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Old 01-20-2004, 11:18 AM   #1
Join Date: Jan 2004
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wisdomseeker HB User

I have a 10 year old son with down syndrome and also is adhd.

he is high functioning so as he can read and right on about a 2nd grade level.
hi is in 4th grade now.
my question is has anyone tried or know anyone that has tried this neurofeedback? my main concern is there any possibilties on negitive effects.
just about every nuroligist/peditrician has told me it was a waste of time and money. i am willing to try it if there has been any success at all. but I do not
want to take a chance on making his adhd worse. any comments/exsperience would be helpful. i apoligize for my spelling. he is on adhd meds now.

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Old 01-20-2004, 11:32 AM   #2
* Free ~ Spirit *
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* Free ~ Spirit * HB User
Re: neurofeedback

It won't make his ADHD worse. And it is definantly very helpful for many with ADHD. But with your son having down syndrome it may complicate the treatment or make it ineffective.
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Old 01-26-2004, 09:32 PM   #3
Join Date: Oct 2003
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carrielynn HB User
Re: neurofeedback

For what it's worth, I've had very good success with neurofeedback for my anxiety. (I don't have ADD.)

But I think you need to find a VERY qualified therapist... do research and get recommendations.

There's a new book out (came out this month) called "ADD: The 20-Hour Solution" by Mark Steinberg and Siegfried Othmer that explains how neurofeedback works.

One of the challenges that neurofeedback is facing is the lack of research that would validate it in the eyes of MD's. But I think that will change soon. Also, another thing to consider is that it's not an overnight solution. The above book calls it the "20 hour" solution, but what they mean by that is 40 thirty-minute therapy sessions. So if you're going once a week, that's close to a year of therapy. So when people tell you it's a waste of time and money, it could be because they gave up before they started seeing results. I think it can take 10-20 sessions before noticeable benefits kick in.

I'm not a professional, I'm just a satisfied neurofeedback patient.


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