to 20 to 30+ years down the line.... I have yet to hear one story of someone who went on Accutane and 5+ years later didn't regret going on it because they are now suffering...

    I wouldn't have gone on Accutane if I didn't get "Follicolitis" all over my chest and back. Which is what pee's me off because if I didn't keep going to the steam room at the pool and laying down on the tiles I wouldn't be dealing with this nonsense.

     
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    Old 01-28-2011, 07:01 PM   #4
    ukladybird
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    Re: My Accutane Experience

    I just popped a zit but it was ready to go and feels better....I was picking like any tiny thing......I am still trying to stop that urge.....I feel bad I did pop the one I had but it was like a bubble.......lol.....gross I know..........but IM REALLY TRYING TO LEAVE IT.....and havnt picked anything else.......listen to me sound like a little kid waiting to get told off by mum and dad lol............

    I never used to have such awful skin when I lived in England had the odd one a month but nothing like this its not everywhere mostly Chin area few head.....or by nose......

    Im on the Proactiv and not sure for me if its helping or not..only been a month.......gonna use the bottles as I have them.....Im just tired of trying to find something that works..
    Im 35 so my skin is older lol..........I am a sun queen also........thats when my skin is shiny glowy happy.......I hope I can get that glow back soon

    are you still doing the Accutane? hows your skin now? good to get some a reply I posted on here people look but dont respond? whats the point ? lol

    have a good weekend

     
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    Old 02-09-2011, 01:37 AM   #5
    first there89
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    Re: My Accutane Experience

    im 21, in highschool i used some stuff that gave you acne.....I had it horrible on my back chest n face. it messed with me but not to bad women tend to care more lol but i tried everything saw 3 different dermo's tried popping them laser therapy, sun therapy, creams, pills, everything **** would work for like 2 weeks then back again. switched once more then i got put on accutane BOOM i havent had a damn pimple since im still dry to this day but for me using lotion after a shower isnt a big deal comparing to my acne yes it cant do some harm to your body but nothing it cant handle. everyone is gonna die may aswell look good? lol

     
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    Old 02-27-2011, 11:55 AM   #6
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    Re: My Accutane Experience

    Hi, i started roaccutane last year, it was the best thing i ever did..


    My acne started around 5 years ago, however it wasn't that bad, only the odd blackhead every so often.. Starting Jan 2009 my acne became rather bad, and i started to get really depressed about it.. (Probably making it worse)
    It was mostly just on my chin area, so after seeing my GP he prescribed Dianette for me.
    My skin was sore, with lumps and bumps, very sore to touch, it was swollen..

    I could not go on with this, i didn't want to be on Dianette, because it made it much worse, and i hated myself.


    The GP then prescribed Oxytetracycline, that was great compared to everything else i had tried.. Finally something was working. My acne became much better, and i wasn't getting hardly any breakouts.
    I did not want to stay on Anti-biotics for ever , and either did my GP, so i came off the Oxytetracycline.
    He then prescribed Doxycycline, but this was making me ill.. I was very dizzy and sick. I could not use them at all..
    They started to not work either...
    I went back to the doctors, and this was finally when the doctor said i could go and see a Dermatologist!
    So i went, he was a very nice chap who looked at me - within 2 seconds he said i had bad acne, and it was not uncommon in people my age ...
    I did not have to ask for it, but he said i could go on Roaccutane, i told him i had heard of it, so he told me all about the side effects etc (also asked me why a lot of people got the impression that the side effects were bad, - because i said to him that i had heard they weren't too good.. lol)
    Was a bit worried about it, but thought to myself, if this makes my acne better, then that's good enough...

    I was on 20mg a day

    I did start to get really dry lips, so i recommend moisturiser for them, i only had 1 nose bleed in the whole 6 months. Once i finished my 6 month course i noticed i had a really really dry nose, which i had to go to my GP to get some cream, then this was fixed within a week or so...
    After 6 months of this, my skin was perfect, from the 4th month, i had no problems with my skin

    One month afterwards i got a few acne spots back, but this time on my cheeks, (not on my chin where i had it before) i was not wanting this to start again so i went straight back to my GP. He gave me Oxytetracycline again (as he said that although it didnt work last time, it could work this time, as now the accutane will have cleared most of it..
    Within 3 days of taking the oxytetracycline my acne had gone.. And its been gone for a long time now, well 2 months..
    But my skin has never been better, and i am ever so glad that i was put on roaccutane

     
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