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    Old 06-13-2004, 06:01 AM   #1
    mise ata ann
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    Neurontin/Benzos....... warnings.

    I have been on neurontin since 1997 and I thought it was helping me too...until i tried to lower my dose or could'nt afford it when I didnt have insurance. I soon realize (and so did the FDA) that all the pain, anxiety, weight gain, short term memory loss, fevers/chills, suicidal thoughts and the list go's on and on, they were all side effects from Neurontin. The side effects were always there but I thought it was me not being able to handle the pain through the years and all the shoulder surgeries, the 4 bulging disc in my neck. I thought it was all me!!! But I WAS WRONG........ I wanted to let Neurontin users know (if you don't already) that there has been a major recall on the drug Neurontin(gabapentin). The company Pfizer Inc. has just pleaded guilty to a two count criminal information charging the company with violating the FDA with misbranding Neurontin. The company has also been sentenced to pay a $240 million criminal fine, amounting to the second largest criminal fine in a health care fraud prosecution. Up to 40 percent of all prescriptions written every year (I personaly think that percentage is low) are for off-lable purposes, but Pfizer's strategic marketing plans has shown that Neurontin was aggressively marketed to treat things not FDA approved. This off-lable promotion is illegal and a company must state its intended use of a drug in a new drug application to the FDA in order to push it for other uses. Pfizer was illegally promoting Neurontin for at least 11 off-lable uses, the illegal corporate creation of a blockbuster drug discussed how pfizer was able to use a loophole to expand the uses of neurontin. This makes me scared and want to think twice about what these drug companies could really be doing to us??? The "illegal and fraudulent promotion scheme" has been putting Neurontin patients at risk for dangerous Neurontin side effects. It has been estimated that 90% of Neurontin's $2.7 Billion in sales during the first year was because of off-lable uses. The company gave doctors extravagant gifts, luxurious vacations, the best cruises and weekends at the wealthest spa's......Just so they can market Neurontin for off-lable uses. I also found out that patients suffering Neurontin side effects may be entitled to legal recourse against the manufacturers/distributors the drug. If Neurontin side effects occurred in a patient who was prescribed Neurontin for an unapproved use, the manufacturers may be especially culpable for negative effects of the drug in non-epileptic patients. Persons with Neurontin side effects should not quit using the drug without first discussing their symptoms with thier doctor. About 3 years ago I contacted PFIZER Inc. and told them I was having trouble paying for (the outragous price-1 month cost me $500- ) Neurontin out of pocket and I didnt have no insurance at the time. I asked her what would happen if I suddenly just stop taking Neurontin and she just about jumped out of the phone and told me not to stop taking it suddenly because it would have harmful effects. She told me even if I didnt have epilepsy or ever had a seizure, that I could have a seizure or even worse I could die!!!! I freaked out.....I still dont know what will happen if someone stops cold turkey! I have heard so many horror storys it's not even funny! I am only telling you all this because I want people to know what's going on before anyone starts or gets to deep it's so hard to quit this drug. I hope i have in NO-WAY offended anyone that is not my intention, I just want people to know what I have found out and to inform you about the Neurontin Lawsuit. Please check for yourselves and read all you can and get the help you ALL are intitled too!!! I hope this helps alot of you and I truly wish you all good luck

    Jammie


    Jammie

    I am so sorry you have had to suffer as a result of use of neurontin. I think that what you say about the big pharmaceuticals and profits is just so obviously true for almost all drugs. Pharmas are not altruistic and their sole motive is profit?
    Unfortunately, the medical profession takes the "goodies" and prescribes? Nowhere more so than in the US of A, where doctors run businesses and charge customers (patients) accordingly. Does a doctor always have the patient's best interest at heart? Could he be swayed by the inducements from a pharma?
    But the profits from xanax alone are staggering.
    Myself - I became dependent on ativan purely as the result of doctor's advice - no abuse, no highs etc - just taken as an aid to sleep.
    As appears now to be happening with neurontin - so is happening now with the benzos. For neurontin - substitute xanax, klonopin......?
    Legislation is changing in Brussels, re the status and prescribing of benzos - restricting the prescribing by doctors and limiting the uses. The "popular" view now seems to be that these benzos should be used (for the purpose for which they were first intended) for anaesthesia and nothing else. Its now stated that benzos (xanax, klonopin, ativan etc ) are not suitable drugs for the treatment of anxiety. Nor should they be used for sleep etc.
    So - perhaps fair to compare the situations?

    Its interesting too that you talk about the symptoms (for which the neurontin is prescribed) actually being caused by the drug. (ie the drugs actually CAUSE the problems) This is absolutely the case with xanax, klonopin etc. It is so well documented online and in medical journals. So often, people who have used xanax, klonopin etc for anxiety, for insomnia ................. discover after tapering off the particular benzo that their anxiety disappears and they sleep like babes. (but his does not happen overnight -long arduous procees of taper first and then healing can start)

    Jamie, thanks for putting up this post. There are few of us around who are willing to put up posts like this - but I believe there is a silent epidemic going on and the amount of human suffering will be staggering.

    I wish you all the very best tapering off the neurontin now - if you have not already done so. You have knowledge - that is more powerful than anything else.
    Have you considered suing your doctor/pharma?

    Mise

     
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    Old 06-13-2004, 08:39 AM   #2
    howard678
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    Re: Neurontin/Benzos....... warnings.

    > Mise

    I may be willing to add their usefulness, for a few days, in alcohol detox (a potentially dangerous scenario) and to counter the effects of certain drug overdoses, particularly those related to stimulants. In the case of the latter, they can be life savers. The only other real choice in these cases are barbituates which carry a much greater risk of respiratory depression. What is your source for your affirmation that benzos were first created to only assist in anethesia? I have read that they were "happy pills" from the start, Librium being the first, and alleged "non-addictive." For that reason (false) and the much less risk of respiratory depression, eg. fatal overdose as compared to barbs (true), they were seen as the ideal replacement for barbs. Having said that, it is agreed whole heartedly that benzos are way out of court for treatment of insomnia and anxiety.

    Staggering profits on Xanax? These have long gone generic and numerous manufacturers make them around the world. They are dirt cheap, but maybe...

    Last edited by howard678; 06-13-2004 at 10:14 AM.

     
    Old 06-13-2004, 10:12 AM   #3
    howard678
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    Re: Neurontin/Benzos....... warnings.

    > Mise

    We already know how much you love us here and the way we do things, but let it be known, there are numerous very useful and life saving drugs that have been developed by American pharmacutical companies, many of which would probably never been developed without profit motivations. The vast majority of us do not believe human beings are naturally bent toward altruism... But we are far from the only culprit here. Benzos and SSRIs are handed out like candy throughout the world, including nations with socialized medicine. And apparently they are not real hard to get from docs in the UK as so many in the support forums live there, are hooked, and are tapering. This in spite of efforts at reform. The 3rd World? Well, generally, you name it, you got it. Money talks. Frankly, your U.S.A bashing is getting old. In spite of our distinct agreements you are beginning to alienate me, others surely as well, and that is not going to help in getting your core message across. I assume that is your primary motive...

     
    Old 06-13-2004, 11:26 AM   #4
    mise ata ann
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    Re: Neurontin/Benzos....... warnings.

    Howard,

    You know I cannot put up site names in here - but if you go looking you will find that Upjohn have made enormous profits from xanax - I believe it is bringing in even more money for its makers than the original billions from valium.
    Look at its own information financial pages. Stock exchange valuations.
    As also with benzos and anaesthesia. But it is well documented in medical journals. You only have to look - it is all there.

    The so called third world - I wont discuss - huge subject and not relevant here - but were wealthy western countries to allow for generics to be used in Africa - then millions of AIDS sufferers would be helped - but the pharmas and the governments insist first on their profits - profits always before lives.

    Candy? For sure - and no-where more obvious than in your country. Just look in here at the cocktails of drugs which people are on - and think it is quite normal. An acceptable way to live? Why should someone who seeks to come off an addictive drug be given a further (often even more addictive) drug or mixture of drugs? It is never ending. It seems to be a matter of - "take these to get you off this drug to which you are addicted and then we will tackle the new addiction later." Put you on a benzo to get you off an opiate? And even give you an amphetamine to help along the way? Why - there are drugs for each and every problem in life. You even have a pill for obesity. You just have to question the values of a society such as this.

    I am not bashing any country when I state this - this is surely a problem throughout the so called civilised western world?

    I have watched so many people in here - trying so hard - and truly wanting to be off drugs - being obstructed by batteries of medics and quasi medics who will prescribe a new drug to fix the old drug. Trading addictions. I think that has to be totally unacceptable. But time and time again you see people willing to believe this is the way to go forward. They are kidding themselves. And I think you have to question the motives of the men writing the scripts.

    Perhaps we were lucky in our own struggles with benzo dependency - for there is no quick fix drug for that! So - we had to taper and deal with the withdrawal. Can this not be applied to these other addiction problems seen in here? If not - then why not? I cannot for the life of me see why not.

    Howard - Nope - I dont seek to alienate you or anyone and so I quote you your own countrymen below:


    “Drug company research and development often serves marketing strategies more than sound science or patients’ safety.”
    JS Cohen MD

    “More than half of the experts on FDA advisory committees have financial relationships with pharmaceutical companies, that will be helped or hurt by their decisions.”USA Today

    “An industry so important to public health and so heavily subsidized and protected by government has social responsibilities that should not be totally overshadowed by its drive for profits.”
    Dr M. Angell New England Journal of Medicine.

    “When doctors irrationally deny or dismiss (patients) honest complaints, the message is clear : Doctors first allegiance is not to their patients but to the medications they prescribe.”Dr JS Cohen.


    “ Increasing numbers of people have been turned into drug addicts through legal prescriptions which perhaps suits the politicians and multi-national bureaucrats as well as the drug companies for it ensures an uncomplaining and docile community which is easy to administer, manage and manipulate...tranquillisers are more addictive than heroin."

    Dr Vernon Coleman

     
    Old 06-13-2004, 07:39 PM   #5
    howard678
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    Re: Neurontin/Benzos....... warnings.

    > Mise

    I take it this is a rhetorical question, all you describe, "cocktails of drugs," etc., etc., hardly specifcally American. Just read the signature lines in the big support forum we speak of, most of whom appear British. Actually, we have the best, and in the end, probably the most effective remedy already in place here. "Profit" motivated class action lawsuits, no caps on settlements, only 7 of 12 jurors to convince, have gotten a number of drugs off the market.

    As to your "facts," these are left quite questionable after your argument for Scottish supremacy in recent, technologically significant inventions. America runs away with this one. Everyone knows it. But it simply makes no sense that Upjohn is currently making a relative killing off a drug that has long gone generic.


    As to Africa, we have sent more aid than anyone else. But we cannot make them use contraceptives, condoms, or end the warefare, power struggles, that were inevitable after the end of colonialization.

    Hate us if you like, is only natural. All the great world empires have been hated in their time. But I will tell you what I told Jennita, you are getting little attention here with your anti-American sentiment and leftist politics. And likely hurting yourself when it comes to forwarding the true purpose of this board, helping individuals with their personal health decisions. In fact, I appear to be about the only one taking the bait. Your tone is also at times offensive, and though I wanted to, it if difficult to explain all of this away as a cultural difference.

    Last edited by howard678; 06-13-2004 at 08:04 PM.

     
    Old 06-14-2004, 02:20 AM   #6
    mise ata ann
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    Re: Neurontin/Benzos....... warnings.

    Howard
    I have no idea why you are so angry?
    The allegations you make are all in your own head.
    I dont know - something to do with what is happening on your own political front. I am in New York soon - perhaps I will understand better.
    I have not written to you about any of the things about which you are railing off. Any of the inventions I at any time put up are historical facts - nothing more, nothing less. Was supposed to be a bit of fun. Can all be verified. We are a very very long ancient civilisation - whose citizens were your forefathers.
    The quotations I post come from your own very emminent doctors in the USA, and yet you are angry against them too?
    And if you dont understand the African problem then I will not even attempt a start. But believe me profits are killing people directly(and in their thousands, daily).
    Indeed your anger has blown Jennita (quite unfairly) away. Her support had been compassionate and unwaivering. She gives such sound sensible advice too and isnt afraid to tell the truth. This particular board has lost a great, compassionate, powerful and truthful, survivor of benzos. And this cannot be helpful for those souls who desperately need the help of someone like her. Not many people willing to do that in here. Too many platitudes and enablers. Don't you know a friend when you see one? A real friend. Plenty will massage your ego - but she and a few others will actually tell the truth.
    I will simply put your anger down to benzo withdrawal.
    But - have to put you right about a certain site - altho situated in UK the customers are 10:1 American to British. Why is there no similar US site? Maybe those American pharmas of which you speak should set one up? Surely badly needed? And the problems being caused are being caused by products from those very companies.
    I hope your taper is going well - your BP is staying reasonably level and you progress forward. It will be a great achievement when you finally finnish - and I have no doubts that you will - you have the right temperament to so do! LOL Turn anger to your own uses - and channel it - will help drive you ever foward.
    I still think you are fortunate in that you have found the truth and are acting on it. (Even if Prof Ashton is English!) No substitutes for benzos just gruelling taper.
    Many opiate sufferers are not so lucky. Just take note of all the various sweetie bags they are offered as a "cure". Would be funny were it not so very tragic. And as a result of this - I think you see person after person continuing to suffer on this board - year after year. When will the penny ever drop? The only way to quit an addiction is to stop (either c/t or taper) - NOT to trade addictions. And more is needed. You, as a person, have to change - or for sure - you will be back under the spell of drugs (opiates) again. (might take time - but if you dont change - it will happen. Just read NA/AA or any other 12 step literature) What was it that turned you to seek the oblivion which opiates gave you so readily? You have to start facing all these problems and dealing with them - not forever hiding behind the pills. I really doubt that benzo sufferers would ever go down that particular path again. Just dont know.
    Good luck, Howard
    I mean this sincerely as a fellow sufferer.
    I take no offence at your anger. Nothing written in here should be personal. Tis counterproductive.
    Mise

     
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